Categories
Mental Illness psychiatric survivors psychiatry

Disliking the Mental Illness Label: A Psychiatric Survivor’s Perspective

Welcome to From Insults to Respect. 

In a recent post, I shared some of my views about the pros and cons of the mental illness concept. I’m retired now, but derived my way of looking at these issues when I was employed in various settings as a PhD level psychologist.

During my career, I often interacted with people who, upon accessing mental health services, came away believing they were diagnosed as having a mental illness. I found that some of these people were just fine with this, while others felt the label, which went into their personal health record, was disrespectful and misleading. Although I believe my experiences provide a useful perspective, I also believe it’s important to hear directly from people who have been labelled in this way. Today’s post gives voice to one such person.

David. W. Oaks

David William Oaks is a co-founder and former executive director of MindFreedom International which rejects the domination of the biomedical model of most current psychiatrists. He became interested in this issue because of being, himself, institutionalized and forcibly medicated in the 1970s while studying at Harvard University for what was “diagnosed” as schizophrenia. In his view, he recovered by rejecting the label, along with the psychiatric drugs, and by getting support from family and friends. To see what his take is on this labelling issue, below I provide with his permission an abbreviated version of his “Let’s Stop Saying ‘Mental Illness’” article which you can read in its entirety HERE.

An Abbreviated Version Of “Let’s Stop Saying ‘Mental Illness’”

David W. Oaks at a a Psychiatric Survivors Rally

The term “mentally ill” is very much a narrow medical model. If you want to use that term about yourself that is one thing. But when anyone uses the phrase “mentally ill” about others, including me and other psychiatric survivors, the implication is that since an “illness” is the problem then a doctor ought to be part of the solution. “Mental illness” also says since the problem is like a materialistic physical illness, then perhaps the solution ought to be physical too, such as a chemical or drug or electricity.

Please note a subtlety here: My call is not about opposing the medical model, or any other particular model. My call is about opposing domination by any model in this complex field. My call is about opposing bullying in mental health care.

So let’s also drop the use of other words that tend to confine us in the dominant model. Let’s stop legitimating the use of words and phrases like “patient” and “chemical imbalance” and “biologically-based” and “symptom” and “brain disease” and “relapse” and all the rest of the medical terminology when we are speaking about those of us who have been labeled with a psychiatric disability.

By the way, have you been noticing a few “quotation marks”? Since 1969 when the movement began, mad activists have questioned language. What some activists do to provide just a little bit of breathing room between us and mental health industry language, is the generous use of quotation marks. For example, for decades some in our movement have changed, People with schizophrenia, to People with “schizophrenia.”

Quotation marks like this help the activist writer a bit, to show that it’s not the writer’s word, that he or she is just quoting someone else….

Psychiatric diagnosis has a tremendous amount of undue power.

I was diagnosed schizophrenic and bipolar, and found myself under the catch-all label of psychosis. To admit one has been officially labeled psychotic is perhaps one of the deepest closets to come out of, because the discrimination against those with that “p-word” label is so immense.

I prefer to talk about “discrimination,” rather than “stigma,” because discrimination is something we can actually challenge and change, such as through legislation. The word stigma, of course, comes from “branded,” and implies that my identity as a psychiatrically-labeled person is inherently negative, which is not always the case.

I would rather ask, “Who is doing the branding?”….

I understand that many people define themselves as “mentally ill,” and accept a medical model. If you do this, that is your choice. I respect you.

However, at this time, the “medical model” is dominant. The medical model has become a bully in the room. Language that somehow encourages that domination isn’t helpful to the nonviolent revolution in the mental health system we need, a nonviolent revolution of choice, empowerment, self-determination.

What about the many other people who define their problems from a social, psychological, spiritual or other point of view? And what about those who don’t see their differences as problems, just as differences, or even as qualities?

In fact, what about the subject of defamation? According to an attorney we work with, to falsely claim an individual is officially “mentally ill” with intent to harm them has been used in law schools as a classic example of defamation….

I’ve heard that some feel that using alternatives to medical model language somehow diminishes the seriousness of people’s personal pain, that, for example, being diagnosed with “clinical depression” underlines the gravitas of a crisis better than, say, “sad.” But there are words in the English language more fierce than “sad.” How about, for example, “extreme and catastrophic life-threatening anguish”? That phrase has a lot more gravitas than any clinical language I’ve ever heard!….

Some activists, including me, at certain times have sought to reclaim the words society has thrown our way. I realize others may not choose to ever use words like “mad” or “lunatic” or “crazy” or “bonkers” to describe themselves. We probably ought not use those colloquial terms in certain contexts, like arguing our rights in front of the United Nations or in a court hearing. But now and again, some of us like to have some fun and be outrageous, such as at MAD PRIDE events, where it is okay to be creative and reclaim language that has been used against us….

An oppressed group often seeks to redefine themselves as a first step toward liberation. For instance, many leaders of people we have known as Gypsies are asking to be called Romani. Look at all the permutations of language for African Americans just in the past century.

Linda J. Morrison, PhD

Mental health academics, such as Linda Morrison, PhD with her dissertation-based book Talking Back to Psychiatry, have even written treatises exploring the history of our movement’s ongoing wrestling match with language.

Why bother to replace “mentally ill” with something else, with anything else?

  • We can show we are at the very least trying to listen to psychiatric survivors (like me!) who have strong preferences for what we call them.
  • We can show we are trying to include a wide diversity of perspectives, including those who have often been excluded because of the current dominant paradigm in mental health.
  • We can show we are trying to care, and that we too seek a nonviolent revolution in the mental health system!

So please, become a pioneer, and together let’s drop the use of the phrase “mental illness,” and search for more inclusive and creative phrases. This is a reminder that our words and even our whole social reality of what is called “normal,” are not forced upon us God-given by the heavens, but are constructs that we mortals all co-create, in our imperfection, in our freedom, together.

David Oaks is currently working on a revision of his “Let’s Stop Saying ‘Mental Illness’” article which will soon be found on his davidwoaks.com blog.

My Reaction To Dave Oats’ Perspective

Mr. Oats is by no means the only one who dislikes the mental illness label.

Emma Barnes

We can see this plainly when Emma Barnes, the author of the article, Neurodiversity Is a Scientific Revolution, asked a group of people who view themselves as neurodiverse, “What do you feel when someone suggests you’re ‘living with a mental illness?’” They replied:

“Eye roll until my face turns inside-out.”

“That makes my stomach drop, extremities tingle, and ears ring.”

“I feel discounted, belittled, shamed & surprised.”

“I feel the RAGE.”

“It makes me feel like I have to explain things very slowly with very small words. I tense up, I experience irritation.”

“I’m never gonna talk to you again if you say that.”

“Shut down, like the lid of a box is closing on my head.”

“Frustrated, alienated, defensive, tense.”

“I feel dread, a sense of tightness and unease in my body.”

“Angry, rejected, tired as all hell.”

“I feel discredited and written off, like all my accomplishments are nothing. Like I’m just some crazy person.”

“Nauseated. Critiqued. Dismissed.”

“Oof, immediately activated and sick tummy, like I want to run.”

“Nauseous, pissed, unseen, dismissed, bullied.”

Ms. Barnes goes on to say:

These people are writhing against “the Personal Tragedy model” of neurodisability. I share their discomfort at being labelled “ill”. Although I experience distress acutely, I don’t have a disease, a bug, or an error. I have a body. I have a nervous system. And just like everyone else, when my circumstances are untenable, my body protests.

Jeffrey Rubin, PhD

To me, if I hear that someone views themselves as being neurodiverse rather than having a mental illness, I have no problem with that. I look to find ways to treat people with respect rather than to demean them with terminology they abhor. But my personal dislike with the mental illness terminology extends well beyond the respect issue.

Most people who have come to believe they have a mental illness believe so because they were given a mental disorder “diagnosis” by a psychiatrist or other licensed mental health professional. In our society, a mental disorder and a mental illness are largely viewed as synonyms. My major objection to the word “diagnosis” when used to label someone as either having a mental disorder or mental illness is that the designated patient typically comes away thinking the doctor now knows what is wrong. They think, “The reason I’ve been feeling depressed is I have Major Depressive Disorder,” or “The reason I have high levels of anxiety is I have an Anxiety Disorder,” etc.

This is terribly misleading. The “diagnosis” system was created by psychiatrists funded largely by the pharmaceutical industry which has a financial interest in labelling as many people as possible. Rather than a real diagnosis system, it is just some medically sounding words that these psychiatrists agreed to use whenever a patient answers a series of questions in a particular manner. The label does not indicate the mental health professional now knows why the patient is dealing with the expressed concern that led to seeking help. It is just a label masquerading as a diagnosis, in contrast to when a doctor declares a diagnosis after determining, for example, that someone with high fever and sore throat has a covid virus in his or her system. In this example, the diagnosis is a covid virus infection. Here the doctor knows the reason for the high fever and sore throat.

In my opinion, whenever professionals think they do know why the patient is experiencing the concern that led to seeking help, the professional properly would say, “My theory of why you are dealing with this concern is….”

Human beings are way too complicated for anyone to declare with certainty knowing the reason why someone is experiencing the kinds of concerns people seek help from mental health professionals. The language I advocate for, by being framed as a theory rather than a diagnosis, would go a long way from preventing the dishonest type of communication now regularly employed in our mental health system.

My Best,
Jeff

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Some people will enjoy reading this blog by beginning with the first post and then moving forward to the next more recent one; then to the next one; and so on. This permits readers to catch up on some ideas that were presented earlier and to move through all of the ideas in a systematic fashion to develop their emotional and social intelligence. To begin at the very first post you can click HERE.

Categories
antipsychotic drugs conflict resolution psychiatry Schizophrenia

Antipsychotics: The Illusion That They are Helpful

Welcome to From Insults To Respect.

Last year I published a post titled “Are Antipsychotics Beneficial?” (see HERE).

Robert Whitaker

Although I had personally reviewed the research, I relied on my method of presenting this information to readers by summarizing a free PDF written by the highly regarded science writer, Robert Whitaker, titled, “The Case Against Antipsychotics: A Review of Their Long-term Effects.” By clicking on the blue title, you can read all of his arguments.

Whitaker’s most recent book, Anatomy of an Epidemic, provides an in-depth exploration of medical studies, and concludes that there are serious problems with the conventional wisdom of treating those labeled as mentally ill with drugs.

Toward the end of my post on antipsychotics, I provided the following quote from Whitaker’s free PDF:

“The drugs are supposed to provide the benefit of reducing psychotic symptoms. antipsychotic handBut the research reveals that, over the long term, this benefit turns into a negative, and so, over the long-term, there are only negatives to be chalked up: the increased chronicity of psychotic symptoms, the impaired functional outcomes, the worse cognitive functioning, and, of course, a broad range of “side effects,” such as tardive dyskinesia, metabolic problems, sexual dysfunction, and so forth. Such is the bottom-line arithmetic that makes the case against antipsychotics.”

In my post, I ended up supporting Whitaker’s conclusions.
Consequently, some of my readers showered me with praise for having the courage to stand up to the powerful pharmaceutical-psychiatric institutions, while others showered me with the most disrespectful insults known to the human race. And then there were those who disagreed with me but did so in a respectful manner. I believe it is my responsibility to now provide them a respectful response.

Those disagreers who remained respectful put forth basically two types of arguments. The most common of these were from people who personally know a family member or friend who has been “diagnosed” as having schizophrenia and from their observations the “antipsychotic” drug treatment appears to be helpful.  Others had seen some research that has convinced them that the drugs reduced the risk of death.

My post today will focus on the first of these arguments. I review the evidence regarding whether or not these drugs reduce the risk of death HERE.

The Apparent Helpfulness of Antipsychotic Treatment

Any pill prescribed by a doctor will lead many to experience a placebo effect, which can be, for a period of time, helpful. I hasten to point out that a person can get a placebo effect with non-drug treatment approaches as well, and this would avoid the various harms associated with this type of drug.

In addition to a placebo effect, the perception of helpfulness of a drug can come about when a patient in an agitated state first comes to the attention of a psychiatrist. These drugs are not only known as “antipsychotics,” but also “major tranquilizers,” because they sometimes do appear to calm someone in distress.

Unfortunately, once someone begins to take these drugs to help with agitation, when they try to come off of the drug, they are left with drug withdrawal experiences that have been described as awful. I hasten to point out that there are other ways to help someone to calm down that need not rely on these types of drugs. I have worked on many occasions with people who are agitated, and without the aid of a drug prescription I listened in a caring way, and in time the person eventually calmed down. If, however, you give someone a drug that calms the person down, it is sometimes much easier, and less time consuming. For people who witness someone they care about in high distress drift into a calmer state upon taking an “antipsychotic,” this can seem enormously helpful.

Moreover, for a period of several months, the person who had been experiencing some mental health concern might, after taking these types of drugs and being a bit calmer, may begin to function better in several ways, such as sleeping more soundly, or having friendlier relationships.

Some of them would have recovered in a fairly short period without the drug, but because they recovered while taking the drug, they, and their loved ones, attribute the improvement to the effectiveness of the drug. If the person tries to see whether the improvement was due to the drug or the natural recovery process, he or she may try to stop ingesting the drug.
However, the withdrawal from the drug, as I mentioned above, often causes a nasty physiological reaction which, in some ways, is similar to someone who is a coffee drinker who suddenly decides to stop, cold turkey. However, the “antipsychotic” physiological withdrawal reaction can be experienced as much worse. When people who care about this person see the downward spiral that occurs from the physiological withdrawal reactions, they may come to attribute it to the person’s “mental illness” returning, and thus, the illusion of long term effectiveness is now deeply entrenched.

Another way in which the illusion of the long term effectiveness of the drugs can occur has to do with the fact that even when the “diagnosed” person is not functioning well on a drug treatment regimen, human beings can always imagine that the patient would be doing even worse without taking the drug. And of course, when the patient does try to go off the drug, the raging physiological withdrawal process occurs. So, in this way, the combination of the belief that the patient could be doing worse, and upon becoming worse when trying to do without the drug, it convinces people that the drug treatment is helpful.

Finally, oftentimes family members are the ones who had advocated that the distressed person go to a psychiatrist and comply with the drug treatment. Once they take that position, and tell others what they had done, information that comes their way in the form of the distressed person having bad side-effects, or hearing from people who take the position that the drugs may be more harmful than helpful, a psychological phenomenon known as cognitive dissonance occurs. The principle of cognitive dissonance states that human beings strive for internal psychological consistency. When they experience internal inconsistency they become psychologically uncomfortable and a major way that they try to reduce the discomfort is by avoiding circumstances and contradictory information likely to increase the magnitude of the cognitive dissonance.

So, in summary, the five ways that people may get the false impression that over the long term the drugs are effective are:

  1. The placebo effect,
  2. The initial calming effect of the drug,
  3. Attributing observed improvement as being due to the drug rather than to the natural course of the experience,
  4. Whenever the drug taker is not doing well, it is easy to imagine he or she would be doing even worse if he or she was not taking the drug,
  5. Cognitive dissonance.

(By the way, upon reading this, if some of you who have been taking these types of drugs decide that you want to try to wean yourself off, a good resource to help can be accessed HERE.)

Maybe I’m the One Suffering From Cognitive Dissonance

I have publicly supported the argument that these drugs cause more harm than good. Therefore it can be argued, it is I who suffer from cognitive dissonance whenever evidence comes my way that might support the idea that these drugs are helpful in the long run.

This point is worth considering. What I have done to avoid falling into this trap is to thoroughly review the research regardless of whether or not it supports my position. Here’s a partial description of what I found.

By the late 1990s, investigators had reported that antipsychotics caused basal ganglion structures and the thalamus to swell, and the frontal lobes to shrink, with these changes in brain volumes “dose related.” Then, in 1998, Raquel Gur, from the University of Pennsylvania, reported that the swelling of the basal ganglia and thalamus was “associated with greater severity of symptoms.”

Soon Nancy Andreasen, who was then editor-in-chief of the American Journal of Psychiatry, reported on her findings from a study of 500 schizophrenia patients. In 2003, she reported that their frontal lobes shrank over time, and that this shrinkage was associated with a worsening of symptoms and functional impairment, and after five years, with a worsening of cognitive abilities.

While Andreasen initially attributed this shrinkage of the frontal lobes to what she referred to as the schizophrenia disease process, in 2011 she announced that long-term use of the old standard antipsychotics, the new antipsychotics, and clozapine were all “associated with smaller brain tissue volumes.” She found that this brain shrinkage was dose related; the more drug a person was given, the greater the association “with smaller grey matter volumes.” A loss in white matter volume was also “most evident among patients who received more antipsychotic treatment.” Illness severity and substance abuse had “minimal or no effects” on brain volumes, she concluded.

Numerous studies have now reported that antipsychotics induce changes in brain volumes, which, German investigators concluded in 2014, “exert adverse effects on neurocognition, symptoms and psychosocial functioning.”

The MRI studies provide objective evidence that antipsychotics cause changes in brain volumes that are associated with a worsening of symptoms, and a worsening of functional impairment.

So, with all due respect to my critics, I respectfully submit the above argument that the belief that antipsychotics are helpful in the long run is an illusion.

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Some people will enjoy reading this blog by beginning with the first post and then moving forward to the next more recent one; then to the next one; and so on. This permits readers to catch up on some ideas that were presented earlier and to move through all of the ideas in a systematic fashion to develop their emotional and social intelligence. To begin at the very first post you can click HERE.

 

Categories
conflict resolution Mental Illness psychiatric drugs psychiatric medications psychiatry Thomas Szasz

My Radical Psychiatrist Friend Dr. Szasz

Welcome to From Insults To Respect. I’m Dr. Jeffrey Rubin.

Dr. Jeffrey Rubin

Typically, here on this blog I aim to write posts that suggest how we might deal with various intrapersonal and interpersonal conflicts in a manner that will enhance the respect that we have for ourselves, and others have for us. But today we will look at a set of circumstances that is a bit more complicated.

It just so happens that during the last 20 years of Dr. Thomas Szasz’s life I got to know and respect him. He passed away in 2012. During the period of time that I got to know him, I found that some people respected him as I did, but others didn’t. So, throughout this period, I had the following quandaries: If I let the people who didn’t respect him know I did, would that end up weakening the respect they have for me? Should I remain silent about my respect for him until I find out how the others I am with view him? Would I respect myself more if I spoke up about why I respect him even if I risked losing the respect of some? These are the questions that today I invite you to explore.

Learning About Dr. Szasz

Dr. Thomas Szasz

I first came to hear of Dr. Szasz back in 1971when I was taking an undergraduate Abnormal Psychology course at Brooklyn College. One of the assigned readings was Dr. Szasz’s article, published in the American Psychologist, titled, “The Myth of Mental Illness”.  Dr. Szasz also wrote a popular book with the same title, which I read a few years later.

In the article, Dr. Szasz put forth his belief that the behaviors and experiences that are considered “mental illnesses” are more accurately construed as problems in living. As someone whose family narrowly escaped the violent, inhumane actions of Hitler in 1938, he expressed a concern about society giving psychiatrists the authority to convert these problems into a language of illness. As he saw it, his own profession has a financial interest in converting more and more problems in living into illnesses that require its services to reach some vague harmonious state thought of as mental health. However, according to Szasz,

…it seems to me that—at least in our scientific theories of behavior—we have failed to accept the simple fact that human relations are inherently fraught with difficulties and that to make them even relatively harmonious requires much patience and hard work. I submit that the idea of mental illness is now being put to work to obscure certain difficulties which at present may be inherent—not that they need be unmodifiable—in the social intercourse of persons. If this is true, the concept functions as a disguise; for instead of calling attention to conflicting human needs, aspirations, and values, the notion of mental illness provides an amoral and impersonal “thing” (an “illness”) as an explanation for problems in living.

Of particular interest to my fellow students was Szasz’s argument that by converting these problems into something that sounds like a real illness, it creates a situation in which psychosocial, ethical, and/or legal deviations are claimed to be correctible by (so-called) medical action only doctors are licensed to provide, such as the prescribing of drugs. To Dr. Szasz, it is logically absurd to expect that it will help solve these types of problems by prescribing tranquilizers and other drugs as if they were like a bacterial infection, or the growth of a tumor. To be sure, people on their own have tried to deal with these problems by taking a wide range of drugs, such as alcohol, tobacco products, stimulants, and heroin. Such approaches, rather than promoting healthy outcomes, tend to lead to less healthy outcomes. To Szasz, changing to the drugs doctors prescribe to deal with these problems in living is like changing seats on the Titanic.

Upon reading the American Psychologist article, it seemed to me that Szasz made some valid, thought provoking points, and during the class discussions, although not everyone agreed with everything Dr. Szasz had written, none of the students, nor did the professor, seem upset with the author’s position.

As several years rolled by, I read several of Dr. Szasz’s books. The role of psychiatrists in social control, promoting conformity, lobotomizing, administering electrical currents to brains to cause convulsions, prescribing harmful drugs to children for behavior problems, stigmatizing adversaries, disqualifying citizens of their right to stand trial, and creating confusion by calling both voluntary medical interventions and coercive practices “treatment,” are the issues Dr. Szasz incisively analyzed.

Many of Dr. Szasz’s books received enormous praise. For example, a reviewer in The Atlantic wrote of his Myth of Mental Illness:

It is no exaggeration to state that Szasz’s work raises major social issues which deserve the attention of policy-makers and indeed of all informed and socially conscious Americans….Quite probably he has done more than any other man to alert the American public to the potential dangers of an excessively psychiatrized society.

Dr. Szasz’s book, Law, Liberty, and Psychiatry, also was met with high praise. In a review published in the New York Times, Edward de Grazia wrote;

This bold and iconoclastic work takes up most of the faults committed in the name of mental illness, and lays down short-run and long-run solutions.

Charles D. Aring, M.D., Professor of Neurology, University of Cincinnati, wrote:

It is likely to rank among the classics of psychiatry.

How We Met

Corning, NY

So, by the time I graduated from the University of Minnesota’s PhD program, and obtained a position as a psychologist in the Corning, New York school system, I was quite familiar with Dr. Szasz’s writings, but I had never met him. But then I began to notice that during my time in graduate school, there was an explosion in the number of students who were being prescribed psychiatric drugs. This began to alarm me more and more because of several of the cases referred to me.

One boy had recently become depressed. When I asked him why he thought he was depressed, he said that his mother was making him take Ritalin to treat his ADHD. The boy didn’t believe he had ADHD, and when the drug’s stimulant effects began to wear off each evening, he was left feeling awful, with waves of sadness, stomach aches, and difficulty falling asleep.

I checked his school record and found he had been consistently on the honor roll prior to taking Ritalin. His teacher reports never expressed any concerns about his having any trouble paying attention or being hyperactive. Instead, he was viewed as an excellent student.

When I asked the boy’s mother why he had begun to take the drug, she explained that he appeared to her to be having trouble paying attention to his homework. When she brought him to her doctor, he diagnosed him as having ADHD based on her concern about the homework issue and then prescribed the drug. When I informed her that the boy attributed his depression to the side effects of Ritalin, she got defensive, and told me she had faith in her son’s doctor, and she didn’t want my advice about what drugs her doctor was prescribing. I was, according to her, to keep my mouth shut about the drug and just treat her son’s depression.

I found this a very challenging situation.

At the same time, I had become concerned that so many of the kids referred to me who were in foster care were on drugs typically prescribed for people diagnosed as psychotic. These students typically were dealing with serious emotional challenges involving being taken from their parents’ home. A couple of these cases involved parental child abuse, others involved parents being sent to prison, and I had another case of a boy dealing with his parents dying in a car accident. My efforts to help these grieving kids became ever more difficult because of the side effects of the psychiatric drugs prescribed to them. Some of the side effects were known to be life threatening.

And then, in the spring of 1989, a 21-year-old man was found dead at a nearby psychiatric facility within 24 hours of being forcibly injected with the same type of drug these foster children were taking.

Prior to this incident, members in my community were already hotly debating the use of psychiatric drugs within schools. The death broadened and intensified the issues.

Lincoln-Douglas Debates

As a psychologist, my views were sought. Although forthright about my position, in my PhD program I had learned that when confronted with a controversial issue my primary obligation is not to propagandize but to teach; not to indoctrinate but to provide opportunities for citizens to hear a free exchange of opposing views.

To this end, I organized a full day debate in my community on this issue titled, “Psychiatric Drugs: Wonderful Revolution Or Ongoing Catastrophe?” There were two psychiatrists and a patient in favor of the current drug approach, and two psychiatrists and a former patient who were on the other side of the issue. Dr. Szasz was one of those psychiatrists. I served as the debate moderator.

The debate was so popular that people from other communities began to ask me to organize a similar event in their community. Consequently, I set them up in Washington, D.C., Binghamton University, Niagara Falls, and Baltimore, all of which were very well attended. As I went about planning these events, I started to hear from people who were vehemently opposed to them. For example, one woman wrote to one of the sponsors of the debate:

Regarding the October 3rd Binghamton Conference, I am writing in great dismay and utter incredulity that so much mental health money would be spent in this fashion. The money for the needed basic services has been so sharply reduced for our ill family members; plus with the number of mentally ill homeless ever increasing, then to see the large number of participants in such a program was definitely upsetting to me.

I am a member of the Finger Lakes Alliance for the Mentally Ill and have been involved with mental health issues at close range for many years. Firsthand, I can attest to the grief and destruction of lives which mental illness causes. To waste funds and not direct them toward research into the root causes is in my opinion, the wrong direction. To present fallacious viewpoints so flagrantly as was done October 3rd., can only cause more heartbreak to those least deserving of any more heartbreak.

No wonder so many health professionals are stumbling along trying to help our loved ones, but getting nowhere. This is not to say their motives are not right but such attitudes as Dr. Szasz, etc., expound upon cannot help but cloud their thinking.

It is my hope no such conferences will occur. However, if there are any other similar ones, family members should also be on the panel. Dr. Major and Dr. Feinstein were great, but there should be representation from the families who watch and suffer.

So, here we see that the person writing the letter acknowledges that some on the panel did a great job presenting her views but she objects to views with which she disagrees being expressed. Dr. Szasz is specifically named as among those who should be silenced.

By the way, the objection expressed by the critic of the debates, “that so much mental health money would be spent in this fashion” is very misleading. Those who attended came voluntarily and payed a fee for coming. There were some scholarships for those who wanted to attend but said they couldn’t afford the fee, but because so many attended, there were no substantial cost to mental health funded programs. The one exception was that one mental health department in New York State volunteered to print the brochure and send it out to all members of the state’s mental health workers. The cost to the department represented a pittance to their overall budget.

Shortly after receiving this letter, I was contacted by the Executive Director of the Mental Health Association in Niagra County, who asked me to work with her group, and several others in her area, to put on a similar debate for her community. This time I did add to the panel a family member who belonged to the local chapter of the National Alliance On Mental Illness. Despite that, I received a letter from the president of that organization’s New York State chapter asking that the debate be cancelled. In his letter, he specifically objects to Dr. Szasz expressing his views.

I am pleased to report that the debate in Niagra County went ahead as planned. Moreover, the Niagra New York chapter of the Alliance On Mental Illness formally welcomed the conference.

My involvement in the project led to Dr. Szasz and I becoming friends. I would go visit him at his home from time to time, and we would have lunch while discussing his views. At such times when I disagreed with him, I found his delightful sense of humor and cogent counter arguments were done in a manner that I deeply enjoyed and respected.

Over the years, I found his love for his two daughters particularly heartwarming. I could easily relate to his feelings toward them because I have two dear sons.

Whenever I visited him, he normally didn’t interrupt our conversation even when the phone rang, but if the answering machine indicated the call was from one of his daughters, the delight on his face was something to behold. And then he would quickly apologize to me and, like a little boy being invited to have some chocolate cake, he would rush over to take the call.

I remember being invited to his eightieth birthday party. Over a hundred people attended, and the enormous respect they all had for him was amazing.

How Best To Handle A Situation In Which It Becomes Apparent Someone Doesn’t Respect Your Friend?

So, what do you do in a situation like this, that is, a situation in which some people highly respect your friend, while others don’t? As for me, when I meet someone saying negative things about Dr. Szasz, I take some time to listen carefully, and I respectfully summarize the person’s position. I then gently say a few supportive things about Dr. Szasz, while bracing myself to deal with the person’s reaction. As the other person replies, I again listen, seeking to be as empathic as possible.

I recognize that I may lose a certain amount of respect from that person, but I hope, and seek, to win them back as time goes by with my other actions.

What are your thoughts about such challenging situations?

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Some people will enjoy reading this blog by beginning with the first post and then moving forward to the next more recent one; then to the next one; and so on.  This permits readers to catch up on some ideas that were presented earlier and to move through all of the ideas in a systematic fashion to develop their emotional and social intelligence.  To begin at the very first post you can click HERE.

Categories
conflict resolution involuntary psychiatric drug treatment psychiatric drugs psychiatric medications psychiatrists psychiatry

Involuntary Psychiatric Drugging: Is it Torture?

Welcome to From Insults to Respect.

Many people have come to feel that the psychiatric profession has failed to treat them respectfully. Several issues have inflamed them, arguably the most emotional being involuntary drug treatment which, to them, is often viewed as torture.

Among the groups that agree with this torture notion is the National Association for Rights Protection and Advocacy (NARPA). Its mission statement reads:

NARPA’s mission is to promote policies and pursue strategies that result in individuals with psychiatric diagnoses making their own choices regarding treatment. We educate and mentor those individuals to enable them to exercise their legal and human rights with a goal of abolition of all forced treatment.

Several psychiatrists, such as Thomas Szasz and Peter Breggin, have, over the years, fully supported NARPA’s mission.

As Dr. Szasz explained:

Dr. Thomas Szasz

“Benjamin Franklin warned us, ‘They that can give up essential liberty to obtain a little temporary safety, deserves neither liberty nor safety.’ Yet today Americans seem ready to sacrifice liberty to obtain a little temporary ‘mental health.’ To complicate matters, ‘mental health’ is a vague, almost meaningless term…. Franklin was right. Regardless of how we define ‘mental health,’ if we sacrifice essential liberty for it, we shall deserve–and in fact have–neither liberty nor ‘mental health.'”

Dr. Breggin explained his position as follows:

“Since finishing my training, I have never treated or incarcerated anyone against his or her will.  During this period in private practice extending back to 1968, no patients in treatment with me have committed suicide or perpetrated a serious act of violence.  Any good psychiatrist or therapist could have a patient commit suicide or perpetrate violence; but coercion, drug treatment, and hospitalization increases the likelihood. I believe that my refusal to coerce patients, my efforts to prevent hospitalization, and my practice of not starting patients on psychiatric drugs have contributed to the good fortune that my patients have not committed suicide or extreme violence. People in deep distress do not need incarceration or the inevitable drugs that follow; they need caring help from friends, family, and professionals.”

Recently, a United Nations report also condemned involuntary psychiatric interventions, including drug treatment, which it viewed as a form of torture (see HERE). It concluded that for persons with psychosocial disabilities all States should:

“(a) Review the anti-torture framework in relation to persons with disabilities in line with the Convention on the Rights of Persons with Disabilities as authoritative guidance regarding their rights in the context of health-care;

“(b) Impose an absolute ban on all forced and non-consensual medical interventions against persons with disabilities, including the non-consensual administration of psychosurgery, electroshock and mind-altering drugs such as neuroleptics, the use of restraint and solitary confinement, for both long-and short-term application. The obligation to end forced psychiatric interventions based solely on grounds of disability is of immediate application and scarce financial resources cannot justify postponement of its implementation;

“(c) Replace forced treatment and commitment by services in the community. Such services must meet needs expressed by persons with disabilities and respect the autonomy, choices, dignity and privacy of the person concerned, with an emphasis on alternatives to the medical model of mental health, including peer support, awareness-raising and training of mental health-care and law enforcement personnel and others;”

Involuntary psychiatric interventions are legitimized under national laws, and may enjoy wide public support as being in the alleged “best interest” of the person concerned, or because it protects people in the community from the violence that some people labelled mentally ill will carry out. Nevertheless, according to the UN report, “…to the extent that they inflict severe pain and suffering, they violate the absolute prohibition of torture and cruel, inhuman and degrading treatment.

Is It Really Torture?

When people are forced to take psychiatric drugs, it often feels like torture because of a number of their side effects. For example, akathisia makes it hard to stay still. It causes an urge to move that you can’t control. You might need to fidget all the time, walk in place, or cross and uncross your legs. Akathisia is often hard to describe, and it can take over a person’s life and feel awful.

Other torturous effects come from the patient knowing that upon being forced to take these types of drugs it can lead to a number of very serious disabling and embarrassing results. Tardive dyskinesia, a largely irreversible movement disorder, can be very severe and disabling. In one case that led to a two-million-dollar settlement, a woman developed muscle spasms and abnormal movements that afflicts her face, neck, shoulders and extremities, as well as her speech and breathing.

Tardive dyskinesia occurs at a cumulative rate of 4-7% per year in otherwise healthy, relatively young patients treated with many of the so-called antipsychotic drugs. After only a few years, 20% or more of those treated will be afflicted with tardive dyskinesia. Older patients have an even higher risk.

These types of drugs are also associated with enormous weight gain leading to diabetes and other serious health risks, along with the added consequences of being humiliated from people who call you disgustingly fat. Knowing that the drug you are being forced to take can lead to all of these types of consequences understandably can be extremely disturbing. When added to the fact that psychiatric patients are typically already in very highly stressful situations, the negative side effects of these drugs, along with fear of getting some of the permanent health problems related to using these drugs, which I have only touched upon, it becomes understandable that many experience forced drug treatment as torture.

Is It Fair To Drug People Who Will Never Commit a Violent Act Simply Because They Fall Into Some Category That Is Predictive Of Violence?

According to the United States Department of Justice men commit violent crimes more than three times as often as women, although most men do not commit a violent crime. Since men are more likely to commit violence, should all men be involuntarily placed on psychiatric drugs?

Because men, as a group, are pretty powerful, it is not likely that any laws will be passed that will force all men to be placed in such a degrading and torturous situation. Nevertheless, we see on TV media reports numerous incidences of violent acts, most of them by far are committed by men.

Individuals who are male teenagers or young adults are also more at risk of violence than the average person in a given population. Thankfully, for my two sons, our society does not require that all of these at risk individuals be placed on psychiatric drugs.

When the media depict a violent person who is described as schizophrenic or psychotic, the public cries out for involuntary treatment. This is a politically disempowered group. So, it is relatively easy for the public to ignore the fact that this policy would require numerous individuals who are not violent to suffer the horrendous consequences of such a policy.

It’s important to keep in mind that most commitment laws do not require a judicial determination of incompetence, nor do they require a criminal charge or a criminal conviction (see HERE). Rather, a psychiatrist must make a prediction that the person is dangerous to self or others. These types of predictions tend to be more wrong than right. Moreover, there are numerous examples of patients who are forced to be on these drugs who end up committing a violent act anyway.

The best scientific analysis that looks at whether or not the drugs significantly reduce violence when involuntarily administered has been provided by the nonprofit group called Cochrane (see HERE). It turns out that there is no reliable evidence that these types of drugs do decrease violence with involuntary patients.

A few studies have provided some evidence that suggests that the drugs can moderately reduce violence for involuntary patients who have a history of engaging in substance abuse. However, the relevant evidence is based on relatively small trials, with high or unclear risk of blinding bias, a significant number of subjects who are lost to the researchers during the study, or the study’s design did not use random assignment of subjects.

It is important to point out that the vast majority of individuals who are said to have committed a violent act in such studies don’t actually physically hurt anyone. They typically have engaged in an angry exchange and ended up breaking something, smashing a window, or, in the heat of the exchange, threatened someone with a violent act. Some studies suggest that the drugs used can actually increase the likelihood of violence.

The best predictors of future violence are a history of past violent crime, victimization, involvement with illegal drugs and drug markets, poverty, life trauma exposure, and ambient neighborhood crime. When these factors are not present for an individual, being classified as mentally ill is not related to violence. Rather than the vague notion of mental illness, it appears that these are the real factors that lead to the statistically modest increased risk of violence among those labelled as mentally ill because such labelled individuals are more likely to be exposed to these risk factors (see HERE).

Even if we were to take the evidence that suggests that the drugs might reduce violence as absolutely true, then, once again, we must face the moral dilemma: Is it morally acceptable to involuntarily place on these types of drugs all people deemed as possibly likely to commit violence even though most will never hurt anyone? To say yes means that the policy will expose numerous people who would not hurt anyone to torture and physically harmful consequences.

Is There A Better Alternative To Involuntary Treatment?

Clearly, people in our communities have justification to want to keep people from harming themselves or others. I know I don’t want violent people running around my neighborhood. However, the use of psychiatric drugs too often lead people to think that the mental health professionals did what was needed, and thus reduces the necessary motivation to advocate for more helpful action. In my view, there are far better ways to address these concerns without any need for involuntary treatment or torturing anyone.

First of all, we already have laws for someone who commits a violent crime. I support these laws because without them many people who might otherwise act violently find that to avoid prison time they can choose a nonviolent alternative, thus making our communities safer. For those who fail to choose nonviolent ways to deal with life challenges, the law requires that they serve time in prison. Removing them from our communities for a period of time leads to our communities being safer, and gives the person who committed the crime an opportunity to consider better alternatives to deal with the type of situation that led to their incarceration. Moreover, as they serve time in prison, they become older, thus they enter an age range that leads to more thoughtful considerations and a much lower likelihood of choosing violent options.

Now, I hasten to point out that many prison officials believe that when people serve time they should be punished in degrading ways. But most people placed in prison, whether they are displaying behavior that often leads one to receive a mental illness label or not, are best treated with respect and dignity. The vast majority will eventually return to our neighborhoods and to traumatize them with abusive actions while they are in prison increases the risk that they will become less than ideal citizens. There are a number of countries that have been trying out more humanistic approaches to treating prisoners and the results have been very promising.

So the current laws, especially if carried out humanistically, already offer people in communities a good deal of safety. Yes, people who are imprisoned have typically been placed there against their will, and therefore, this can be viewed as an involuntary treatment. But, in such cases, they are first entitled to present their case in front of a jury of their peers, be represented by a lawyer, and, if treated humanistically, are not involuntarily drugged or tortured in some other manner. The constitution prohibits cruel and inhumane punishment.

In addition to providing safety within communities via laws that lead to people convicted of a violent act being imprisoned, what else can be done? In an article that I wrote and had published in the peer reviewed journal Professional Psychology: Research and Practice, I describe a promising approach that goes well beyond simply locking people up. For those people who are at risk of violence, we can incentivize them to learn nonviolent ways to deal with the kinds of anger arousing situations that they may potentially face. For example, people who have been convicted of a violent crime and are serving out their sentence can be incentivized to learn prosocial skills by reducing their sentence a month if they demonstrate mastery of the skills. People at risk who are not incarcerated may be offered some other incentives such as access to better housing, or even be provided a monetary incentive that is about the same amount as the combined cost of a drug management program. Drug management typically includes the cost for the drugs plus the time for professionals to assess, prescribe, and monitor the patient. Monitoring the patient includes regular meetings to assess drug side-effects, readjust the medication dose, prescribe a different or additional drug, and sending out a social worker or nurse to remind patients to take their prescriptions. These costs are significant and if redirected to incentivizing people at risk, it would lead to a significant level of voluntary participation.

Some Details Regarding a Prevention Program

What would a program that teaches nonviolent ways to deal with anger arousing situations look like? Teachers would identify their student’s pattern of anger expression and the situations in which the student typically experiences anger. Responding to criticism and providing criticism are particularly hot spots, so they would be the focus of early lessons (see HERE to begin the process of learning incompetent versus competent behaviors for dealing with these types of situations). Viewing audiovisual recordings depicting alternative nonviolent behavior would provide effective modeling of prosocial skills.

Students would be informed that when they are learning alternative behaviors, attempts at suppressing old behaviors are not necessary unless it would lead to someone really getting hurt. No one expects perfect learning, and some recorded behaviors may not be right for a given student. By viewing many recordings depicting alternative behaviors, students find that they adopt some of the skills in an effortless manner. It’s kind of like hearing a song several times. You might not decide by an act of will to learn the lyrics, but you may find that you are singing the words anyway.

For the dangerous student who is locked up because of being convicted of a crime, safety during this part of the training is maximized by eliminating from the environment potential weapons and making certain that an adequate, well trained security staff is readily available. At the first sign of violence, the staff isolates the combatant until anger is diminished and an alternative style for dealing with the arousing event has been identified by the student. Note that with this type of structure, it is not necessary to encourage students to control their behavior by an act of will. Instead, they are challenged to process the information provided at their own pace.

In the next part of the training, students begin to make their own audiovisual conflict recordings. Concrete examples are thus affectively, cognitively, and behaviorally rehearsed while clear audiovisual feedback is provided by observing the created recordings. From my own experience working with these types of students, this is enormously fun for them and is experienced as making their own TV shows.

As in the previous training period, some of the practitioner’s suggestions may begin to feel uncomfortable to the client. This can seriously interfere with the learning period if poorly handled. I have found it useful from time to time to preface my recommendations with the same gentle admonishment that the famous physics professor Niels Bohr used to give his students: “Every sentence that I utter should be regarded by you not as an assertion but as a question.” This tends to disarm the student, sets the stage for a positive collaboration, and fosters interest from the satisfaction derived from fulfilling one’s own internal standards.

Stubborn anger problems require the setting of gradual goals and the accompaniment of the student into the community setting for participant modeling. Careful selection of encounters of increasing difficulty would permit students to bolster their self-confidence. As learning progresses, guided participation would be reduced and students would then be assigned to progressively more challenging tasks to perform on their own.

Anger management interventions have not advanced so far as to completely eliminate anger from an individual’s repertoire. In order to prepare students for these recurrences, it is recommended that such interventions be designed to encourage students to view lapses in training not as a sign of their helplessness, but as a challenge to improve.

In a study that cited my anger article, an intervention with physically aggressive children using several of my ideas were put into practice. Compared to a randomly assigned control group, the program developed was “efficacious in reducing children’s physically aggressive behaviors, improving the parent-child relationship, and enhancing parental behaviors and skills in dealing with childhood aggression.”

In a second study that cited my anger article, a social skills and anger management program was provided to adult criminal offenders with a history of violence. Results of the study support the hypotheses that social-skills training can reduce anger among high-risk offenders.

Well, there you have it, my thoughts on involuntary psychiatric drugging and a promising alternative. I conclude with a quote from John Perceval who had provided his own account of his extreme state that was labelled “psychosis”:

I wish to stir up an intelligent and active sympathy, on behalf of the most wretched and the most oppressed, by proving how much needless tyranny they are treated–and this in mockery–by men who pretend indeed their cure, but who are, in reality, their tormentors and destroyers.”

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Some people will enjoy reading this blog by beginning with the first post and then moving forward to the next more recent one; then to the next one; and so on. This permits readers to catch up on some ideas that were presented earlier and to move through all of the ideas in a systematic fashion to develop their emotional intelligence. To begin at the very first post you can click HERE.

 

 

 

Categories
ADHD medication American Psychiatric Association conflict resolution MindFreedom International psychiatric drugs psychiatric medications psychiatry Ritalin

Psychiatric Drugs: Wonderful Revolution or Ongoing Catastrophe?

Welcome to From Insults to Respect.

A while ago, as I began to think about what topic to write about for my next post, I received an email from Mindfreedom International (MI). It brought attention to a demonstration it was planning. As MI expressed it in part:

A mock funeral mourning those lost to psychiatry or who have had their spirits broken and struggle to survive is to be held as protesters deliver a public message to psychiatrists at the annual meeting of the American Psychiatric Association on Sunday, May 6, 2018. “First, Do No Harm” is the message that protesters hope will go viral and get people to think twice before getting involved with psychiatry.

Our coalition brings attention to the harm that psychiatry has caused for many people in the mental health system, psychiatric survivors, people of color, people with psychiatric histories, and people experiencing other forms of structural oppression. Uninformed or court-ordered psychiatric drugging; chemical and mechanical restraints, solitary confinement; forced and uninformed shock treatments….have caused irreversible damage to the minds, bodies, souls, and lives of people who voluntarily trusted their doctors or were brought to court to comply with their prescriptions over their objection….We will mourn the deaths and the ongoing forced treatment of our brothers and sisters.

Is there a way to move MI’s various conflicts with the psychiatric organization forward in a manner that leads to a more respectful relationship between the two?

My Views About Psychiatric Drugs

I became interested in the conflict about the use of psychiatric drugs very early in my career as a psychologist. I began to discuss the issues with psychiatrists as well as those who objected to this form of treatment. A broad outline of what I heard follows:

Advocates for the use of these drugs make the following claims: These drugs reduce emotional pain, correct abnormal brain patterns, and restore normal mental function. When used judiciously, they reduce hospitalization and may quickly alleviate symptoms of serious mental disorders such as depression and bipolar illness. Going off medication results in disruptive lives and devastating personal loss. Careers, relationships, financial troubles, and even life itself are all placed at grave risks without proper psychiatric medication management. 

In contrast, critics of psychiatric drugs have made the following counter claims: The use of psychiatric drugs has unleashed the worst medically induced disaster in history. They have caused millions of people to become addicted to them, suffering debilitating, life threatening side effects. Rather than promoting mental health, these drugs are being used to promote social control and conformity. Reduction in hospitalization, moreover, occurred not because of the use of these drugs, but because of a deinstitutionalization policy that became known as “dumping.” Problems now being handled with psychiatric drugs can be more effectively, safely, and humanely handled with a variety of social support systems, counseling, mindfulness, healthy diet, and physical exercise techniques.

As I heard these conflicting claims, I initially thought that psychiatrists had principles of science on their side. With my graduate training in research methods and statistics, I thought that by doing a thorough job finding out the scientific research that backs up the psychiatric drug supporters I could explain in an easy to understand language why psychiatric drugs are necessary. With such an explanation, perhaps the conflict would be resolved.

My Ritalin Research Analysis

I began with researching Ritalin because I was working in Rochester, NY’s school system. This was from 1974 to 1979. It was a time when drugs were just beginning to be prescribed more and more to treat students who had teachers dissatisfied with their activity level or ability to pay attention. I had witnessed a time when schools managed to deal with such problems without the use of this drug and life went on reasonably well. With the rise in its use, some thought it was a wonderful advancement, while others were expressing great discomfort at this new trend.

So, off I went to a medical library to learn the scientific merits of this new approach. A brief summary of what I found follows.

Supporting the use of Ritalin were short-term randomized controlled studies lasting less than 12 weeks. Both inattentiveness-impulsivity and activity level were reduced, as assessed by parent and teacher rating scales, direct observations in natural settings, and various laboratory tests.

Not all of the findings were supportive. At the time I initially did my research, there was only one study that looked at the long-term results of Ritalin use. It compared children placed on methylphenidate, the generic version of Ritalin, with those who received no treatment. The children in the two groups were matched with respect to age, IQ, socioeconomic class and sex. After 3 to 5 years, no statistically significant differences were found between the two groups on the following outcome measures: emotion maladjustment, delinquency, Wechsler Intelligence Scale for Children, Bender gestalt visual-motor test, and academic performance.

In addition to this, I found many studies documenting a number of common adverse effects of treatment, such as headaches, insomnia, anorexia, stomach pain, irritability, and weight loss. Suppression of the normal rate of growth was just beginning to be reported. The sudden development of a tic disorder that sometimes did not go away when treatment stopped was viewed as a rare occurrence, but troubling nevertheless. Other serious rare adverse events had been observed including some involving heart functioning such as angina and cardiac arrhythmias. Perhaps most troubling of all was the recognition that the safety of long term use of Ritalin had not been established despite many students being treated for years.

To make sure that my analysis of the available scientific evidence was complete, I sent a Freedom of Information Request to the Food and Drug Administration for the documents that it used to approve the use of Ritalin with children as a treatment for attention and activity problems. I soon received a fairly large packet of information, and upon reviewing its contents I became convinced that I had not overlooked anything of scientific merit.

In the end, I discovered that although the approval process of the FDA had in its documents the available scientific evidence in making its decision to approve Ritalin, the reviewers’ decision nevertheless relied more on their personal values. It seemed to me, and it still does, that different people looking over the same scientific evidence could, depending on their values, come to completely different conclusions about whether or not the drug should be approved.

For me, personally, with the full awareness of the scientific evidence, I would have voted against approval of the drug. Relevant to me was that after thousands of dollars had been spent by the parents of the child or their insurance company, there was no lasting positive effects, while treated children were suffering side effects. The additional facts, especially the one that indicated long term safety had not been established, seemed to me to make non-approval the obvious choice. And yet, according to the value judgments of those who sat on the FDA approval board, they ended up supporting approval.

What I Found Afterwards

Since then, more research has come out regarding the drugs used to deal with ADHD. It further supports the conclusion that there are no long term benefits from using these types of drugs. Moreover, additional harm from their use has been identified.

After what I learned about the ADHD drug treatments, my efforts to find out about psychiatric drugs expanded.

Dr. Ross J. Baldessarini

As time went on, I took a psychopharmacology course taught by Harvard professor Dr. Ross J. Baldessarini; did additional research to get the latest updates, not only on Ritalin, but on other psychiatric drug treatments; and participated in six debates on this subject.

I’ve come to the conclusion that as with Ritalin, when highly intelligent people become familiar with the scientific evidence, they still draw completely different conclusions from one another about whether or not it is morally okay to use the approved drugs as a treatment. The decision is not solely made on scientific evidence. Moreover, I’ve seen evidence that there are far safer non-drug alternatives.

Since I did my original research on Ritalin, I also learned something crucial about the reliability of the relevant research findings. Initially, I assumed the scientific studies were carried out in a manner that I could have confidence in. Since then, I’ve begun to seriously question this.

Many experts have written about the reliability of the research. For example, Marcia Angell, M.D., is a former editor in chief of The New England Journal of Medicine, and now is a member of Harvard’s Medical School. In her insightful book, The Truth About the Drug Companies: How They Deceive Us and What to Do About It, she writes, “Is there some way companies can rig clinical trials to make their drugs look better than they are? Unfortunately, the answer is yes. Trials can be rigged in a dozen ways, and it happens all the time” (p. 95).

Conclusion

And so, even if we believe that the available research is accurate, it just so happens that an examination of it leads to very different moral conclusions by very intelligent people about the wisdom of using these drugs. The pharmaceutical industry’s influences on the body of research about the safety and effectiveness of these drugs make these types of conclusions ever more questionable.

For those interested in following the peer reviewed scientific research about the effectiveness and safety of these drugs, I highly recommend the Mad In America website. It describes the latest research in non-technical language while providing the links to all of the actual research articles so readers, if they so choose, can read them for themselves.

Members of MI have seen first hand people who have died and who have suffered terribly as a result of their involvement with the psychiatric profession. At the same time, psychiatrists also well know that there are many incidences of tragic outcomes due to their treatments, but they have come to believe that overall the benefits of their treatments far outweigh all of those tragedies. And the enormous financial benefits that come with being a psychiatrist are very likely to influence their views.

Civil rights activists worked for generations to make some progress in achieving their goals. Among the most successful of these advocates was Martin Luther King, Jr. When advocating for civil rights, he avoided throwing insults at those who resisted the changes he was after. Instead, he focussed on painting his dream in beautiful, hopeful phrases and demonstrating in nonviolent, but impossible to ignore, peaceful resistance.

In a country where many of our current politicians have taken to insulting anyone who disagrees with them, King’s approach may seem out of style. As for me, I personally think King’s approach is as timeless as stars twinkling in the heavens.

 

Categories
conflict resolution pathologizing Psychiatric jargon psychiatry suffering

Is Suffering a Symptom of Mental Illness?

In America, the polarization of opinions is incredible. Many Americans, for example, have enormous respect for President Trump, while many others have the polar opposite opinion.

There is something similar to this when it comes to how Americans feel about psychiatrists. There are many people who hold the belief that psychiatrists are enormously helpful to our society by relieving suffering while others believe that psychiatrists have sold out to the pharmaceutical industry, consequently leading to enormous harm.

We get to see and hear favorable positions for the psychiatric point of view from the numerous ads on TV, radio, and print media sponsored by the fabulously wealthy pharmaceutical industry, which has the biggest lobbyist group in Washington, DC (see HERE). This information is presented frequently to people whether or not they wish to be exposed to it unless they choose to live in a cave.

The resources available for presenting the alternative view is relatively minuscule and is not likely to be heard unless citizens actively seek it out. Nevertheless, those who are interested find arguments such as these: Psychiatrists have become addicted to the enormous financial benefits of transforming human suffering into a language of mental illness and then convincing people that they need to spend the rest of their life on psychiatric drugs. The consequences to society of this mental illness/drug approach is an enormous increase in people becoming disabled due to the negative drug effects. There is also some recent research suggesting that when women on these drugs become pregnant, there is an increased risk of miscarriages, and if the infant is brought into this world alive, she or he is at an increased risk of serious health consequences.

In my opinion, one of the best places to obtain the arguments about the harmful approach of psychiatric drugs is at the “Mad In America” site that readers can access HERE. It does a great job of defending its position with sound scientific research.

An essential part of the mental illness/psychiatric drug approach involves convincing people that the suffering they experience is a symptom of mental illness. But does that really make sense?

Suffering and Mental Illness

The latest version of what is viewed by psychiatrists as the most authoritative American text on mental illness is the DSM-5. It tells us that mental disorders “are usually associated with significant distress in social, occupational, or other important activities (APA, 2013, p. 20).” There is some additional vague wording here about also having a “dysfunction.” Although my focus here is on the suffering component of the definition, I will say a few words about the functioning part of the definition shortly.

Internationally, the most authoritative text according to psychiatrists is the International Classification of Diseases (ICD, WHO, 1992). It tells us that mental disorder “is not an exact term, but it is used here to imply the existence of a clinically recognizable set of symptoms or behaviour associated in most cases with distress and with interference with personal functions” (p. 11).

Notice that the phrase “significant distress” appears in both definitions. This is the “suffering” component of the definition. Also notice that although this suffering component of the definition is “usually” associated with mental disorder, it is not really a requirement.

In case this vague definition does not provide enough wiggle room for clinicians to label all people seeking their services as having a mental disorder and to prescribe a drug for it, the ICD tells the clinician, “When the requirements are only partially fulfilled, it is nevertheless useful to record a diagnosis for most purposes” (p. 8). This type of double talk is one of the reasons why many people view the mental illness construct as too vague for scientific purposes.

Now, let’s go back to the “level of functioning” part of the description in a definition of mental disorders. That part is actually very useful. It is for this reason that I have written a whole post on this topic titled, “Mental Illness or Below Average Functioning.” In brief, if someone is concerned about their level of functioning, we would be much better off saying that, rather than converting this very clear description into pathological mumbo jumbo. By leaving out the psychiatric jargon, we have a clearer understanding of what the person seeking services wants addressed. And it is my contention in the post I wrote on this topic that it would lead to a more reliable and valid bases for scientific research. In my view, the only point in converting a concern about a person’s level of functioning into a language of mental disorders is to support a sales pitch aimed at selling drugs.

Isn’t Suffering Just a Natural Part of Life?

Now, lets get back to the “suffering” component of the mental disorder definition. According to Buddhist philosophy, the first Noble Truth is that to live is to suffer. According to Christian philosophers that I have read, suffering is something to make us think. It is a tool to get our attention and to accomplish the Lord’s purposes in our lives in a way that would never occur without the trial or irritation. In Judaism, the Talmud teaches us that the righteous suffer in this world in order to increase their reward in the Eternal World. Rabbi Eliezer, in the Talmud, welcomed his suffering, calling his pains ”my friends.”

If we look outside the religious teachings, we find that giving birth is accompanied by suffering, and yet it makes more sense to classify this experience as a natural part of creating new life rather than a pathological condition. When writers receive rejections from publishers, or a loved one dies, suffering often accompanies these experiences.

Psychiatrists classify people as having a mental disorder even if no unusual level of suffering is present (e.g., attention deficit/hyperactivity disorder, conduct disorder, mental retardation, schizophrenia, narcissistic personality disorder, etc.). Add to all of this the problems one encounters when one tries to decide objectively how much suffering, beyond the “normal” amount that one experiences during life’s parade of disappointments, is required to ascribe a diagnosis. In the end, can we really determine if one’s “suffering” is really a symptom of a disorder, or just life being life.

In my view, the quick diagnosis and drug prescription approach that has become the finically rewarding approach by modern psychiatry is a serious mistake. In saying this, I am not seeking to encourage people to be disrespectful to people who choose to take psychiatric drugs. It is their life, and it is their right to make the best decision they know how to make, and I wish them well. At the same time, I believe suffering may best be served by exploring what it could potentially provide. In my own life, I have seen numerous examples of people growing from their suffering. And one of the hardest lessons I had to learn, when seeking to be of help, is that there are times when it is best to address another’s suffering not by trying to fix it, but to stand respectfully beside the person’s misery and sharing what they are going through.

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Some people will enjoy reading this blog by beginning with the first post and then moving forward to the next more recent one; then to the next one; and so on.  This permits readers to catch up on some ideas that were presented earlier and to move through all of the ideas in a systematic fashion to develop their emotional intelligence.  To begin at the very first post you can click HERE.

Categories
brain disease conflict resolution DSM mental disorders Mental Illness psychiatrists psychiatry psychologists psychopathology The Diagnostic and Statistical Manual of Mental Disorders

Are Mental Illnesses Really Brain Diseases?

Dr Eric Kandel
Dr Eric Kandel

In an article titled “The Roots of Mental Illness,” the author, Kirsten Weir, tells us about Eric Kandel, MD, who believes that the experiences that doctors refer to as mental illnesses are brain diseases. Dr. Kandel defends his belief with the following statement: “All mental processes are brain processes, and therefore all disorders of mental functioning are biological diseases. The brain is the organ of the mind.”

The article also indicates that Dr. Kandel believes one important value of recognizing that these types of experiences are brain diseases is that it helps minimize the shame often associated with them. For example, Dr. Kandel is quoted as saying, “Schizophrenia is a disease like pneumonia. Seeing it as a brain disorder destigmatizes it immediately.”

kandel-nobel-prizeDr. Kandel’s credentials are pretty impressive–he’s a Nobel Prize laureate and professor of brain science at Columbia University. Therefore, if you are among those who believe a person’s credentials should determine who is right and who is wrong, you need not read any further. You must simply conclude that what is referred to as mental illnesses are indeed brain diseases because you would be hard pressed to find someone with better credentials disagreeing with Dr. Kandel.

However, if you are among those of us who believe that regardless of someone’s credentials, the reasonableness of the argument should sway your judgments, then I encourage you to read on. In brief, you will find that the phrase, “disorders of mental functioning” is way too vague for a science of disease, and that Dr. Kandel’s conclusion that seeing these types of experiences as brain diseases immediately destigmatizes it, is at the very least, questionable.

Are Disorders of Mental Functioning Properly Viewed as Brain Diseases?

Colony of pathogen bacterias - 3d render
Colony of pathogen bacterias

Physical pathologists, who are trained in the principles of science, determine if a pathological condition is present by looking for a set of objectively observable body conditions such as tumors, microbe infections, tissue tears, bone fractures, and blocked arteries. None of these have been identified by pathologists as causing the conditions typically labelled by psychiatrists as mental illnesses. If they were to find the physical pathology that causes any of the behavior patterns referred to as mental illnesses, that pattern would no longer be referred to as a mental illness. Instead, the pattern would be viewed as the symptoms of the  physical pathology, and the disease would be referred to either as the type of pathology (tumor, microbe infection, etc.) or the name of the person who discovered the relationship between the behavior pattern and the physical pathology.

Dr. Kandel, when trying to make the case that mental illnesses are real brain diseases has, at times, cited articles that show some correlation of a brain difference with some of the concerns that lead to a mental illness label. But these correlations are far too weak to demonstrate they are causing these types of concerns. For example, people labeled as having schizophrenia have, on average, some larger brain ventricles. However, there are many people who have the same size ventricles, or even larger ones, who show no signs of schizophrenia. Moreover, numerous people who have smaller than average size ventricles are regularly classified as having schizophrenia. Thus, quite clearly, it is not the size of the ventricles that are causing the schizophrenic behavior pattern. It is for this reason that the size of one’s brain ventricles is not used to make the so called diagnosis of schizophrenia. Instead, doctors rely on a conversation with the designated patient to make these types of so called diagnoses.

Are such conversations properly viewed as objective criteria for determining a disease state and equivalent to observing the type of pathologies that physical pathologists look for in identifying a disease state? Numerous critics of psychiatry say no. They point to what highly credentialed doctors have, over the course of history, claimed are mental illnesses.

Dr Samuel Cartwright
Dr. Samuel Cartwright

For example, in 1851 American physician Samuel A. Cartwright labelled black slaves who tried to flee captivity as having the mental illness of drapetomania. For people who hold the value judgment that the function of healthy blacks is to be slaves, then it certainly makes sense to say that blacks seeking to flee captivity were being dysfunctional.

Freud Practicing the Dysfunctional Habit of Smoking
Freud Practicing the Dysfunctional Habit of Smoking

If you are religious, many highly credentialed medical doctors, including Sigmund Freud, who, like Dr. Kandel, won a Nobel Prize, have claimed this meant you had a mental illness. People who are gay were declared as having a mental disease here in the US. In the former Soviet Union, if you were opposed to communism it warranted a mental illness label by their psychiatrists. In each of these societies, a case was made that the behavior pattern labelled as a mental illness was dysfunctional.

New-quote-from-William-JamesThe argument that such labeling practices are not scientific, but, rather, value judgments, was intelligently made by William James when he defended the religious sentiment. He explained that pathologizing these sentiments as mental diseases was superficial medical talk. He called the reasoning doctors used to declare religious beliefs a type of mental illness, “medical materialism.”

Medical materialism seems indeed a good appellation for the too simple-minded system of thought which we are considering. Medical materialism finishes up Saint Paul by calling his vision on the road to Damascus a discharging lesion of the occipital cortex, he being an epileptic.

Woman of Religious Faith
Woman of Religious Faith

It snuffs out Saint Teresa as an hysteric, Saint Francis of Assisi as an hereditary degenerate. George Fox’s discontent with the shams of his age, and his pining for spiritual veracity, it treats as a symptom of a disordered colon. Carlyle’s organ-tones of misery it accounts for by a gastro-duodenal catarrh. All such mental overtensions, it says, are, when you come to the bottom of the matter, mere affairs of diathesis (auto-intoxications most probably), due to the perverted action of various glands which physiology will yet discover.

James goes on from here to point out that it is true, of course, that psychology has found that there are definite psychophysical connections that “hold good.” Psychology, therefore:

brain-disease-3assumes as a convenient hypothesis that the dependence of mental states on bodily conditions must be thoroughgoing and complete. If we adopt the assumption, then of course what medical materialism insists on must be true in a general way, if not every detail…. But now, I ask you, how can such an existential account of facts of mental history decide in one way or another on their spiritual significance? According to the general postulate of psychology just referred to, there is not a single one of our states of mind, high or low, healthy or morbid, that has not some organic process as its condition. Scientific theories are organically conditioned just as much as religious emotions are; and if we only knew the facts intimately enough, we should doubtless see “the liver” determining the dicta of the sturdy atheist as decisively as it does those of the Methodist under conviction anxious about his soul. When it alters one way the blood that percolates it, we get the Methodist, when in another way, we get the atheist form of mind. So of all our raptures and our drynesses, our longings and pantings, our questions and beliefs. They are equally organically founded, be they religious or of non-religious content.

James points out that in the natural sciences it never occurs to anyone to refute opinions by putting down their authors’ neurological constitutions. Value is determined by “judgments based on our own immediate feelings primarily; and secondarily on what we can ascertain of their experiential relations to our moral needs and to the rest of what we hold as true.”

brain-diseaseAll states of mind are related in extremely complex ways to neural functions. There is a crucial distinction to be made between a brain difference and a brain pathology. The significance of each state of mind must be tested, not by some neurological difference, but by the value of its fruits. When the term “pathological” is applied to an experience, rather than an identified physiological pathology, it wrongly implies a neutral science classification.

In my view, what William James says about the religious sentiment and disease states hold just as true for people who are currently declared as having a mental illness by Dr. Kandel and many other doctors. They declare, in a very subjective manner, patterns of behavior are due to a brain disease without objective proof that there is a physical pathological condition causing the pattern. They don’t make a distinction between a brain difference and a brain disease. And they don’t deal effectively with the fact that there are numerous people who display patterns that have been viewed by the psychopathologizing doctors who have brought forth some of the greatest fruits known to the human race.

Calling Mental Illness a Brain Disease: Does It Stop Stigma?

brain-disease-6

In the above Aldous Huxley quote, apparently it was his opinion that all the normal people in our society are dysfunctional, and thus psychiatry might want to declare all normal people as having a brain disease. I wonder if all normal people might feel less stigmatized upon hearing about this pathologizing of their experiences. Hmmm.

Anyway, if you will, let us turn to Dr. Kandel’s declaration that by getting people to see that mental illnesses are brain diseases it destigmatizes them immediately. He offered no scientific evidence for this. When we actually look at the evidence bearing on his statement, we get a very different impression.

Lincoln, sufferer of depression
Lincoln, sufferer of depression

Very modest evidence exists indicating people who have become convinced that mental illnesses are brain diseases are somewhat less likely to blame labeled persons for their behavior. However, at the same time, overall stigma actually increases. Biological explanations, for many, imply that people with mental illness are fundamentally different or less human.

Research has also shown, that disease explanations for mental illness provoked harsher behavior toward labeled persons. It is worthwhile keeping in mind that in the not-so-distant past, biological and genetic explanations for stigmatized conditions were linked to a range of harsh policies, including marriage restrictions, sterilization, lobotomies, and even extermination.

Painter who has been said to suffer from mental illness
Painter who has been said to suffer from mental illness

The biological explanation may also exacerbate yet another key stereotype of mental illness, the belief that people with mental illness are dangerous. Many researchers believe that the stereotype that people with mental illness are violent ranks among the most prejudicial and discriminating of attitudes. Unfortunately, there is evidence that biological arguments may actually strengthen dangerousness stereotypes, suggesting that people with mental illness have no control over their behavior and therefore are unpredictable and violent.

brain-disease-5In contrast to biological arguments, psychosocial explanations of mental health concerns have been found to effectively improve images of people who are now being labeled as having a mental illness. It also appears to reduce fear.

Instead of arguing that mental illness is like any other medical illness, psychosocial explanations of mental health concerns focus on environmental stressors and trauma as causal factors. These may include childhood abuse, poverty, and job stress. The idea is to reframe mental health concerns as understandable reactions to life events.

Conclusion

Socrates heard voiced in his head and was condemned to death by society leaders.
Socrates heard voices in his head that he referred to as guiding demons and was condemned to death by society leaders.

The mental health concerns that most modern day doctors refer to as mental illnesses, have not been shown to be caused by a physiological pathological condition. There are undoubtedly some brain differences that have been correlated with a few types of concerns, but it is way too simplistic to say that such differences are the cause of any of these concerns. It is very possible that environmental and cultural factors may lead to the observed correlations. Despite the fact that a person might be said by some that he or she is functioning below average in some ways under some societal situation, numerous examples can be easily provided that people labeled mentally ill have often produced valued fruits in the fields of science, arts, and philosophy. Finally, labeling someone experiencing a mental health concern as having a brain disease does not automatically decrease stigma, and could actually increase it.

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Some people will enjoy reading this blog by beginning with the first post and then moving forward to the next more recent one; then to the next one; and so on. This permits readers to catch up on some ideas that were presented earlier and to move through all of the ideas in a systematic fashion to develop their emotional intelligence. To begin at the very first post you can click HERE.

Categories
conflict resolution Depression Emotional pain Laren Stover melancholy psychiatry psychopathology sadness William James

Is Depression an Illness?

sadness 4Since as far back as she can remember, Carla, 19-years-old, has been having periods during which she has waves of deeply sad feelings. She has family members who say that depression runs in their family, and she should see a psychiatrist for treatment. So, off she goes, and after a few questions, the psychiatrist declares she has a mental illness called Major Depressive Disorder. Carla is prescribed pills referred to as antidepressants.

She soon feels a little better, but begins to experience a number of side effects, among them, her sex drive is diminished. Her boyfriend soon breaks up with her, and she has a new bout with sadness. Her doctor increases her dose of pills, and adds some additional ones as well, which seems to work. But in time, new waves of sadness occur, so she goes back to the doctor. ECTHe now sets her up with a series of electroconvulsive shock treatments, which her doctor calls Electroconvulsive Therapy (ECT). Her memory begins to suffer, but after each series she does feel her mood rise.

Some who know Carla, respect her for facing the fact that she has a mental illness and is seeking sound medical advice to have it treated. Others who know her, upon seeing her turning to pills and ECT, regard her as foolish and lose respect for her.

In contrast to how Carla construes her waves of deeply sad feeling, some view it as an artistic temperament, and learn to appreciate these visits of melancholy as something of extraordinary valueWilliam James. Thus, in an earlier post titled William James’s Personal Bout With a “Mental Disorder,” we looked at how the brilliant psychologist and philosopher came to view his “bass notes of experience.” On this subject, he wrote that many so called “healthy-minded” individuals believe that those who worry are “morbid-minded” and “diseased,” but it may very well be true that “the world’s meaning most comes home to us when we lay them most to heart.” He went on to write that,

there is no doubt that healthy-mindedness is inadequate as a philosophical doctrine, because the evil facts which it refuses positively to account for are a genuine portion of reality; and may after all be the best key to life’s significance, and possibly the only openers of our eyes to the deepest levels of truth.”

Recently in the New York Times I met up with another writer who genuinely appreciates periods of sadness.

Ms Laren Stover
Ms. Laren Stover

In an article titled “The Case for Melancholy,” Ms. Laren Stover weaves a very different perspective from Carla, the individual I described at the start of this post who has an image of herself as a “sufferer of mental illness, and a consumer of antidepressants and ECT.”

Ms. Stover, after telling us of her weariness of all those folks on the internet promising to show us how to be delightfully happy in just a few short steps, writes:

sadness 3“Whatever happened to experiencing the grace of melancholy, which requires reflection: a sort of mental steeping, like tea? What if all this cheerful advice only makes you feel inadequate? What if you were born morose?”

It is of course not alway easy to bear these experiences, but one can begin to observe the beauty of it:

“It visits you like a mist, a vapor, a fog. It is generally uninvited. And as some people are born into royalty, wealth and prestige, others inherit a disposition for sadness.”

Notice how Ms. Stover pairs this experience with images of being born into royalty, wealth and prestige. In contrast, the mental illness promoters would much prefer to have us associate such experiences with being stuck with an awful disease we can only learn to manage with psychiatric drugs and, if that doesn’t prove sufficient, ECT. 

Laren continues to weave her artistic images of melancholy with such words as:

sadness 2“Sadness has a bad reputation. But I soon came to feel that melancholy — the word itself is late Latin from the Greek melancholia — is a word with a romantic Old World ring, with a transient beauty like the ring around the moon.”

And in another fine phrase, she tells us:

it is fine to indulge in the cloudy charms of melancholy: to watch a sad black-and-white movie or to be swept away by the wind making a sound that Truman Capote described as a grass harp.”

sadness 6My favorite line in Ms. Stover’s article is actually a quote from her late father, a writer who published 24 books, and apparently also dealt with the many challenges of melancholy: “I don’t know if you’ll be a writer,” he tells his daughter, ” but you have the ‘up down’ thing too. Make creative use of it, otherwise, people will think you’re just plain nuts.”

sadness 5In our society, with its commercials every few minutes on TV telling us of all of the wonderful benefits of treating the terrible disease of depression with drugs, it is not easy to come to the artistic temperament point of view. And there are many good people that you will meet who genuinely believe that they have been saved from the depths of despair by doctors who utilize the medical model. If you choose to follow them down that road, I do wish you well. I have no desire to stop people from following the path that makes the most sense to them.

But for those who have not made their decision on what direction to head questionably into that dark night, I do gently ask for a momentary pause. Yes, in the physical illness domain, many medical procedures produce amazing outcomes. And it is therefore understandable that people will be eager to seek help from those who practice this medical approach to help in the domain of psychological distress. But it is worth noting that doctors can be terribly wrong at times. In the same issue of The New York Times as Ms. Stover’s article appears, we can find an article titled “How Doctors Helped Drive the Addiction Crisis.” It points out that,

OxyContin's long-acting formulation makes it popular but also prone to abuse.
OxyContin’s long-acting formulation makes it popular but also prone to abuse.

“The rate of death from prescription opioids in the United States increased more than fourfold between 1999 and 2010, dwarfing the combined mortality from heroin and cocaine. In 2013 alone, opioids were involved in 37 percent of all fatal drug overdoses.

Driving this opioid epidemic, in large part, is a disturbing change in the attitude within the medical profession about the use of these drugs to treat pain.”

A recent scientific analysis of the pros and cons of the so-called antidepressant, titled “Primum Non Nocere: An Evolutionary Analysis of Whether Antidepressants Do More Harm Than Good concludes:

antidepressant_pillsWe have reviewed a great deal of evidence of the effects of antidepressants on serotonergic processes throughout the body. Some of the effects are widely known, but they have been largely ignored in debates about the utility of antidepressants. Indeed, it is widely believed that antidepressant medications are both safe and effective; however, this belief was formed in the absence of adequate scientific verification. The weight of current evidence suggests that, in general, antidepressants are neither safe nor effective; they appear to do more harm than good.

Recent findings with regards to the previous standard medical recommendations for breast cancer and prostate screenings now indicate they led to far more harm than good for millions of patients.

And so, pausing, and considering an alternative way to think about melancholy may be well worth your while. If you feel you just can’t go it alone, meditation has been an enormous help for me in discovering a deeper understanding of these experiences. Vipassana-and-mindfulness-300x200My son, Jack, has found his Vipassana meditation retreat experiences of enormous value, and the cost for these retreats is on a voluntary donation basis. Some counselors and psychotherapists who have not fallen hook, line and sinker into the medical model view of these types of challenging experiences, can be of great help to make the transition from ugliness to beauty.

Well, I hope this discussion has deepened the reader’s views of melancholy, sadness and tears. Until you join us again right here at “From Insults to Respect,” may all of your concerns be addressed with wisdom, love, and kindness.

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Some people will enjoy reading this blog by beginning with the first post and then moving forward to the next more recent one; then to the next one; and so on.  This permits readers to catch up on some ideas that were presented earlier and to move through all of the ideas in a systematic fashion to develop their emotional intelligence.  To begin at the very first post you can click HERE.

Categories
concerns conflict resolution DSM functioning mental disorders Mental Illness psychiatry psychologists The Diagnostic and Statistical Manual of Mental Disorders William James

Mental Illness or Below Average Functioning?

“Good morning, Barbara,” I say, as my first counseling case walks into my office. I notice she looks a little angry. Upon sitting down, she declares, “I’m terribly frustrated. I’ve been depressed now for over two weeks, and I just can’t shake it!”

Depression 1It’s easy for me to empathize because I regularly have bouts of what I refer to as melancholy. A deep anguish comes over me, and during this period I often begin to think about how I went through my father’s death when I was twelve, how I’m getting older and can no longer do the many athletic things that thrilled me when I was younger, and on and on. Sometimes these dark melancholy experiences come about because something clearly happened that upset me, and sometimes they seem to come out of the blue.

Beyond Listening in a Caring Manner

After listening in a caring way to Barbara for a few minutes, I ask her if something specifically happened that led her into her current emotional experience. Then I explore with her a question about how often she has these experiences and if she feels she has them more frequently than most people, about as often as most, or less than most. Then, I ask her about how she has been functioning in other areas of her life–sleep, eating, exercise, interpersonal relationships, work/school, household responsibilities.

functioningYou see, as people experience depression, or other concerns that often lead to a classification of having a mental disorder, some people go about their lives functioning as they typically were doing before the concern arose, while some find that in some areas they begin to function below the levels that are typical for them, while some find that their functioning increases in one or more areas. For example, some sleep about the same amount, some less, and some more. I have met people who, when they are depressed, start cleaning every inch of their home, while others find it difficult to get out of bed.

sleepAlso of interest when exploring a person’s expressed concern is to look at how the person had been functioning before the onset of the presenting concern. If some important relationships had begun to function below average, or if the person had been sleeping less than average to keep up with work demands, these facts can be insightful when seeking ways to address the presenting concern.

Now, once I found out what Barbara was concerned about, what might have precipitated the concern, and how she had been functioning in various areas of her life, I had a pretty good idea as to how to proceed in addressing her concern. I had no need to decide whether or not she had a mental disorder.  However, many mental health practitioners are required to declare that the person seeking mental health services has a mental disorder if they want to get paid. Is this mental illness labeling really necessary?

Mental Illness Labeling Versus an Addressing Concern Approach

blamegameThere are those who embrace this mental illness/disorder labeling. One reason is the pharmaceutical industry’s promotion of this idea to sell people on the idea that they need certain drugs to live a more normal, healthier  life.

Beyond that, another major reason for this is that these individuals have a group of people in their lives that blame them for the way that they have been feeling or acting. When a doctor has declared, for example, that John Smith has a mental disorder, he may feel vindicated. “You see, there really is something wrong with me!” he may cry out in his defense.

In actuality, those who are doing the blaming may continue their blaming despite the doctor’s opinion. Moreover, many of us don’t blame people whenever they find some concern has arisen in their lives even if they are going through a non-illness experience.  I know I’m not blaming myself when I experience melancholy, and I was not at all blaming Barbara for what she was going through.

stigmaThose who are uncomfortable about the use of “mental illness” terminology point out they are stigmatizing because they are used as put downs in our society. Moreover, the media associates the most heinous crimes with those referred to as the mentally ill even though the vast majority of those classified in this manner are not violent.

mature William JamesAmong the most articulate individuals to voice objections to the mental disorder labeling was Harvard psychologist and philosopher William James. Over one hundred years ago he wrote a book titled, The Varieties of Religious Experience (1902). At that time many medical doctors argued that people who were religious were all mentally ill. In response, Professor James wrote:

materialismMedical materialism seems indeed a good appellation for the too simple-minded system of thought which we are considering. Medical materialism finishes up Saint Paul by calling his vision on the road to Damascus a discharging lesion of the occipital cortex, he being an epileptic.

Girl (6-8) praying, profile, close-up
Girl (6-8) praying, profile, close-up

It snuffs out Saint
Teresa as an hysteric, Saint Francis of Assisi as an hereditary degenerate. George Fox’s discontent with the shams of his age, and his pining for spiritual veracity, it treats as a symptom of a disordered colon. Carlyle’s organ-tones of misery it accounts for by a gastro-duodenal catarrh. All such mental overtensions, it says, are, when you come to the bottom of the matter, mere affairs of diathesis (auto-intoxications most probably), due to the perverted action of various glands which physiology will yet discover. (p. 29)

James goes on from here to point out that it is true, of course, that psychology has found that there are definite psycho-physical connections that “hold good” (p. 30). Psychology, therefore:

mental statesassumes as a convenient hypothesis that the dependence of mental states on bodily conditions must be thoroughgoing and complete. If we adopt the assumption, then of course what medical materialism insists on must be true in a general way, if not every detail…. But now, I ask you, how can such an existential account of facts of mental history decide in one way or another on their spiritual significance? According to the general postulate of psychology just referred to, there is not a single one of our states of mind, high or low, healthy or morbid, that has not some organic process as its condition. Scientific theories are organically conditioned just as much as religious emotions are; and if we only knew the facts intimately enough, we should doubtless see “the liver” determining the dicta of the sturdy atheist as decisively as it does those of the Methodist under conviction anxious about his soul. When it alters one way the blood that percolates it, we get the Methodist, when in another way, we get the atheist form of mind. So of all our raptures and our drynesses, our longings and pantings, our questions and beliefs. They are equally organically founded, be they religious or of non-religious content. (p. 30)

experienceJames points out that in the natural sciences and the arts it never occurs to anyone to refute opinions, beliefs and experiences by putting down their author’s neurological constitution. Value is determined by “judgments based on our own immediate feelings primarily; and secondarily on what we can ascertain of their experiential relations to our moral needs and to the rest of what we hold as true” (p. 33).

James was additionally concerned that medical materialism greatly overgeneralizes its knowledge of the connections between physiological variables and mind states. In James’s day, the pathology writers would take the few psychophysical correlations that they obtained under highly specialized conditions and then vaguely generalize their findings to discredit, to their satisfaction, all of the states of mind that they disliked.

The Modern Day View

Now, modern day psychiatrists sometimes respond,

“Well, certainly in James’s day we indeed knew almost nothing about such matters, but today our knowledge has vastly increased! Thus, James’s position is no longer valid because we can now make sound statements about the connections between physiological states and mind states.”

neurologyTo this, I respond that in point of fact there is currently a renewed respect for the extraordinary complexity
that exists during the integration process between mind, physiology, behavior, and environmental variables. Whereas it is true that there have been large gains in our knowledge, these gains are best likened to moving from a few drops of knowledge to a glass almost full; yet, to really understand the integration process, we would need oceans and oceans of knowledge. Trillions and trillions of interactions are involved.

It is for these reasons that the mental illness/disorder terminology is misleading. As Dr. Thomas Insel, the former director of the National Institute of Mental Health, recently said about the psychiatric labeling process known as the DSM.

The weakness [of the DSM] is its lack of validity. Unlike our definitions of ischemic heart disease, lymphoma, or AIDS, the DSM diagnoses are based on a consensus about clusters of clinical symptoms, not any objective laboratory measure. In the rest of medicine, this would be equivalent to creating diagnostic systems based on the nature of chest pain or the quality of fever. Indeed, symptom-based diagnosis, once common in other areas of medicine, has been largely replaced in the past half-century as we have understood that symptoms alone rarely indicate the best choice of treatment.

To hear and view other leading scientists further make this point, I highly recommend the following free video:

“This Video Dispels Every “Nature VS Nurture” Myth You’ve Ever Heard. The Implications are Profound.”

Conclusion

interpersonal 1When individuals express a concern, exploring how they are functioning in the main areas of their life can be enormously helpful. Someone who reports a concern about experiencing depression, whom, by some gentle questioning, we find out has been functioning below average in the areas of sleep, interpersonal relationships, and exercise may benefit enormously if we work together on getting these areas of functioning in a more optimal range. This is true for those who report other types of concerns such as experiencing anxiety, hearing voices, below average range of attention, obsessive thoughts, and on and on. With a model that includes addressing concerns and exploring ways to improve functioning, labeling someone as having a mental disorder becomes unnecessary and may actually interfere with the aims of a counseling/psychotheraputic relationship.

For those who desire, for whatever reason, to be labeled as having a mental disorder, I am not proposing that we interfere with this. concernsBut for those who desire to have their concerns addressed by well trained mental health professionals without being referred to as having a mental illness or disorder, I do propose that we do provide a reasonable option for them to access mental health services. In my view, mental health professionals, once we hear our clients’ concerns and how they are functioning in the various areas of their lives, we have the basics to formulate, in full cooperation with our clients, a plan for addressing these concerns. I hope you give this some thought.

For those of you who would like to learn more about how an addressing concern approach would work and be consistent with science if adopted by mental health providers, you can access my peer reviewed article for free by clicking HERE.

Until next week, may you find some kindness out there in this fascinating world of ours.

My Best,

Jeff

———————————
Some people will enjoy reading this blog by beginning with the first post and then moving forward to the next more recent one; then to the next one; and so on. This permits readers to catch up on some ideas that were presented earlier and to move through all of the ideas in a systematic fashion to develop their emotional intelligence. To begin at the very first post you can click HERE.

Categories
conflict resolution CSM DSM Mental Illness Psychiatric jargon psychiatrists psychiatry psychologists The Classification and Statistical Manual of Mental Health Concerns The Diagnostic and Statistical Manual of Mental Disorders

My APA Speech On An Alternative to Psychiatric Jargon

Jeff Rubin
Jeff Rubin

On August 8, 2015, I spoke at the American Psychological Association’s annual convention that was held in Toronto, Canada. My speech was part of a two hour symposium titled: “Beyond the DSM–Current Trends in Devising New Diagnostic Alternatives.” The DSM’s letters stand for the Diagnostic and Statistical Manual of Mental Disorders.  It is currently used by most mental health professionals to classify people seeking mental health services.

When the latest version of this manual came out, it was widely criticized. Consequently, a group of psychologists began to work together to think about possible alternatives. Several members of that group spoke at this symposium.

My Speech

DSMOf late, I have been discussing today’s symposium theme with quite a few people. I have found that supporters of the DSM say that it is a classification system that has been helpful because it provides a common language for mental health professionals to communicate about those utilizing their services; its various diagnostic terms, such as Major Depressive Disorder, Anxiety Disorder, etc., are short phrases that are convenient for placing them into article titles, book titles, and search engines to retrieve valued relevant information; third party payers of mental health services have found that the DSM coding system works well as part of a practical method for their record keeping; with the aid of these codes, people do manage to access mental health services, mental health service providers do manage to get paid, and for-profit health companies do tend to make a profit.

So, from my discussions, those are the basic reasons supporters of the DSM say that it is useful. Actually, there is another usefulness of the DSM that, interestingly, I never hear supporters of the DSM mention, and yet critics of the DSM often mention. pillsThat usefulness is this: by using medical sounding terms to refer to all of the experiences that the DSM classifies as “mental disorders” it legitimizes in the minds of many the prescribing of drugs for these experiences.

There is an enormous amount of money being made from this approach because it takes less than a penny to manufacture each pill, and it can be sold for more than one thousand times that amount. With so much money being generated from this enterprise, the drug companies have managed to make it clear to powerful groups that what benefits the drug companies also benefits them. Examples are, major media outlets gain enormous revenues from drug company advertisements, and political campaigns get substantial support from the industry.

elephant-in-the-roomSo this benefit is in a sense the elephant in the room. I fully see it, but nevertheless, I want to move it off to the side of the room for now, and ask you all to briefly ignore it. After I complete my main ideas, I’ll return to the elephant in my concluding remarks.

Keeping in mind just the usefulness of the DSM that its supporters tend to mention, it seems to me that if we are to have any hope that an alternative to the DSM might be widely adopted, we would have to be able to make an excellent case that the alternative would be just as helpful while, at the same time, have significantly less shortcomings.

What are these shortcomings? psych labelsWell, in brief, critics of the DSM have expressed concerns that it tends to be stigmatizing to mental health service users; the DSM also simplistically devalues all of the experiences that it classifies as mental disorders despite the fact that there are a great number of people who have testified that having gone through these very types of experiences it brought forth valued fruits.

Leo Tolstoy
Leo Tolstoy

For example, Leo Tolstoy reported in his biography, My Confession, that by going through a period of suicidal depression, it led to one valued insight after another.

Joni Mitchell
Joni Mitchell

As another example, the fine song writer, Joni Mitchell apparently went through, during her life, a number of very challenging emotional experiences that first received the full DSM psychopathologizing treatment. In time, her perspective changed, and at one point she expressed her new perspective in a song titled, “Hejira.” She wrote, “There’s comfort in melancholy where there is no need to explain, it’s just as natural as the weather in this moody sky today.” Thus, for many, the framing of their experiences as mental disorders dramatically misses the mark; critics of the DSM also point out that it violates basic principles of science because of its vaguely defined constructs and thus low inter-rater reliability; the DSM also violates basic principles of humanistic psychology; and within the mental health field the DSM is a monopoly, with all of the drawbacks associated with such an organizational situation.

So, those are, in brief, the DSM shortcomings. Keeping them in mind along with its perceived benefits, is it possible to come up with an alternative that indeed does achieve all of the benefits that the DSM supporters claim for it, while, at the same time, has far fewer shortcomings? Well, for your consideration, I offer you the Classification and Statistical Manual of Mental Health Concerns, or, for short, the CSM. Not the DSM, but the CSM! Let’s look at what each chapter would contain.

Chapter 1

individualityThe first chapter would begin by stating that the developers of the CSM fully recognize that individuality outruns any classification system. It is for this reason that the CSM does not seek to classify anyone. Instead, it classifies the expressed concerns of individuals seeking to have their concerns addressed by a mental health service provider.

This first chapter would go on from here to explain that the CSM begins from the perspective of the person seeking services. Because the expression of a mental health concern is a clearly observable event that occurs at a specific time and place, by making it the event being classified in the CSM it solves the reliability problems that have been plaguing the DSM’s far more abstract concept of “mental disorders.”

After this statement, the CSM would clearly define its main construct:

concerns 1A mental health concern occurs when a person seeking mental health services expresses to a mental health service provider a concern about any of these topics: behavior, emotion, mood, addictions, meaning of life, death, dying, managing chronic pain, work, relationships, education, eating, cognition, sleep, and challenging life situation.

So, those are the basic ingredients of Chapter 1.

Chapter 2 

Chapter 2 would begin by explaining that the CSM has two classes of expressed concerns–Concerns expressed about oneself, and concerns expressed about someone else.  social-anxietyAn example of the first class is, Sally is seeking mental health services and expresses a concern to a mental health service provider that she has been experiencing a great deal of anxiety when she enters social situations. Father-and-SonAn example of the second class is Bob, a father, upon seeking counseling for his son, expresses a concern about his child’s behavior.

Each of these two classes of concerns would have under each of its headings a list of specific concerns, along with an assigned code to be used for third-party payer record keeping.

So, let’s quickly return to the example of Sally expressing a concern that she has been experiencing a great deal of anxiety in social situations. This would be referred to, for classification purposes, as a “social situation anxiety” concern. Notice that “social situation anxiety” is just three words, thus it is short enough to be used in article titles, book titles and search engines.

Each of the actual expressed concerns would be just as useful as the DSM terms for providing those in the mental health profession a common language for communication about those utilizing their services.

In this chapter 2, it would be explained how the creators of the CSM identified the list of concerns included in the CSM.  SurveyTimeThese concerns would be identified by a survey of a sample of mental health service providers. Those filling out the survey would first read the definition of a mental health concern. Then they would list, in order of frequency, the various concerns that they had been asked to address in their practice over the course of the previous year. At the back of the CSM would be a summary of the findings of this survey and its related statistics.

Moving on to Chapter 3

As noted, the previous chapter would be designed to provide the method for identifying and coding a set of brief mental health concern descriptors suitable for a number of practical purposes. Once this is achieved the CSM then provides a method to develop a lengthier psychological formulation approach that is designed to fill in additional details about the expressed concern. collaborationThus, Chapter 3 of the CSM would be devoted to describing good practice guidelines for the use of a type of psychological formulation that is consistent with the CSM’s philosophy of not psychopathologizing individuals.  This type of psychological formulation provides an approach that expands on the brief expressed concerns of individuals by developing a narrative of several paragraphs. It can be defined as the process involving a mental health service user and a mental health service provider co-constructing a hypothesis or ‘best guess’ about the origins of the mental health service user’s concerns in the context of his or her strengths, relationships, social circumstances, cultural heritage, life events, and the sense that he or she has made of them.

Defending the CSM

Okay, these are the basic chapters of the CSM. Now let’s quickly recall that supporters of the DSM believe that it is a classification system that is useful because it provides a common language for mental health professionals to communicate with one another. I hope from what I have already said, that you can plainly see that the CSM would provide an alternative plain, humane language that would be just as practical as the DSM. But let’s look a little more closely at this via an example.

unversityWhen I was doing my practicum at the University of Minnesota’s Counseling Center, I worked there for a whole year and we had no need to use the “mental disorder” jargon of the DSM to communicate. When my advisor asked me to quickly tell him about my morning cases, I would reply with words like, “My 9:00 a.m. case is concerned about feeling depressed, my 10:00 case is concerned about his failing grades, my 11:00 case is concerned about how anxious she is in social situations. If my advisor wanted to know more about a case, we went into the psychological formulation type of information. Communication flowed easily. This is how the CSM would work in practice.

The idea that the DSM’s coding system is a practical approach for third party payers’ record keeping is an essential point made by DSM supporters. With the following description, I think you will readily see that the CSM approach is just as practical.

insurance formThird party payer systems have a form that must be filled out whenever someone seeks mental health services under their plan. This form has a little box that currently says, “Diagnosis.” In that box, mental health professionals are required to fill in the DSM code that corresponds to their so-called diagnosis of the person seeking services.

With the CSM proposal, all that we would be asking third-party payer institutions to do differently in order to add value for their customers, is to slightly change that little box. Instead of just saying “Diagnosis” as it currently says, that box would add two simple words, so it would end up saying “Diagnosis or Concern.” Then, when mental health professionals fill in the box, they would be given the choice to either write in the letters “DSM-5” and its code number that corresponds to its so-called diagnosis, or they would write the letters CSM and its code number that corresponds to the expressed concern.

With the creation of the CSM, not only will mental health providers have a new option to choose from, but so too will mental health consumers. They would be given the choice to go to psychopathologizing mental health service providers or those using the CSM approach.

So, for third party payers, that’s all the change that would be required in order to increase value for a significant number of mental health providers and service users. And a major goal that all third-party payers have is to increase value for their customers. The cost and effort for adding this new option for these payers would be minimum.

Conclusion

In conclusion, the creation of the CSM would improve value for consumers of mental health services. It would provide a practical approach that offers a new choice for those mental health service users and providers who are dissatisfied with the DSM. It does so in a manner that is more scientific and humanistic. Moreover, the creation of the CSM would break up the DSM monopoly.

pills2Now, let’s return to the elephant in the room. Let’s bring it forth, front and center.

Yes, the DSM’s medical jargon has an enormous benefit to the pharmaceutical industry. However, with the creation of the CSM, the elephant would still get fed. Those who prefer the DSM to the CSM would be able to continue to use it. The pharmaceutical industry will still be able to promote the drugs with images of a patient looking miserable and family members distraught, all in grey, black and white, followed by images of the same patient taking a pill, now smiling in vibrant living color, with the sun shining, and family members gathered around, and bouquets of flowers brightening the whole world. There will be plenty of people who will still seek to have their concerns washed away with the ease of swallowing a pill.

Despite drug companies being able to still make a great deal of money even if the CSM was to become widely adopted, no doubt the industry as a whole would still seek to try with all its might to maintain the monopoly it currently enjoys. No doubt, big money can be very influential in putting a stop to competition. I get that. But to help us to think a little more clearly about this, let’s use a metaphor fitting to our country’s current enormous interest in the presidential primary campaigns.

You all know about the discussions going on about how a few billionaires has so much influence on who will get to win. There is much truth to this concern, but I ask you to keep in mind that every now and then, a dark horse comes along that does manage to win despite all of the big money that went to supporting the favorite of the super-rich.

dark-horseIn my view, the CSM has the potential to be that type of dark horse. I’m hoping that this is so because there exists enough psychologists out there who are willing to roll up their sleeves and get down to do the necessary work of joining their efforts with those of other allied professionals and mental health consumer advocacy groups because they believe this is in the best interest of those they seek to serve.

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Some people will enjoy reading this blog by beginning with the first post and then moving forward to the next more recent one; then to the next one; and so on. This permits readers to catch up on some ideas that were presented earlier and to move through all of the ideas in a systematic fashion to develop their emotional intelligence. To begin at the very first post you can click HERE.