Categories
conflict resolution involuntary psychiatric drug treatment psychiatric drugs psychiatric medications psychiatrists psychiatry

Involuntary Psychiatric Drugging: Is it Torture?

Welcome to From Insults to Respect.

Many people have come to feel that the psychiatric profession has failed to treat them respectfully. Several issues have inflamed them, arguably the most emotional being involuntary drug treatment which, to them, is often viewed as torture.

Among the groups that agree with this torture notion is the National Association for Rights Protection and Advocacy (NARPA). Its mission statement reads:

NARPA’s mission is to promote policies and pursue strategies that result in individuals with psychiatric diagnoses making their own choices regarding treatment. We educate and mentor those individuals to enable them to exercise their legal and human rights with a goal of abolition of all forced treatment.

Several psychiatrists, such as Thomas Szasz and Peter Breggin, have, over the years, fully supported NARPA’s mission.

As Dr. Szasz explained:

Dr. Thomas Szasz

“Benjamin Franklin warned us, ‘They that can give up essential liberty to obtain a little temporary safety, deserves neither liberty nor safety.’ Yet today Americans seem ready to sacrifice liberty to obtain a little temporary ‘mental health.’ To complicate matters, ‘mental health’ is a vague, almost meaningless term…. Franklin was right. Regardless of how we define ‘mental health,’ if we sacrifice essential liberty for it, we shall deserve–and in fact have–neither liberty nor ‘mental health.'”

Dr. Breggin explained his position as follows:

“Since finishing my training, I have never treated or incarcerated anyone against his or her will.  During this period in private practice extending back to 1968, no patients in treatment with me have committed suicide or perpetrated a serious act of violence.  Any good psychiatrist or therapist could have a patient commit suicide or perpetrate violence; but coercion, drug treatment, and hospitalization increases the likelihood. I believe that my refusal to coerce patients, my efforts to prevent hospitalization, and my practice of not starting patients on psychiatric drugs have contributed to the good fortune that my patients have not committed suicide or extreme violence. People in deep distress do not need incarceration or the inevitable drugs that follow; they need caring help from friends, family, and professionals.”

Recently, a United Nations report also condemned involuntary psychiatric interventions, including drug treatment, which it viewed as a form of torture (see HERE). It concluded that for persons with psychosocial disabilities all States should:

“(a) Review the anti-torture framework in relation to persons with disabilities in line with the Convention on the Rights of Persons with Disabilities as authoritative guidance regarding their rights in the context of health-care;

“(b) Impose an absolute ban on all forced and non-consensual medical interventions against persons with disabilities, including the non-consensual administration of psychosurgery, electroshock and mind-altering drugs such as neuroleptics, the use of restraint and solitary confinement, for both long-and short-term application. The obligation to end forced psychiatric interventions based solely on grounds of disability is of immediate application and scarce financial resources cannot justify postponement of its implementation;

“(c) Replace forced treatment and commitment by services in the community. Such services must meet needs expressed by persons with disabilities and respect the autonomy, choices, dignity and privacy of the person concerned, with an emphasis on alternatives to the medical model of mental health, including peer support, awareness-raising and training of mental health-care and law enforcement personnel and others;”

Involuntary psychiatric interventions are legitimized under national laws, and may enjoy wide public support as being in the alleged “best interest” of the person concerned, or because it protects people in the community from the violence that some people labelled mentally ill will carry out. Nevertheless, according to the UN report, “…to the extent that they inflict severe pain and suffering, they violate the absolute prohibition of torture and cruel, inhuman and degrading treatment.

Is It Really Torture?

When people are forced to take psychiatric drugs, it often feels like torture because of a number of their side effects. For example, akathisia makes it hard to stay still. It causes an urge to move that you can’t control. You might need to fidget all the time, walk in place, or cross and uncross your legs. Akathisia is often hard to describe, and it can take over a person’s life and feel awful.

Other torturous effects come from the patient knowing that upon being forced to take these types of drugs it can lead to a number of very serious disabling and embarrassing results. Tardive dyskinesia, a largely irreversible movement disorder, can be very severe and disabling. In one case that led to a two-million-dollar settlement, a woman developed muscle spasms and abnormal movements that afflicts her face, neck, shoulders and extremities, as well as her speech and breathing.

Tardive dyskinesia occurs at a cumulative rate of 4-7% per year in otherwise healthy, relatively young patients treated with many of the so-called antipsychotic drugs. After only a few years, 20% or more of those treated will be afflicted with tardive dyskinesia. Older patients have an even higher risk.

These types of drugs are also associated with enormous weight gain leading to diabetes and other serious health risks, along with the added consequences of being humiliated from people who call you disgustingly fat. Knowing that the drug you are being forced to take can lead to all of these types of consequences understandably can be extremely disturbing. When added to the fact that psychiatric patients are typically already in very highly stressful situations, the negative side effects of these drugs, along with fear of getting some of the permanent health problems related to using these drugs, which I have only touched upon, it becomes understandable that many experience forced drug treatment as torture.

Is It Fair To Drug People Who Will Never Commit a Violent Act Simply Because They Fall Into Some Category That Is Predictive Of Violence?

According to the United States Department of Justice men commit violent crimes more than three times as often as women, although most men do not commit a violent crime. Since men are more likely to commit violence, should all men be involuntarily placed on psychiatric drugs?

Because men, as a group, are pretty powerful, it is not likely that any laws will be passed that will force all men to be placed in such a degrading and torturous situation. Nevertheless, we see on TV media reports numerous incidences of violent acts, most of them by far are committed by men.

Individuals who are male teenagers or young adults are also more at risk of violence than the average person in a given population. Thankfully, for my two sons, our society does not require that all of these at risk individuals be placed on psychiatric drugs.

When the media depict a violent person who is described as schizophrenic or psychotic, the public cries out for involuntary treatment. This is a politically disempowered group. So, it is relatively easy for the public to ignore the fact that this policy would require numerous individuals who are not violent to suffer the horrendous consequences of such a policy.

It’s important to keep in mind that most commitment laws do not require a judicial determination of incompetence, nor do they require a criminal charge or a criminal conviction (see HERE). Rather, a psychiatrist must make a prediction that the person is dangerous to self or others. These types of predictions tend to be more wrong than right. Moreover, there are numerous examples of patients who are forced to be on these drugs who end up committing a violent act anyway.

The best scientific analysis that looks at whether or not the drugs significantly reduce violence when involuntarily administered has been provided by the nonprofit group called Cochrane (see HERE). It turns out that there is no reliable evidence that these types of drugs do decrease violence with involuntary patients.

A few studies have provided some evidence that suggests that the drugs can moderately reduce violence for involuntary patients who have a history of engaging in substance abuse. However, the relevant evidence is based on relatively small trials, with high or unclear risk of blinding bias, a significant number of subjects who are lost to the researchers during the study, or the study’s design did not use random assignment of subjects.

It is important to point out that the vast majority of individuals who are said to have committed a violent act in such studies don’t actually physically hurt anyone. They typically have engaged in an angry exchange and ended up breaking something, smashing a window, or, in the heat of the exchange, threatened someone with a violent act. Some studies suggest that the drugs used can actually increase the likelihood of violence.

The best predictors of future violence are a history of past violent crime, victimization, involvement with illegal drugs and drug markets, poverty, life trauma exposure, and ambient neighborhood crime. When these factors are not present for an individual, being classified as mentally ill is not related to violence. Rather than the vague notion of mental illness, it appears that these are the real factors that lead to the statistically modest increased risk of violence among those labelled as mentally ill because such labelled individuals are more likely to be exposed to these risk factors (see HERE).

Even if we were to take the evidence that suggests that the drugs might reduce violence as absolutely true, then, once again, we must face the moral dilemma: Is it morally acceptable to involuntarily place on these types of drugs all people deemed as possibly likely to commit violence even though most will never hurt anyone? To say yes means that the policy will expose numerous people who would not hurt anyone to torture and physically harmful consequences.

Is There A Better Alternative To Involuntary Treatment?

Clearly, people in our communities have justification to want to keep people from harming themselves or others. I know I don’t want violent people running around my neighborhood. However, the use of psychiatric drugs too often lead people to think that the mental health professionals did what was needed, and thus reduces the necessary motivation to advocate for more helpful action. In my view, there are far better ways to address these concerns without any need for involuntary treatment or torturing anyone.

First of all, we already have laws for someone who commits a violent crime. I support these laws because without them many people who might otherwise act violently find that to avoid prison time they can choose a nonviolent alternative, thus making our communities safer. For those who fail to choose nonviolent ways to deal with life challenges, the law requires that they serve time in prison. Removing them from our communities for a period of time leads to our communities being safer, and gives the person who committed the crime an opportunity to consider better alternatives to deal with the type of situation that led to their incarceration. Moreover, as they serve time in prison, they become older, thus they enter an age range that leads to more thoughtful considerations and a much lower likelihood of choosing violent options.

Now, I hasten to point out that many prison officials believe that when people serve time they should be punished in degrading ways. But most people placed in prison, whether they are displaying behavior that often leads one to receive a mental illness label or not, are best treated with respect and dignity. The vast majority will eventually return to our neighborhoods and to traumatize them with abusive actions while they are in prison increases the risk that they will become less than ideal citizens. There are a number of countries that have been trying out more humanistic approaches to treating prisoners and the results have been very promising.

So the current laws, especially if carried out humanistically, already offer people in communities a good deal of safety. Yes, people who are imprisoned have typically been placed there against their will, and therefore, this can be viewed as an involuntary treatment. But, in such cases, they are first entitled to present their case in front of a jury of their peers, be represented by a lawyer, and, if treated humanistically, are not involuntarily drugged or tortured in some other manner. The constitution prohibits cruel and inhumane punishment.

In addition to providing safety within communities via laws that lead to people convicted of a violent act being imprisoned, what else can be done? In an article that I wrote and had published in the peer reviewed journal Professional Psychology: Research and Practice, I describe a promising approach that goes well beyond simply locking people up. For those people who are at risk of violence, we can incentivize them to learn nonviolent ways to deal with the kinds of anger arousing situations that they may potentially face. For example, people who have been convicted of a violent crime and are serving out their sentence can be incentivized to learn prosocial skills by reducing their sentence a month if they demonstrate mastery of the skills. People at risk who are not incarcerated may be offered some other incentives such as access to better housing, or even be provided a monetary incentive that is about the same amount as the combined cost of a drug management program. Drug management typically includes the cost for the drugs plus the time for professionals to assess, prescribe, and monitor the patient. Monitoring the patient includes regular meetings to assess drug side-effects, readjust the medication dose, prescribe a different or additional drug, and sending out a social worker or nurse to remind patients to take their prescriptions. These costs are significant and if redirected to incentivizing people at risk, it would lead to a significant level of voluntary participation.

Some Details Regarding a Prevention Program

What would a program that teaches nonviolent ways to deal with anger arousing situations look like? Teachers would identify their student’s pattern of anger expression and the situations in which the student typically experiences anger. Responding to criticism and providing criticism are particularly hot spots, so they would be the focus of early lessons (see HERE to begin the process of learning incompetent versus competent behaviors for dealing with these types of situations). Viewing audiovisual recordings depicting alternative nonviolent behavior would provide effective modeling of prosocial skills.

Students would be informed that when they are learning alternative behaviors, attempts at suppressing old behaviors are not necessary unless it would lead to someone really getting hurt. No one expects perfect learning, and some recorded behaviors may not be right for a given student. By viewing many recordings depicting alternative behaviors, students find that they adopt some of the skills in an effortless manner. It’s kind of like hearing a song several times. You might not decide by an act of will to learn the lyrics, but you may find that you are singing the words anyway.

For the dangerous student who is locked up because of being convicted of a crime, safety during this part of the training is maximized by eliminating from the environment potential weapons and making certain that an adequate, well trained security staff is readily available. At the first sign of violence, the staff isolates the combatant until anger is diminished and an alternative style for dealing with the arousing event has been identified by the student. Note that with this type of structure, it is not necessary to encourage students to control their behavior by an act of will. Instead, they are challenged to process the information provided at their own pace.

In the next part of the training, students begin to make their own audiovisual conflict recordings. Concrete examples are thus affectively, cognitively, and behaviorally rehearsed while clear audiovisual feedback is provided by observing the created recordings. From my own experience working with these types of students, this is enormously fun for them and is experienced as making their own TV shows.

As in the previous training period, some of the practitioner’s suggestions may begin to feel uncomfortable to the client. This can seriously interfere with the learning period if poorly handled. I have found it useful from time to time to preface my recommendations with the same gentle admonishment that the famous physics professor Niels Bohr used to give his students: “Every sentence that I utter should be regarded by you not as an assertion but as a question.” This tends to disarm the student, sets the stage for a positive collaboration, and fosters interest from the satisfaction derived from fulfilling one’s own internal standards.

Stubborn anger problems require the setting of gradual goals and the accompaniment of the student into the community setting for participant modeling. Careful selection of encounters of increasing difficulty would permit students to bolster their self-confidence. As learning progresses, guided participation would be reduced and students would then be assigned to progressively more challenging tasks to perform on their own.

Anger management interventions have not advanced so far as to completely eliminate anger from an individual’s repertoire. In order to prepare students for these recurrences, it is recommended that such interventions be designed to encourage students to view lapses in training not as a sign of their helplessness, but as a challenge to improve.

In a study that cited my anger article, an intervention with physically aggressive children using several of my ideas were put into practice. Compared to a randomly assigned control group, the program developed was “efficacious in reducing children’s physically aggressive behaviors, improving the parent-child relationship, and enhancing parental behaviors and skills in dealing with childhood aggression.”

In a second study that cited my anger article, a social skills and anger management program was provided to adult criminal offenders with a history of violence. Results of the study support the hypotheses that social-skills training can reduce anger among high-risk offenders.

Well, there you have it, my thoughts on involuntary psychiatric drugging and a promising alternative. I conclude with a quote from John Perceval who had provided his own account of his extreme state that was labelled “psychosis”:

I wish to stir up an intelligent and active sympathy, on behalf of the most wretched and the most oppressed, by proving how much needless tyranny they are treated–and this in mockery–by men who pretend indeed their cure, but who are, in reality, their tormentors and destroyers.”

———————————
Some people will enjoy reading this blog by beginning with the first post and then moving forward to the next more recent one; then to the next one; and so on. This permits readers to catch up on some ideas that were presented earlier and to move through all of the ideas in a systematic fashion to develop their emotional intelligence. To begin at the very first post you can click HERE.

 

 

 

Categories
brain disease conflict resolution DSM mental disorders Mental Illness psychiatrists psychiatry psychologists psychopathology The Diagnostic and Statistical Manual of Mental Disorders

Are Mental Illnesses Really Brain Diseases?

Dr Eric Kandel
Dr Eric Kandel

In an article titled “The Roots of Mental Illness,” the author, Kirsten Weir, tells us about Eric Kandel, MD, who believes that the experiences that doctors refer to as mental illnesses are brain diseases. Dr. Kandel defends his belief with the following statement: “All mental processes are brain processes, and therefore all disorders of mental functioning are biological diseases. The brain is the organ of the mind.”

The article also indicates that Dr. Kandel believes one important value of recognizing that these types of experiences are brain diseases is that it helps minimize the shame often associated with them. For example, Dr. Kandel is quoted as saying, “Schizophrenia is a disease like pneumonia. Seeing it as a brain disorder destigmatizes it immediately.”

kandel-nobel-prizeDr. Kandel’s credentials are pretty impressive–he’s a Nobel Prize laureate and professor of brain science at Columbia University. Therefore, if you are among those who believe a person’s credentials should determine who is right and who is wrong, you need not read any further. You must simply conclude that what is referred to as mental illnesses are indeed brain diseases because you would be hard pressed to find someone with better credentials disagreeing with Dr. Kandel.

However, if you are among those of us who believe that regardless of someone’s credentials, the reasonableness of the argument should sway your judgments, then I encourage you to read on. In brief, you will find that the phrase, “disorders of mental functioning” is way too vague for a science of disease, and that Dr. Kandel’s conclusion that seeing these types of experiences as brain diseases immediately destigmatizes it, is at the very least, questionable.

Are Disorders of Mental Functioning Properly Viewed as Brain Diseases?

Colony of pathogen bacterias - 3d render
Colony of pathogen bacterias

Physical pathologists, who are trained in the principles of science, determine if a pathological condition is present by looking for a set of objectively observable body conditions such as tumors, microbe infections, tissue tears, bone fractures, and blocked arteries. None of these have been identified by pathologists as causing the conditions typically labelled by psychiatrists as mental illnesses. If they were to find the physical pathology that causes any of the behavior patterns referred to as mental illnesses, that pattern would no longer be referred to as a mental illness. Instead, the pattern would be viewed as the symptoms of the  physical pathology, and the disease would be referred to either as the type of pathology (tumor, microbe infection, etc.) or the name of the person who discovered the relationship between the behavior pattern and the physical pathology.

Dr. Kandel, when trying to make the case that mental illnesses are real brain diseases has, at times, cited articles that show some correlation of a brain difference with some of the concerns that lead to a mental illness label. But these correlations are far too weak to demonstrate they are causing these types of concerns. For example, people labeled as having schizophrenia have, on average, some larger brain ventricles. However, there are many people who have the same size ventricles, or even larger ones, who show no signs of schizophrenia. Moreover, numerous people who have smaller than average size ventricles are regularly classified as having schizophrenia. Thus, quite clearly, it is not the size of the ventricles that are causing the schizophrenic behavior pattern. It is for this reason that the size of one’s brain ventricles is not used to make the so called diagnosis of schizophrenia. Instead, doctors rely on a conversation with the designated patient to make these types of so called diagnoses.

Are such conversations properly viewed as objective criteria for determining a disease state and equivalent to observing the type of pathologies that physical pathologists look for in identifying a disease state? Numerous critics of psychiatry say no. They point to what highly credentialed doctors have, over the course of history, claimed are mental illnesses.

Dr Samuel Cartwright
Dr. Samuel Cartwright

For example, in 1851 American physician Samuel A. Cartwright labelled black slaves who tried to flee captivity as having the mental illness of drapetomania. For people who hold the value judgment that the function of healthy blacks is to be slaves, then it certainly makes sense to say that blacks seeking to flee captivity were being dysfunctional.

Freud Practicing the Dysfunctional Habit of Smoking
Freud Practicing the Dysfunctional Habit of Smoking

If you are religious, many highly credentialed medical doctors, including Sigmund Freud, who, like Dr. Kandel, won a Nobel Prize, have claimed this meant you had a mental illness. People who are gay were declared as having a mental disease here in the US. In the former Soviet Union, if you were opposed to communism it warranted a mental illness label by their psychiatrists. In each of these societies, a case was made that the behavior pattern labelled as a mental illness was dysfunctional.

New-quote-from-William-JamesThe argument that such labeling practices are not scientific, but, rather, value judgments, was intelligently made by William James when he defended the religious sentiment. He explained that pathologizing these sentiments as mental diseases was superficial medical talk. He called the reasoning doctors used to declare religious beliefs a type of mental illness, “medical materialism.”

Medical materialism seems indeed a good appellation for the too simple-minded system of thought which we are considering. Medical materialism finishes up Saint Paul by calling his vision on the road to Damascus a discharging lesion of the occipital cortex, he being an epileptic.

Woman of Religious Faith
Woman of Religious Faith

It snuffs out Saint Teresa as an hysteric, Saint Francis of Assisi as an hereditary degenerate. George Fox’s discontent with the shams of his age, and his pining for spiritual veracity, it treats as a symptom of a disordered colon. Carlyle’s organ-tones of misery it accounts for by a gastro-duodenal catarrh. All such mental overtensions, it says, are, when you come to the bottom of the matter, mere affairs of diathesis (auto-intoxications most probably), due to the perverted action of various glands which physiology will yet discover.

James goes on from here to point out that it is true, of course, that psychology has found that there are definite psychophysical connections that “hold good.” Psychology, therefore:

brain-disease-3assumes as a convenient hypothesis that the dependence of mental states on bodily conditions must be thoroughgoing and complete. If we adopt the assumption, then of course what medical materialism insists on must be true in a general way, if not every detail…. But now, I ask you, how can such an existential account of facts of mental history decide in one way or another on their spiritual significance? According to the general postulate of psychology just referred to, there is not a single one of our states of mind, high or low, healthy or morbid, that has not some organic process as its condition. Scientific theories are organically conditioned just as much as religious emotions are; and if we only knew the facts intimately enough, we should doubtless see “the liver” determining the dicta of the sturdy atheist as decisively as it does those of the Methodist under conviction anxious about his soul. When it alters one way the blood that percolates it, we get the Methodist, when in another way, we get the atheist form of mind. So of all our raptures and our drynesses, our longings and pantings, our questions and beliefs. They are equally organically founded, be they religious or of non-religious content.

James points out that in the natural sciences it never occurs to anyone to refute opinions by putting down their authors’ neurological constitutions. Value is determined by “judgments based on our own immediate feelings primarily; and secondarily on what we can ascertain of their experiential relations to our moral needs and to the rest of what we hold as true.”

brain-diseaseAll states of mind are related in extremely complex ways to neural functions. There is a crucial distinction to be made between a brain difference and a brain pathology. The significance of each state of mind must be tested, not by some neurological difference, but by the value of its fruits. When the term “pathological” is applied to an experience, rather than an identified physiological pathology, it wrongly implies a neutral science classification.

In my view, what William James says about the religious sentiment and disease states hold just as true for people who are currently declared as having a mental illness by Dr. Kandel and many other doctors. They declare, in a very subjective manner, patterns of behavior are due to a brain disease without objective proof that there is a physical pathological condition causing the pattern. They don’t make a distinction between a brain difference and a brain disease. And they don’t deal effectively with the fact that there are numerous people who display patterns that have been viewed by the psychopathologizing doctors who have brought forth some of the greatest fruits known to the human race.

Calling Mental Illness a Brain Disease: Does It Stop Stigma?

brain-disease-6

In the above Aldous Huxley quote, apparently it was his opinion that all the normal people in our society are dysfunctional, and thus psychiatry might want to declare all normal people as having a brain disease. I wonder if all normal people might feel less stigmatized upon hearing about this pathologizing of their experiences. Hmmm.

Anyway, if you will, let us turn to Dr. Kandel’s declaration that by getting people to see that mental illnesses are brain diseases it destigmatizes them immediately. He offered no scientific evidence for this. When we actually look at the evidence bearing on his statement, we get a very different impression.

Lincoln, sufferer of depression
Lincoln, sufferer of depression

Very modest evidence exists indicating people who have become convinced that mental illnesses are brain diseases are somewhat less likely to blame labeled persons for their behavior. However, at the same time, overall stigma actually increases. Biological explanations, for many, imply that people with mental illness are fundamentally different or less human.

Research has also shown, that disease explanations for mental illness provoked harsher behavior toward labeled persons. It is worthwhile keeping in mind that in the not-so-distant past, biological and genetic explanations for stigmatized conditions were linked to a range of harsh policies, including marriage restrictions, sterilization, lobotomies, and even extermination.

Painter who has been said to suffer from mental illness
Painter who has been said to suffer from mental illness

The biological explanation may also exacerbate yet another key stereotype of mental illness, the belief that people with mental illness are dangerous. Many researchers believe that the stereotype that people with mental illness are violent ranks among the most prejudicial and discriminating of attitudes. Unfortunately, there is evidence that biological arguments may actually strengthen dangerousness stereotypes, suggesting that people with mental illness have no control over their behavior and therefore are unpredictable and violent.

brain-disease-5In contrast to biological arguments, psychosocial explanations of mental health concerns have been found to effectively improve images of people who are now being labeled as having a mental illness. It also appears to reduce fear.

Instead of arguing that mental illness is like any other medical illness, psychosocial explanations of mental health concerns focus on environmental stressors and trauma as causal factors. These may include childhood abuse, poverty, and job stress. The idea is to reframe mental health concerns as understandable reactions to life events.

Conclusion

Socrates heard voiced in his head and was condemned to death by society leaders.
Socrates heard voices in his head that he referred to as guiding demons and was condemned to death by society leaders.

The mental health concerns that most modern day doctors refer to as mental illnesses, have not been shown to be caused by a physiological pathological condition. There are undoubtedly some brain differences that have been correlated with a few types of concerns, but it is way too simplistic to say that such differences are the cause of any of these concerns. It is very possible that environmental and cultural factors may lead to the observed correlations. Despite the fact that a person might be said by some that he or she is functioning below average in some ways under some societal situation, numerous examples can be easily provided that people labeled mentally ill have often produced valued fruits in the fields of science, arts, and philosophy. Finally, labeling someone experiencing a mental health concern as having a brain disease does not automatically decrease stigma, and could actually increase it.

———————————
Some people will enjoy reading this blog by beginning with the first post and then moving forward to the next more recent one; then to the next one; and so on. This permits readers to catch up on some ideas that were presented earlier and to move through all of the ideas in a systematic fashion to develop their emotional intelligence. To begin at the very first post you can click HERE.

Categories
conflict resolution CSM DSM Mental Illness Psychiatric jargon psychiatrists psychiatry psychologists The Classification and Statistical Manual of Mental Health Concerns The Diagnostic and Statistical Manual of Mental Disorders

My APA Speech On An Alternative to Psychiatric Jargon

Jeff Rubin
Jeff Rubin

On August 8, 2015, I spoke at the American Psychological Association’s annual convention that was held in Toronto, Canada. My speech was part of a two hour symposium titled: “Beyond the DSM–Current Trends in Devising New Diagnostic Alternatives.” The DSM’s letters stand for the Diagnostic and Statistical Manual of Mental Disorders.  It is currently used by most mental health professionals to classify people seeking mental health services.

When the latest version of this manual came out, it was widely criticized. Consequently, a group of psychologists began to work together to think about possible alternatives. Several members of that group spoke at this symposium.

My Speech

DSMOf late, I have been discussing today’s symposium theme with quite a few people. I have found that supporters of the DSM say that it is a classification system that has been helpful because it provides a common language for mental health professionals to communicate about those utilizing their services; its various diagnostic terms, such as Major Depressive Disorder, Anxiety Disorder, etc., are short phrases that are convenient for placing them into article titles, book titles, and search engines to retrieve valued relevant information; third party payers of mental health services have found that the DSM coding system works well as part of a practical method for their record keeping; with the aid of these codes, people do manage to access mental health services, mental health service providers do manage to get paid, and for-profit health companies do tend to make a profit.

So, from my discussions, those are the basic reasons supporters of the DSM say that it is useful. Actually, there is another usefulness of the DSM that, interestingly, I never hear supporters of the DSM mention, and yet critics of the DSM often mention. pillsThat usefulness is this: by using medical sounding terms to refer to all of the experiences that the DSM classifies as “mental disorders” it legitimizes in the minds of many the prescribing of drugs for these experiences.

There is an enormous amount of money being made from this approach because it takes less than a penny to manufacture each pill, and it can be sold for more than one thousand times that amount. With so much money being generated from this enterprise, the drug companies have managed to make it clear to powerful groups that what benefits the drug companies also benefits them. Examples are, major media outlets gain enormous revenues from drug company advertisements, and political campaigns get substantial support from the industry.

elephant-in-the-roomSo this benefit is in a sense the elephant in the room. I fully see it, but nevertheless, I want to move it off to the side of the room for now, and ask you all to briefly ignore it. After I complete my main ideas, I’ll return to the elephant in my concluding remarks.

Keeping in mind just the usefulness of the DSM that its supporters tend to mention, it seems to me that if we are to have any hope that an alternative to the DSM might be widely adopted, we would have to be able to make an excellent case that the alternative would be just as helpful while, at the same time, have significantly less shortcomings.

What are these shortcomings? psych labelsWell, in brief, critics of the DSM have expressed concerns that it tends to be stigmatizing to mental health service users; the DSM also simplistically devalues all of the experiences that it classifies as mental disorders despite the fact that there are a great number of people who have testified that having gone through these very types of experiences it brought forth valued fruits.

Leo Tolstoy
Leo Tolstoy

For example, Leo Tolstoy reported in his biography, My Confession, that by going through a period of suicidal depression, it led to one valued insight after another.

Joni Mitchell
Joni Mitchell

As another example, the fine song writer, Joni Mitchell apparently went through, during her life, a number of very challenging emotional experiences that first received the full DSM psychopathologizing treatment. In time, her perspective changed, and at one point she expressed her new perspective in a song titled, “Hejira.” She wrote, “There’s comfort in melancholy where there is no need to explain, it’s just as natural as the weather in this moody sky today.” Thus, for many, the framing of their experiences as mental disorders dramatically misses the mark; critics of the DSM also point out that it violates basic principles of science because of its vaguely defined constructs and thus low inter-rater reliability; the DSM also violates basic principles of humanistic psychology; and within the mental health field the DSM is a monopoly, with all of the drawbacks associated with such an organizational situation.

So, those are, in brief, the DSM shortcomings. Keeping them in mind along with its perceived benefits, is it possible to come up with an alternative that indeed does achieve all of the benefits that the DSM supporters claim for it, while, at the same time, has far fewer shortcomings? Well, for your consideration, I offer you the Classification and Statistical Manual of Mental Health Concerns, or, for short, the CSM. Not the DSM, but the CSM! Let’s look at what each chapter would contain.

Chapter 1

individualityThe first chapter would begin by stating that the developers of the CSM fully recognize that individuality outruns any classification system. It is for this reason that the CSM does not seek to classify anyone. Instead, it classifies the expressed concerns of individuals seeking to have their concerns addressed by a mental health service provider.

This first chapter would go on from here to explain that the CSM begins from the perspective of the person seeking services. Because the expression of a mental health concern is a clearly observable event that occurs at a specific time and place, by making it the event being classified in the CSM it solves the reliability problems that have been plaguing the DSM’s far more abstract concept of “mental disorders.”

After this statement, the CSM would clearly define its main construct:

concerns 1A mental health concern occurs when a person seeking mental health services expresses to a mental health service provider a concern about any of these topics: behavior, emotion, mood, addictions, meaning of life, death, dying, managing chronic pain, work, relationships, education, eating, cognition, sleep, and challenging life situation.

So, those are the basic ingredients of Chapter 1.

Chapter 2 

Chapter 2 would begin by explaining that the CSM has two classes of expressed concerns–Concerns expressed about oneself, and concerns expressed about someone else.  social-anxietyAn example of the first class is, Sally is seeking mental health services and expresses a concern to a mental health service provider that she has been experiencing a great deal of anxiety when she enters social situations. Father-and-SonAn example of the second class is Bob, a father, upon seeking counseling for his son, expresses a concern about his child’s behavior.

Each of these two classes of concerns would have under each of its headings a list of specific concerns, along with an assigned code to be used for third-party payer record keeping.

So, let’s quickly return to the example of Sally expressing a concern that she has been experiencing a great deal of anxiety in social situations. This would be referred to, for classification purposes, as a “social situation anxiety” concern. Notice that “social situation anxiety” is just three words, thus it is short enough to be used in article titles, book titles and search engines.

Each of the actual expressed concerns would be just as useful as the DSM terms for providing those in the mental health profession a common language for communication about those utilizing their services.

In this chapter 2, it would be explained how the creators of the CSM identified the list of concerns included in the CSM.  SurveyTimeThese concerns would be identified by a survey of a sample of mental health service providers. Those filling out the survey would first read the definition of a mental health concern. Then they would list, in order of frequency, the various concerns that they had been asked to address in their practice over the course of the previous year. At the back of the CSM would be a summary of the findings of this survey and its related statistics.

Moving on to Chapter 3

As noted, the previous chapter would be designed to provide the method for identifying and coding a set of brief mental health concern descriptors suitable for a number of practical purposes. Once this is achieved the CSM then provides a method to develop a lengthier psychological formulation approach that is designed to fill in additional details about the expressed concern. collaborationThus, Chapter 3 of the CSM would be devoted to describing good practice guidelines for the use of a type of psychological formulation that is consistent with the CSM’s philosophy of not psychopathologizing individuals.  This type of psychological formulation provides an approach that expands on the brief expressed concerns of individuals by developing a narrative of several paragraphs. It can be defined as the process involving a mental health service user and a mental health service provider co-constructing a hypothesis or ‘best guess’ about the origins of the mental health service user’s concerns in the context of his or her strengths, relationships, social circumstances, cultural heritage, life events, and the sense that he or she has made of them.

Defending the CSM

Okay, these are the basic chapters of the CSM. Now let’s quickly recall that supporters of the DSM believe that it is a classification system that is useful because it provides a common language for mental health professionals to communicate with one another. I hope from what I have already said, that you can plainly see that the CSM would provide an alternative plain, humane language that would be just as practical as the DSM. But let’s look a little more closely at this via an example.

unversityWhen I was doing my practicum at the University of Minnesota’s Counseling Center, I worked there for a whole year and we had no need to use the “mental disorder” jargon of the DSM to communicate. When my advisor asked me to quickly tell him about my morning cases, I would reply with words like, “My 9:00 a.m. case is concerned about feeling depressed, my 10:00 case is concerned about his failing grades, my 11:00 case is concerned about how anxious she is in social situations. If my advisor wanted to know more about a case, we went into the psychological formulation type of information. Communication flowed easily. This is how the CSM would work in practice.

The idea that the DSM’s coding system is a practical approach for third party payers’ record keeping is an essential point made by DSM supporters. With the following description, I think you will readily see that the CSM approach is just as practical.

insurance formThird party payer systems have a form that must be filled out whenever someone seeks mental health services under their plan. This form has a little box that currently says, “Diagnosis.” In that box, mental health professionals are required to fill in the DSM code that corresponds to their so-called diagnosis of the person seeking services.

With the CSM proposal, all that we would be asking third-party payer institutions to do differently in order to add value for their customers, is to slightly change that little box. Instead of just saying “Diagnosis” as it currently says, that box would add two simple words, so it would end up saying “Diagnosis or Concern.” Then, when mental health professionals fill in the box, they would be given the choice to either write in the letters “DSM-5” and its code number that corresponds to its so-called diagnosis, or they would write the letters CSM and its code number that corresponds to the expressed concern.

With the creation of the CSM, not only will mental health providers have a new option to choose from, but so too will mental health consumers. They would be given the choice to go to psychopathologizing mental health service providers or those using the CSM approach.

So, for third party payers, that’s all the change that would be required in order to increase value for a significant number of mental health providers and service users. And a major goal that all third-party payers have is to increase value for their customers. The cost and effort for adding this new option for these payers would be minimum.

Conclusion

In conclusion, the creation of the CSM would improve value for consumers of mental health services. It would provide a practical approach that offers a new choice for those mental health service users and providers who are dissatisfied with the DSM. It does so in a manner that is more scientific and humanistic. Moreover, the creation of the CSM would break up the DSM monopoly.

pills2Now, let’s return to the elephant in the room. Let’s bring it forth, front and center.

Yes, the DSM’s medical jargon has an enormous benefit to the pharmaceutical industry. However, with the creation of the CSM, the elephant would still get fed. Those who prefer the DSM to the CSM would be able to continue to use it. The pharmaceutical industry will still be able to promote the drugs with images of a patient looking miserable and family members distraught, all in grey, black and white, followed by images of the same patient taking a pill, now smiling in vibrant living color, with the sun shining, and family members gathered around, and bouquets of flowers brightening the whole world. There will be plenty of people who will still seek to have their concerns washed away with the ease of swallowing a pill.

Despite drug companies being able to still make a great deal of money even if the CSM was to become widely adopted, no doubt the industry as a whole would still seek to try with all its might to maintain the monopoly it currently enjoys. No doubt, big money can be very influential in putting a stop to competition. I get that. But to help us to think a little more clearly about this, let’s use a metaphor fitting to our country’s current enormous interest in the presidential primary campaigns.

You all know about the discussions going on about how a few billionaires has so much influence on who will get to win. There is much truth to this concern, but I ask you to keep in mind that every now and then, a dark horse comes along that does manage to win despite all of the big money that went to supporting the favorite of the super-rich.

dark-horseIn my view, the CSM has the potential to be that type of dark horse. I’m hoping that this is so because there exists enough psychologists out there who are willing to roll up their sleeves and get down to do the necessary work of joining their efforts with those of other allied professionals and mental health consumer advocacy groups because they believe this is in the best interest of those they seek to serve.

——————–
Some people will enjoy reading this blog by beginning with the first post and then moving forward to the next more recent one; then to the next one; and so on. This permits readers to catch up on some ideas that were presented earlier and to move through all of the ideas in a systematic fashion to develop their emotional intelligence. To begin at the very first post you can click HERE.

 

Categories
conflict resolution DSM mental disorders Mental Illness Name calling psychiatrists psychiatry psychologists The Diagnostic and Statistical Manual of Mental Disorders

Psychiatric Name Calling: What Do People Say About It?

Mental-Illness_1In recent weeks, I have been providing a series of blog posts on psychiatric name calling (see here, here, here, and here).  In these posts, I have expressed some negative opinions about the Diagnostic and Statistical Manual of Mental Disorders (DSM).

DSMThe DSM provides the names for the various mental health concerns that mental health service providers are often required to use if they want to be paid for their services or if they want to have their research published in professional journals.The language of the DSM places its terminology under the umbrella concepts of “mental illness,” “mental disorder,” and “psychopathology.”  In my blog series, I have argued that the pathologizing of human experiences in this way does far more harm than good.

A2EFXY Person behind a frosted window. Image shot 01/2007. Exact date unknown.

As part of my discussions on this topic, I quoted the opinions of some who agreed, and some who disagreed, with my opinions.  The quotes that I used were selected from my own personal readings. Therefore, they may not have been characteristic of how a wider range of different people may think and feel about the DSM approach to labeling the various mental health concerns.

Mental-Illness_4A few years ago, two teams of researchers have sought to obtain a broader range of views on this topic by carrying out surveys. Jonathan D. Raskin and Michael C. Gayle surveyed psychologists who regularly use the DSM, and published their findings in the Journal of Humanistic Psychology (DSM-5: Do Psychologists Really Want an Alternative? 2015, pages 1-18). Lois Holzman and her team surveyed people in some New York City communities, and published her findings on the DxSummit.org website (A Report on Community Outreach: Lay Opinions on Emotional Distress and Diagnosis, http://dxsummit.org/archives/2249). Let’s take a look at their findings.

What the Psychologists Had to Say

Here’s a summary of the survey data by Jonathan D. Raskin and Michael C. Gayle:

psychiatry5Only two published studies, both from the early 1980s, have specifically examined psychologist attitudes toward the Diagnostic and Statistical Manual of Mental Disorders (DSM). The current article rectifies this by presenting the results of a recent survey of attitudes toward the DSM-IV-TR and DSM-5. Though the DSM has changed over the years, psychologist attitudes toward it have remained remarkably consistent. Although more than 90% of psychologists report using the DSM, they are dissatisfied with numerous aspects of it and support developing alternatives to it—something that psychologists over 30 years ago supported, as well. The finding that almost all psychologists use the DSM despite serious concerns about it raises ethical issues because professionals are ethically bound to only use instruments in which they are scientifically confident.

psych labelsIn the above summary, the number 5 after the letters DSM, refers to the fact that the DSM has undergone five major revisions. Since the 1980s, there have been three such revisions.  Ideally, users of the DSM would see clear improvement for each revision.

When a survey was done in the early 1980s, psychologists were clearly skeptical of the DSM-2.  As described by Raskin and Gayle,

More than 40% felt it (a) distorted clinician perceptions of clients, (b) applied medical labels to psychosocial problems, (c) was not reliable and valid, (d) emphasized diagnosis over treatment, (e) obscured individual differences, and (f) overemphasized pathology. Almost 60% were dissatisfied or somewhat dissatisfied with the DSM-2 with only 17% satisfied or somewhat satisfied.

Mental-Illness_5When the DSM-3 came out in 1983, Smith and Kraft carried out an updated survey on this revision of the DSM-2. The findings indicated that psychologists at that time (a) preferred social–interpersonal diagnosis, nondiagnosis, and behavioral analysis over DSM-3—in that order; (b) felt that most conditions in DSM-3 were best seen as nonmedical problems in living; (c) believed too little had been done to develop scientific alternatives to the DSM; and (d) thought that client welfare and integrity would be better served by abandoning the medical model. Eighty-five percent disagreed that mental disorders are a subset of medical disorders.

In the latest survey that was carried out by Raskin and Gayle, 128 anonymous psychologists participated.  Among the questions that were asked was, “How satisfied are you with the changes being proposed for DSM-5?” Their answers indicated that they were significantly more negative about it than neutral. The general attitude about the latest version of the DSM were very similar to what was found three decades ago, namely, that a significant number of psychologists are unhappy with the DSM.

What Community Folks Had to Say

Mental-Illness_6In the community outreach survey of lay opinions on emotional distress and diagnosis carried out by Lois Holzman and her colleagues, people were asked questions at two annual NYC street fairs attended by millions of people. Conversations lasted from five to over ten minutes each. In all, 143 people participated in the survey in the first of these two surveys, which occurred in 2013. The second one had 149 people who participated, which occurred in 2014.

In the 2013 survey, the focus was on how psychiatric diagnosis affected kids. Forty percent felt that psychiatric diagnosis was not valuable.  For the 60% that felt that psychiatric diagnoses can be valuable, 90% of them had reservations.  That is, they said that it was only sometimes helpful, there was a danger of misdiagnosis, there was racism involved in diagnosis, and it leads to stigma and over-medication.

Ten percent were completely against diagnosis under any circumstance, some sharing their experiences pertaining to children. Examples of comments from this group follow:

Mental-Illness_8“Medication makes you act out. My grandson was hyperactive, not ADHD and they wanted to put him on Ritalin – I told them no. Drugs at an early age can lead to hard core drugs later in life.”

“I worked with kids who had wrong diagnosis, and this is prevalent.”

“Kids get told in 1st grade they’re crazy—then it becomes a self-fulfilling prophecy.”

In the 2014 survey, the researchers:

“tried to go a little deeper and see if we could help people explore the apparent conflict around diagnosis, i.e., its value and its dangers. We also wanted to learn what they thought about the necessity and mandate of diagnosis.

  1. Mental-Illness_9We all know people who have gotten very depressed when they’ve lost a loved one, or children who cannot sit still in school, lots of folks who are angry and demoralized about not finding a job. Do you think any of these people need to get a diagnosis in order to get help with their emotional pain?

(IF THEY SAY YES, ASK THE NEXT 2 QUESTIONS):

  • Do we need to relate to them as having brain disorders? Or chemical imbalances?
  • Right now, in most settings, if you want to get help with ANY kind of emotional pain from a mental health professional, they are required to give you a diagnosis. Do you agree with that?
  1. Mental-Illness_10Are there other ways to support people emotionally? What do you think could help them?
  2. Like me, you probably know people in your family, church, or at work who have serious emotional problems, who may have been diagnosed with major depression, bipolar or schizophrenia. Obviously people deserve and need top quality mental health care including access to medication. Do you think that even in these situations a diagnosis can limit the person, label them, and stigmatize them? If so, how?
  3. From our past surveys we have found that people are conflicted about diagnosis and labels. They find it relieving to get a diagnosis and at the same time feel like the diagnosis can stigmatize or label them. Why do you think that so many of us are conflicted about this, feel it can be both helpful and harmful?

Here’s a brief summary of the finding, as described by Dr. Holzman:

  1. Diagnosis Needed: 60% of respondents said no, people did not need a diagnosis to get help with their emotional pain. The majority of the 40% who said diagnosis was needed told us that that was the only way to get to talk to someone.

Only those who said yes, diagnosis was needed (40%), were asked the next two questions.

Mental-Illness_71a. Biological Basis: 89% of those who said diagnosis was needed said we shouldn’t consider such people as having a brain disorder or chemical imbalance.

1b. Diagnosis Required: 75% of those who said diagnosis was needed did not agree that it should be required.

  1. Other Ways to Support (alternative types of treatment):

Everyone offered an alternative, with most people suggesting more than one. The most frequent responses involved talking to people—therapy, counseling, group therapy being the most common (including, “A center they can go to without getting diagnosed”), followed by family, friends, self-help and support groups.

A social eventA wide variety of social activities and life style changes were recommended—volunteering, hobbies, music, dance, writing, meditation, exercise, yoga, diet, prayer and creating community (“Have events that bring people out, like this fair”).

  1. & 4. Concerns about Diagnosis: 90% (including those who thought it was needed) expressed concerns about the stigma of diagnosis, the dangers of misdiagnosis, and/or the over-medication that too often accompanies a diagnosis.

Once you have that label it doesn’t stay at the clinic. You carry it with you for a long time.

People start calling you crazy. It can be a shame for the family.

I had to fight to get counseling for my kid. They just wanted to give him drugs.

Getting a diagnosis limits life experience, you’re treated differently, you feel like an outcast.

It’s helpful to the clinic but not in everyday life.

It’s good to know what’s wrong, but it might make them feel worse about themselves and put them in a box.

a meditatorIt pigeon-holes people and the diagnosis becomes all that I am.

It stagnates them. It keeps them on one path with only one destination.

They think something’s wrong with them.

There is too much use of medication. It is a quick fix to avoid a real understanding.

Against it – children are still growing. Against medication.

So there you have it, some views other than mine about psychiatric name calling. In interpreting these findings, I think it’s important to bear in mind that the views of the people surveyed developed in the context of a multibillion dollar advertisement campaign by the pharmaceutical companies over many years that is designed to convince them that emotional concerns are diagnosable illnesses requiring medication treatment. How might the views of those surveyed been different without this high finance selling of the illness model?

——————————-

Some people will enjoy reading this blog by beginning with the first post and then moving forward to the next more recent one; then to the next one; and so on.  This permits readers to catch up on some ideas that were presented earlier and to move through all of the ideas in a systematic fashion to develop their emotional intelligence.  To begin at the very first post you can click HERE.

Categories
conflict resolution DSM Emotional pain empathy insults mental disorders Mental Illness Name calling psychiatrists psychiatry psychopathology The Diagnostic and Statistical Manual of Mental Disorders William James

From Psychiatric Name Calling to Plain, Humane English

mental Health ImageMany mental health service providers well know that there are serious problems with the jargon that is used in their profession.  In a recent post titled “Psychiatric Name Calling: Is It Time To Put A Stop To It?” I outline some of the most glaring ones.  In a subsequent post titled “Psychiatric Name Calling: Is There An Alternative?” I describe a plan for professionals who have an interest in eliminating the problems inherent in the current psychiatric pathologizing approach.  This plan would allow professionals to replace the old model with one that would be practical, more consistent with principles of science, and far less stigmatizing.

gearsAs I have been seeking ways to promote these ideas, it has become more and more apparent that the gears of the mental health service provider professional organizations grind slowly. Until the necessary changes occur, what can the average English speaking person do when faced with terms like mental illness, major depressive disorder, psychosis, schizophrenia, etc.?

Three Principles That Can Be Used When Psychiatric Pathology Terms Are Employed by Others So That The Negative Effects Associated With Their Usage Can Be Reduced 

grinding gearsEven people who are not mental health service providers will regularly use psychiatric jargon. Thus, a French writer once wrote:

My sadness was without limit, and having got possession of me, it filled my life from the most indifferent external acts to the most secret thoughts, and corrupted at their source my feelings, my judgment, and my happiness. It was then that I saw that to expect to put a stop to this disorder by my reason and by my will, which were themselves diseased, would be to act like a blind man who should pretend to correct one of his eyes by the aid of the other equally blind one.

In this quote, the French writer, to describe some concerns he had about his sad mood and how it was affecting his feelings, judgments, and happiness, uses the words “disorder” and “disease.”  This is the type of language most mental health service providers throw around. What is the writer attempting to convey by their use?

meaning 2Sometimes when these words will be employed, their context will make it clear what meaning the author intends. In this example, the author does provide some context.  He clearly indicates he was much sadder than he wished to be, and he believed he was unable to do anything about it.  He also expressed a concern about his feelings, judgments, and happiness, but he was less clear about what he meant by this.

meaning 1When someone begins to use pathologizing language and we simply don’t know what is intended, we might end up with misleading, simplistic associations. And so, here are three principles that can be used when psychiatric pathology terms are employed so that we can avoid unnecessary confusion.

Each Time Someone Uses A Psychopathologizing Term, Ask The User Of The Term For A More Specific Description Of What Is Meant By It

clearIn the example that I provided above, there was some lack of clarity about what the French writer meant about his judgments. We know that he felt that it was disordered and diseased. That really tells us nothing more than he was dissatisfied with his judgments. To clarify, we could ask for some specific examples of when his judgment proved to him unsatisfactory.

mental illnessAs another example, suppose you hear Alice saying that John Doe is “mentally ill.” If you want to use this first principle, you would ask Alice what, specifically, does “mentally ill” mean to her and what has John done specifically that led to her calling John this name. These questions typically lead to further constructive discussions and ends up clarifying the nature of many fascinating experiences.

When Psychopathologizing Terms Are Employed, Express A Concern That This Terminology Simplistically Devalues An Experience

Terms like “mental disorders,” “mental illness” and “psychosis,” even when used by professionals, implies that there is something wrong with the person being described. However, as I described in my post “Are Mental Illnesses Really Potentially Helpful Tools?” there are numerous examples of the types of experiences that tend to be labelled mental disorders that end up being enormously helpful.  Moreover, in cultures that recognize this possibility the outcomes for those people undergoing these challenging experiences are distinctly better.

rethinkAnd so, as you begin to use the first principle, asking for the user of pathologizing terminology for more specifics, if he or she seems to be suggesting that the experience is bad, you might wish to point out this well documented observation.  At such times, I often say, “Many people with artistic temperaments have these types of experiences.  Such people have given the world some of its most valued achievements.”

Instead Of Using The Concept of “Disease” And “Illness” To Encourage Humane Responding Toward Individuals Undergoing Challenging Experiences, Emphasize Rights, Kindness, And Practical Reasons

In seeking to encourage people who are using pathologizing terminology to be more specific, it is not uncommon to find that one reason they use these terms is that they hope it will encourage people to be more humane toward those who have certain challenging experiences.  They usually mean well by this, but this approach has been used for centuries and history documents that despite such efforts, people who are being given these labels have often ended up in some of the most horrible, degrading treatment facilities.

rightsInstead of using the concept of “disease” to encourage humane responding toward individuals undergoing the experiences that get labelled with pathological terms, an alternative is to emphasize human rights, kindness, and practical reasons.

Note that when people in a town are hit with a hurricane, we don’t have to resort to calling them ill to encourage some help. Instead, we have set up laws that entitle people to certain rights from the government when emergencies occur. Moreover, as word gets out about what is occurring to those who are suffering, out of kindness, people make donations or join their hands to provide direct assistance in a variety of ways. And lest we forget, there are practical reasons to lend a hand.  By doing so, we model for people just what kindness is all about.

kindness 1Any of us can find ourselves in an emergency situation.  The more we promote acts of kindness, the more likely we may find that others will treat us with kindness if we are ever to find ourselves in a very unfortunate set of circumstances.

Using the Three Principles

William James, in his grand book, The Varieties of Religious Experience, tells us of some people who have mystical experiences that tend to be called “mental disorders.” James begins to use the three principles when he seeks out descriptions of the various mystical experiences that go well beyond the simplistic psychopathological descriptions.  He then states that these mystical states have the right to be absolutely authoritative over the individuals to whom they come.

mysticalIt is vain for rationalism to grumble about this. If the mystical truth that comes to a man proves to be a force that he can live by, what mandate have we of the majority to order him to live in another way? We can throw him into a prison or a madhouse, but we cannot change his mind-we commonly attach it only the more stubbornly to its beliefs.

It mocks our utmost efforts, as a matter of fact, and in point of logic it absolutely escapes our jurisdiction. Our own more “rational” beliefs are based on evidence exactly similar in nature to that which mystics quote for theirs. Our senses, namely, have assured us of certain states of fact; but mystical experiences are as direct perceptions of fact for those who have them as any sensations ever were for us…. The mystic is, in short, invulnerable, and must be left, whether we relish it or not, in undisturbed enjoyment of his creed. 

kindness 2In this quote, we find no plea from James that we should treat mystics humanely because they have a mental disease. Instead, James puts forth “rights” and “pragmatic” considerations. He argues that just like we in the majority would not like to be ordered to live in a particular way, these mystics have the right to live their way. And pragmatically, if we do use heavy-handed approaches to try to change them, such as throwing them in a madhouse, they will become more stubborn in their beliefs.

James proceeds from here to state that mystics have no right to claim that “we ought to accept the deliverance of their peculiar experiences, if we are ourselves outsiders, and feel no private call thereto.”  His theme is tolerance for both the majority toward the minority and vice versa.

Returning to pragmatic arguments, James tells us in his chapter on mysticism that some have found that their mystical experiences have led to wonderful fruits that they highly valued. Some, for example, suffered for a great period of time and after their mystical experience felt wondrously free from their pain and found in its place increased energy and happiness.

kindness 3James well realizes that the fruits from mystical experiences are not always positive, but he asks us, at the very least, to realize that they have the potential to “be indispensable stages in our approach to the final fullness of the truth.” Thus, we see that “rights” and “pragmatic arguments” can be used instead of a disease concept to promote humane, kind responses toward those who have the types of experiences that tend to be called mental disorders.

——————————-

Some people will enjoy reading this blog by beginning with the first post and then moving forward to the next more recent one; then to the next one; and so on.  This permits readers to catch up on some ideas that were presented earlier and to move through all of the ideas in a systematic fashion to develop their emotional intelligence.  To begin at the very first post you can click HERE.

Categories
conflict resolution DSM Name calling psychiatrists psychiatry psychopathology The Diagnostic and Statistical Manual of Mental Disorders

Psychiatric Name Calling: Is There An Alternative?

monopolyThe publishers of The Diagnostic and Statistical Manual of Mental Disorders (DSM) currently hold a monopoly for classifying the concerns that lead people to seek mental health services. Recently on this blog, in a series of articles, I have been pointing out numerous faults of the DSM.  To check out some examples of these, see my posts titled Name Calling by Psychiatrists: Is it Time to Put a Stop to it? and Are “Mental Illnesses” Really Potentially Helpful Tools?

alternativeIn these critical posts, I have touched upon what I believe would be a distinctly better alternative to the DSM and argued that its creation, in breaking up this monopoly, would stimulate through creative competition, improved mental health services. Today, let’s take a closer look at this.

The Classification and Statistical Manual of Mental Health Concerns (CSM)

concerns 1I called this proposed alternative manual, the CSM, and you can find a much fuller description of it in a peer reviewed journal HERE.  In brief, its first chapter would begin by stating that the developed of the CSM fully recognize that individuality outruns any classification system. It is for this reason that the CSM does not seek to classify anyone. Instead, it classifies the expressed concerns of individuals seeking to have their concerns addressed by a mental health service provider.

concerns 3The CSM begins from the perspective of the person seeking services. Because the expression of a mental health concern is a clearly observable event, by making it the event being classified in the CSM it solves the reliability problems that have been plaguing the DSM’s far more abstract concept of “mental disorders.”

After this statement, the CSM would clearly define its main construct:

A mental health concern occurs when a person seeking mental health services expresses to a mental health service provider a concern about any of these topics: behavior, emotion, mood, meaning of life, managing chronic pain, work, relationships, education, eating, cognition, sleep and challenging life situations.

MentalHealth 2Each of these topics would have separate major sections in the second chapter, and under each section would be a list of more specific concerns.

mental healthThis second chapter would be devoted to listing all of the concerns that professionals tend to hear from those seeking their services.  Each concern would be given a code that would be used for various administrative purposes such as insurance forms and computer filing systems. And then there would be, for each concern, a list of related search terms that can be used to assist people who want to utilize a search engine to find all the relevant literature regarding that particular concern.

Survey 2The list of concerns would be identified by two types of surveys.  First, a large sample of mental health service providers would be asked to list the various concerns that they are asked to address in their practice without couching them in pathological language and to stick as closely as possible to the language used by those seeking their services. So, a concern about feeling blue might simply be classified “feeling blue,” rather than the DSM’s “Major Depressive Disorder;” a concern about a child’s above average activity level might simply be classified as “above average activity level” rather than the DSM’s “Attention Deficit Hyperactivity Disorder.”   The second type of survey that would be used to generate the list of concerns that would appear in the CSM,  would ask the membership of mental health service user organizations to list the various concerns that led them to seek mental health services.  They, too, would be asked to avoid pathological terminology. For a number of practical reasons, a maximum of four words would be used for classifying each expressed concern in this chapter.

FormulationThe final chapter of the CSM would be devoted to describing good practice guidelines for the use of psychological formulation, which is an assessment approach that is consistent with the CSM’s philosophy of not pathologizing individuals.  Psychological formulation provides an approach that expands on the brief expressed concerns of individuals by developing a narrative of several paragraphs. It can be defined as the process involving a mental health service user and a mental health service provider co-constructing a hypothesis or ‘best guess’ about the origins of the mental health service user’s concerns in the context of his or her relationships, social circumstances, life events, and the sense that he or she has made of them. Once it has been established what the concerns are, the immediate next question is, ‘How do we jointly understand these experiences, why they arose, and how we might be able to address them?’

Unlike diagnosis, this type of psychological formulation is not about making an expert judgement, but about working closely with the individual to develop a shared understanding which will evolve over time. And, unlike diagnosis, it draws attention to the service user’s resources and strengths in surviving what are nearly always very challenging life situations.

Defending the CSM Approach

classifyNow, some believe that the psychological formulation is all that is needed as an alternative to the DSM and that there is no need to join it with any classification manual such as the CSM.  But keep in mind that currently the DSM is used by insurance companies and other third party payers such as Medicaid, Medicare, and Social Security. Insurance companies and these other third party payers have a form that must be filled out whenever someone seeks mental health services under their plan. This form has a little box that currently says, “Diagnosis.” In that box, mental health professionals must fill in the DSM code that corresponds to their so-called diagnosis of the person seeking services.

insurance formWith the CSM proposal, all that we would be asking insurance companies to do differently in order to add value for their customers, is to slightly change that little box. Instead of just saying “Diagnosis” as it currently says, that box would add two little words, so it would end up saying “Diagnosis or Concern.” Then, when mental health professionals fill in the box, they would be given the choice to either write in the letters “DSM” and its code number that corresponds to its so-called diagnosis, or they would write the letters CSM and its code number that corresponds to the expressed concern. Mental health consumers would be given the choice to go to pathologizing mental health service providers or those using the CSM approach.

That’s all the change that would be required in order to increase value for insurance customers as well as other third party payers. And a major goal that all third party payers have is to increase value for their customers. The cost and effort for these payers would be minimum and we would have numerous testimonials from customers that documents that this change would be viewed as a significant improvement.

bureaucracy 2A psychological formulation approach, which requires several paragraphs to be completed, would be far too cumbersome for these payers to incorporate into their bureaucratic system.  Moreover, a short word or phrase that could replace terms like “Major Depressive Disorder” or “Attention Deficit Hyperactivity Disorder” is necessary for other practical forms of communication. For example, if I want to write a title for a research article, it would not be practical to insert into it several paragraphs.  The psychological formulation approach would become far more widely used if it has some practical way of providing some short terms that are consistent with its non-pathologizing approach to conceptualizing an individual’s mental health concerns.

bureaucracySome may argue that if everyone could go to a mental health professional merely to have their concerns addressed, then the system would soon be overloaded with clients and insurance policy costs would soar.  Since insurance companies only cover people with more serious conditions known as “mental disorders,” so the argument goes, this limits the amount of people who can get to see a mental health professional.

Insurance and other third party payer executives are not stupid. They would readily understand, with a little explaining, that mental health service providers now using the current DSM do not turn anyone with a mental health insurance policy away who comes to their office expressing what I refer to as a mental health concern.  Professionals are in the business of increasing their clients.  Let’s be honest here; there are “close enough” matches throughout the DSM for anyone with mental health insurance coverage who currently wants mental health services to get it.

scienceHere’s another reason why the CSM would improve the psychological formulation approach. In pretty much any of the advanced countries in the world, there is a rather large segment of the population that believes science has been an enormous help advancing our knowledge. The CSM, as already mentioned, is even more consistent with principles of science than the DSM because it solves the problem of reliability that has been a mess with the DSM. And for science minded people, each branch of science must have a system of classification that helps to organize concepts, to retrieve relevant research, and to be useful in formulating programs of research. In my view, the pairing of psychological formulation with the CSM’s list of brief descriptors of mental health concerns will fit well with this worldview.

concerns 2And so, these are some of my arguments for uniting in the CSM proposal a classification system and the psychological formulation proposal. Together, both can clearly improve value for consumers of mental health services by providing a new choice, but only if consumers of mental health services role up their sleeves, organize, and effectively advocate for this type of change.

In summary then, the CSM is more consistent with principles of science. It is close enough to the worldview and administrative requirements of all of the stakeholders in the mental health field, thus reducing resistance that often comes with proposed changes. And the creation of the CSM would break up the DSM monopoly, thereby spurring creative approaches for understanding the nature of anguish, sadness and tears.

——————————-

Some people will enjoy reading this blog by beginning with the first post and then moving forward to the next more recent one; then to the next one; and so on. This permits readers to catch up on some ideas that were presented earlier and to move through all of the ideas in a systematic fashion to develop their emotional and social intelligence. To begin at the very first post you can click HERE.

 

Categories
conflict resolution Mental Illness psychiatrists psychiatry Thomas Szasz

Dr. Thomas Szasz and Psychiatric Name Calling

On this blog, one of the main topics of discussion is name calling.  And, from time to time, some people have asked me what I think of the types of names psychiatrists use to talk about their patients.

psych labelsIn response, I wrote a post titled Name Calling by Psychiatrists: Is it Time to Put a Stop to it?  It stirred up a great deal of interest, and the various comments led me to write several follow-up posts.  While all of this was going on, several people asked what I thought of the psychiatrist, Thomas Szasz.  And so, today’s post at least begins my reply.

 

Thomas Szasz, MD
Thomas Szasz, MD

It was 45 years ago when I first heard of Dr. Szasz.  I was about 19 years old, it was the late 1960s, and I was taking an Abnormal Psychology course as an undergraduate student at Brooklyn College. Professor Meyers presented a whole class on Dr. Szasz’s recent book, The Myth of Mental Illness.  It was a time when many of us were raging against the Vietnam War.  Questioning all authority went right along with that, and so Szasz’s position, for me, fell right into that general mindset.

Labeling a child as mentally ill is stigmatization, not diagnosis. Giving a child a psychiatric drug is poisoning, not treatment.--Dr. Thomas Szasz.
Labeling a child as mentally ill is stigmatization, not diagnosis. Giving a child a psychiatric drug is poisoning, not treatment.–Dr. Thomas Szasz.

After the course had ended, I really didn’t think much about Szasz’s ideas again until about 15 years later.  I was working with youth in the Corning, New York area, when I began to notice a dramatic increase in the number of young children and teenagers being prescribed psychiatric drugs.  At one point, five straight foster children that were brought to me for counseling not only were taking a psychiatric drug, but were taking several of them. Those students typically were unhappy about this, complained about serious side effects, and when I went to the library to check out the various risks associated with their use, I became very concerned.

szasz3To address my concern, I began to organize a debate on the use of these drugs, and the first person I thought to call was Dr. Szasz.  He was very helpful, agreed to debate the topic, and the debate created so much interest that other people began to ask me to help organize similar debates in their communities.  In the end, that single debate turned into a series of seven debates.

I learned a great deal from all of the participants, but it was Dr. Szasz who most challenged my thinking.  Although I disagree with some of his ideas, I admire his guts for standing up for what he believed, his humor, and his extraordinary intelligence.

Thomas Szasz passed away a couple of years ago at the age of 92.

szasz6A great deal of Szasz’s writings and ideas are readily available on line (see for example the article on Wikipedia). Nevertheless, to give my readers a little sense of his ideas, I am providing below a little snippet of his opening remarks from one of the debates that I helped to organize. It is slightly edited because he was not the first speaker during the debate and some of his comments alluded to remarks that someone else had said earlier during the proceedings.  Without having heard these other remarks, Szasz’s comments would be hard to follow, so I edited them out. This gives his comments a slight disconnected feel at times, so I ask that you not blame him for that.

And so, without any further ado, I give you, Dr. Thomas Szasz:

Portrait of Dr. Szasz that hangs in the medical library at the SUNY Upstate Medical University
Portrait of Dr. Szasz that hangs in the medical library at the SUNY Upstate Medical University

Ladies and gentlemen…. I would like to take this time to present my views of psychiatry ….

I believe…ideas have consequences.  Words only mean what we do about them.  They do not have abstract meaning.  So the question is what do we mean when we say something is a disease?

Now to me, psychiatry doesn’t have to do with diseases at all.  Just like, to me, communism doesn’t have to do with ideas. 

Berlin Wall
Berlin Wall

Communism was symbolized by a bunch of stones called the Berlin Wall.  But what it actually meant is that if you lived in a communist country, you can come in, everything was fine and you were told everything was wonderful for you, but if you tried to leave you found that they shot you, that you couldn’t get out. This is what happens in a mental hospital.  You can get in, but you can’t get out….

CoercionPsychiatry is a branch of the law, it has alway been, and always will be…  To me, psychiatry is coercion.  I have always said, I support psychiatry between consenting adults…  I am only interested in involuntary aspects of psychiatry.

brain diseasesFor the sake of the argument, I don’t believe this, but for the sake of the argument, to make my argument clear, let’s say schizophrenia is a brain disease, just like cirrhosis is a disease of the liver.  If we accept this and treat it like other diseases, then psychiatry disappears.  It would then be treated by a brain doctor.  The insanity defense disappears.  Involuntary psychiatry disappears.  If somebody kills somebody they are tried like everyone else.  There are no psychiatrists lining up to testify to say Prozac causes murder, or mental illness causes murder, or everything causes murder except free will.

bleedingOk,… let me give you two English sentences. The statement Jones is bleeding, is a statement about his body.  The statement  that Jones is boasting is a statement about Jones.  They sound like the same type of statement, but they are not. The question, what do we mean by schizophrenia.  Do we mean that they are a type of lesion, or do we mean, behavior.  How does someone first diagnose someone with schizophrenia—from his body, or his behavior?

szasz quoteLet’s assume the person has a disease.  The person is still behaving, the person is still a moral agent.  Patients, from a moral, legal point of view, are exactly like non-patients. If I have asthma, Parkinson, etc., I can still behave.  When people have Parkinson and they shoot somebody, they are responsible, if they are nice to their wives, they get along, if they are not so nice they get a divorce and so on.

gayNow we come to some more issues.  Supposing someone claims that someone has a disease. On whose authority do we take this?  In my lifetime, great authorities have maintained homosexuality was a disease.  When I was in the US Navy 30 years ago, that was one of the major ideas of the service was to single out homosexuals, who were then given diagnoses by psychiatrists.  This was viewed as a serious disease.  Now, on the cover of Time we find that they are entitled to civil rights.  What happened to their disease?

Not only was racism2homosexuality a disease, so was being black according to an early psychiatrist, Benjamin Rush. According to him, blacks were blacks because they had a form of leprosy.  On whose authority did he claim this?  On the authority that he is a doctor?

brains3Now we are shown pictures of brains and told that they prove that schizophrenia is a disease.  On whose authority?  The fact is that no pathologists diagnose anyone as schizophrenic based on any pictures of someone’s brain, or any other medical test.  Even on postmortem, when the patient said to be schizophrenic dies the pathologist says no disease was found.  The same thing with depression…

bookThe discussion of who has a mental  illness is based on judgements of a person’s behavior.  So this idea that you can have a brain disease, like schizophrenia, is a little  strange.  Let me just give you a few questions to stimulate you.  What would asymptomatic depression look like.  Now we know what asymptomatic hypertension is, or asymptomatic leukemia,… but what is asyptomatic depression?  Better yet, what is asyptomatic schizophrenia? What would that be.  Or asymptomatic Judaism, or Christianity.  These are behaviors.  If the behavior is not there it is not here….

My time is nearly up, so let me leave you with a couple of questions.  Please listen carefully because this is a question and a joke.  If somebody has a delusion of having cancer, then he has a mental illness, right, because he doesn’t have cancer?  What would it mean if he has a delusion of being mentally ill?

responsibilityOkay, now to the issue of saying someone has a mental illness which is due to some biological basis. This is nonsense because everything we do has a biological basis… The most ordinary things are biological bases, namely eating and sex, called hunger and lust.  These are not diseases.  And just because they have a biological basis that doesn’t mean that you have to act.  Urination and defecresponsibility6ation have a biological basis. These are powerful impulses that have a biological basis but that doesn’t mean we have to do it in the middle of the living room…. Life begins with responsibility and ends with responsibility….  Psychiatry is a discipline that undermines responsibility.  Thank you.

———————

Some people will enjoy reading this blog by beginning with the first post and then moving forward to the next more recent one; then to the next one; and so on.  This permits readers to catch up on some ideas that were presented earlier and to move through all of the ideas in a systematic fashion to develop their emotional intelligence.  To begin at the very first post you can click HERE.

Categories
ADHD conflict resolution psychiatrists psychiatry Ritalin

ADHD and Psychiatric Name Calling

psychiatry3Recently I published a post titled “Name Calling by Psychiatrists: Is it Time to Put a Stop to it?” Among the points that I had tried to make is that psychiatrists falsely claim that the names they use to describe patients are “diagnoses.” In actuality, all that they do is convert someone’s expressed concerns into medical jargon.

I soon followed with a post titled “Psychiatric Name Calling: Is it Helpful?” Having thus raised some questions concerning the whole range of psychiatric labeling practices, today I’ve decided to focus in on just one of its most popular so called diagnosis–ADHD.

ADHD: A Huge Loss to Society

gambling machinesGambling institutions well know that it is not hard to disguise losses as wins.  For example, it is common in modern video slot machines that players are encouraged to bet on multiple play lines and follow any winning combination with flashing lights and high-fidelity audio, even when the amount won is less than the amount wagered. There are, of course, some who catch on to this gimmick.  As one man noted, “I eventually realized that if I kept on winning, I was going to go broke.”  A similar disguise is occurring with the ADHD situation.

In the spring issue of The Journal of Mind and Behavior, I found a relevant article by Lincoln Stoller titled “ADHD as Emergent Institutional Exploitation.” It documents that an estimated $3.6 billion was spent annually on ADHD drug treatements with the hope that this would help those students with an ADHD label do better in school.  The drugs do create some flashing lights and audio sounds of delight from short-term effects of the drugs. And yet in terms of real life important outcomes for the students who are being placed at risk of a number of serious side effects, in the long term the drugs lead to more losses than gains.  I well understand that many fine, well-meaning and intelligent people strongly disagree with me on this.  Let’s look at the research.

ADHD1The NIMH Multimodel ADHD Treatment Study (see HERE) is the largest study ever carried out, involving 6 study sites, millions of dollars, nearly 600 elementary school children, ages 7-9, randomly assigned to one of four treatment modes: (1) medication alone; (2) psychosocial/behavioral treatment alone; (3) a combination of both; or (4) routine community care.  The results were initially written up as a big success for the ADHD drugs because in the short term, those taking the drugs did appear to do somewhat better on some outcome measures.  But by the end of 14 months of treatment, no significant differences were found between those who had taken the drugs and a similar group who did not take them in terms of improved behavior and academic achievement.

In a recent Canadian study, those who took the drugs actually did significantly worse than those who didn’t.  And other studies (see this article for review) indicate that by the time ADHD-labelled students reach the age that most students graduate high school, they do no better if they had taken ADHD drugs than a similar set of students who had not taken the drugs. High school average, high school graduation rates and performance on achievement tests were the same for both groups.  But for each student taking the drugs, side-effects were endured and thousands of dollars spent on prescriptions.

And so, at some point it makes sense to start asking if a temporary improvement in school, which washes away by 14 months, is worth $3.6 billion?  The pharmaceutical industry, like gambling institutions, well know that it is not hard to disguise losses as wins.

A Recent New York Times Article

adhd2Not long ago in the New York Times an article by Dr. Richard A. Friedman appeared titled “A Natural Fix for A.D.H.D.” There, the author states, “people with A.D.H.D. may not have a disease, so much as a set of behavioral traits that don’t match the expectations of our contemporary culture.”  To defend his position, Dr. Friedman points to the fact that in schools, which tend to be regimented, require a great deal of sitting time, and lack much choice at what someone wants to be doing at any given time, the attention problems are far more prevalent than with adults who often have some choice at what career they go into.

For example, a patient of his, a 28-year-old man,

was having a lot of trouble at his desk job in an advertising firm. Having to sit at a desk for long hours and focus his attention on one task was nearly impossible. He would multitask, listening to music and texting, while “working” to prevent activities from becoming routine.

Eventually he quit his job and threw himself into a start-up company, which has him on the road in constantly changing environments. He is much happier and — little surprise — has lost his symptoms of A.D.H.D.

My patient “treated” his A.D.H.D simply by changing the conditions of his work environment from one that was highly routine to one that was varied and unpredictable. All of a sudden, his greatest liabilities — his impatience, short attention span and restlessness — became assets. And this, I think, gets to the heart of what is happening in A.D.H.D.

adhd3Although Dr. Friedman does a good job questioning the value of viewing ADHD as a mental disorder, he does throw in a plug for using ADHD drugs on children. Thus he says:

What are the implications of this new research for how we think about and treat kids with A.D.H.D.? Of course, I am not suggesting that we take our kids out of school and head for the savanna. Nor am I saying that we should not use stimulant medications like Adderall and Ritalin, which are safe and effective and very helpful to many kids with A.D.H.D.

In actuality, the effectiveness of these types of medications are very much in question because, as I have already pointed out, their effects soon wash away as tolerance to them develops.  Meanwhile a great deal of money has been wasted.

boy-with-stomach-pain-As far as his statement that these drugs are safe, among the common side effects are high blood pressure, chronic trouble sleeping, feelings like throwing up, upper abdominal pain, and head pain.  Moreover, there are a number of far more serious problems that, although rare for any individual child, nevertheless,  because of the current policies that lead to several million children being placed on these drugs, thousands of our youth end up experiencing awful tragedies.

The world benefits from having people with a variety of interests, skills and talents. Schools tend to push people into too limited an environment despite the diversity of people who come through its doors.

Additional Research

kids running AThere is research that demonstrates that many students who are given the ADHD label do far better if they are given opportunities to run around a few extra times during the school day, but most schools are cutting out more and more recess time to squeeze in more seat time for learning. Many kids given the ADHD label tend to be the youngest in their class.  Because everyone in a class is expected to do the same level of school work in any given class, the youngest begin to stand out, and are identified more as “ADHD” kids.

children sleepingOther research indicates a strong association between an ADHD label and sleep problems. These problems occur in part because some people are not morning people and like it or not, school begins early.

sleeping2Should being a person who doesn’t function as well in the morning be considered a disease? In some settings, the fact that there are people who would prefer to work a later shift is an enormous plus, but for those in school, name calling and drugging is viewed by the authorities as making sense.

Some people who have sleeping problems have other real problems that contribute to their sleeping woes such as parents fighting, stress from community violence, bullying, serious financial problems, and on and on. In such cases, doesn’t it make sense to view the students as having difficulty coping with difficult environmental conditions rather than having a mental disorder?

Are Genetics the Cause?

geneticsThe pharmaceutical companies love to promote genetic studies that appear to demonstrate that ADHD is a real disease.  Since they fund so much of the media’s advertisement business they greatly influence what gets coverage in newspapers, TV and internet stories.  Results are initially exaggerated and splashed all over the headlines. Then, when the real facts start to appear, you have to dig into the bowels of research libraries to find them.

A great example of this occurred when a 2010 study was heralded as being the first to find direct evidence that ADHD is a genetic disorder.  As Lincoln Stoller tells the story:

Thapar, who is one of the authors, is cited in a press release preceding publication of the article as saying: “Now we can say with confidence that ADHD is a genetic disease and that the brains of children with this condition develop differently to those of other children” (Walsh, 2010)…. Thapar implies that those who differ from the norm are necessarily inferior.

genetics2Once the study was actually published it showed that 85 percent of those labelled as having ADHD had no discernible genetic difference from those without ADHD.  Shortly after the study was published, it was found that it did not control for differences in IQ. By removing from the study students who had IQs below 70, the results indicated that about 90 percent of students with ADHD in the study had no discernible genetic difference.  Finally, in a subsequent paper, two of the original authors of the study stated, “gene variants still explain only a small percentage of the inherited component of ADHD.”

Although the original press released got a great deal of attention in the media, the press was silent as the more accurate information surfaced.

Conclusion

adhd einsteinBecause people have differences, whether genetic or otherwise, this does not mean they have a disease. For example, if great singers have a genetic difference than the rest of us, this doesn’t mean they have some sort of disease.  And for those of us who perhaps have some genetics that has led us to sing less than average, we need not view ourselves as diseased.  We can, instead, seek to find other situations in which we can make ourselves useful.  The same holds true for those who find that in some situations their minds wander more than others.

———————

Some people will enjoy reading this blog by beginning with the first post and then moving forward to the next more recent one; then to the next one; and so on.  This permits readers to catch up on some ideas that were presented earlier and to move through all of the ideas in a systematic fashion to develop their emotional intelligence.  To begin at the very first post you can click HERE.

Categories
conflict management conflict resolution DSM Name calling psychiatrists psychiatry The Diagnostic and Statistical Manual of Mental Disorders

Psychiatric Name Calling: Is it Helpful?

psychiatry3Today I offer a follow-up to my earlier post titled “Name Calling by Psychiatrists: Is it Time to Put a Stop to it?” Among the points that I had tried to make is that psychiatrists falsely claim that the names they use to describe patients are “diagnoses.”  In actuality, all that they do is convert someone’s expressed concerns into medical jargon.

I received a great deal of positive and negative comments about the post from readers, but my focus today is on the negative ones. Most of them argue that in contrast to my position, they had personally found their psychiatric diagnosis very helpful.

Those who Found the Psychiatric Pathologizing Helpful

straight talkingI just finished an excellent book on this topic by Lucy Johnstone titled, A Straight Talking Introduction to Psychiatric Diagnosis. There we find several quotes from people who received a so-called diagnosis from psychiatrists and spoke of its positive personal impact.  For example, some felt that it provided relief at knowing “what was wrong.”

I had something that I could firmly grasp, and, you know, I could find out more and try to resolve it…[I] felt relief that this whole jungle was going to be sorted out.

Another person wrote,

It gave me the comfort of explanation…. When I was told I was depressed it gave me a framework of understanding and a first grip on what was happening. 

Some felt that it gave them hope for treatment and support.

Illness meant treatment and the possibility of cure.

disorders

Acceptance of my illness was a turning point…. By accepting treatment I could actively seek the right medication, access support, and turn my life around.

I think I prefer my illness having a name because it makes me feel less lonely, and I know that there are other people experiencing my kind of misery.

Then there were those who felt it provided them freedom from blame and guilt.

Diagnosis implied that this was an illness and not my fault—important for someone whose depression has always been riddled with guilt.

Commentary

Although there are many, many people who feel this way, Ms. Johnstone points out that the relief that these people experience is based on their assumption that the diagnosis itself is valid. If it isn’t, they are simply being offered a circular explanation—“Why are my moods so up and down?” “Because you have bipolar disorder.” “How do you know I have bipolar disorder?” “Because your moods are so up and down.”

Keep in mind, as well, that these people came to view their so-called diagnosis as helpful without ever having an opportunity to compare the pathologizing approach to any alternative approaches. For example, what would be the reactions of these same people whom I have just quoted if they were provided an option that avoided simplistic, misleading terminology, while professional mental health providers and peer support groups assisted the person to find their own stories and provided a choice of treatment options?

motivationMoreover, finding freedom from blame and guilt by playing the blaming-the-brain game may not be anywhere as helpful as the pharmaceutical companies would have us believe. Many of us have learned that we all, from time to time, do things that violate our image of our ideal self and spend some time suffering the consequences.  We come to realize that we not only violated the image of the ideal self in the past, but we’ll no doubt do so again and again in the future.  The experience of suffering over these lapses is the spur that, after a period of difficult reflection, eventually gets us off our butts, learn new skills and seek out the type of support that moves us to make improvements.  It can take time for this to happen. It can take more time than we in our modern pressure pot world may feel we have any right to take, and our loved ones may lose their patience. However, in the long run, drugging these feelings away have always produced more harm than good.

Those who Found the Psychiatric Pathologizing Unhelpful

In contrast to those who tell of some positive reactions to psychiatric name calling, there are other people who tell a dramatically different story.

despair 2

For a number of years, I accepted the medical model as a framework of understanding…. But I gradually came to appreciate drawbacks to the framework. My reading suggested the model might not stand up scientifically…. By the time I was entering my second decade of service use, the medical model, which I had initially found reassuring, seemed increasingly unsatisfactory, without the capacity to encompass the complexity of my interior or exterior life and give it positive value. As a result, I began to actively explore frameworks that better met my needs.

despair 3I already knew something was wrong with me. Now I knew I was mad…. The diagnosis becomes a burden… you are an outcast in society…. It took me years to feel OK about myself again.  

My diagnosis label promoted despair and threatened to become a self-fulfilling prophecy.

I have been diagnosed with dysthymic disorder since I was thirteen.  One kind of harm I suffered from receiving a diagnosis, in and of itself, was that it seemed so final and despairing to receive as a teenager.  For me, having a diagnosis seemed so final.  Like it wasn’t just a tempory issue that I was having, adjustment or adolescence or something, but this disorder that I was going to have for the rest of my life no matter what I did.

But the worse part of this, which I have only been able to shake within the last year…is the defectiveness I felt.  Just kind of in some core way.  Like I’m totally different.

I was so offended. I was really offended.  I thought well, ‘F*** you! You’re attacking my personality; you’re attacking me.  You’re attacking the very soul of me, you know; who I am, and what I am, that’s a disorder.

I no longer identify with my previous role as a severely ill psychiatric patient but a human being that is experiencing and surviving life in my own unique way… just like every other human being on this planet.

Commentary

In her book, Ms. Johnstone summarizes what she has learned from these quotes:

Lucy Johnstone
Lucy Johnstone

It is understandable that service users, reaching desperately for an escape from anguish, confusion, guilt and blame, might see diagnosis (at least initially) as ‘salvation’.  However, these benefits may be bought at the high price of taking on profoundly destructive messages of defect, dangerousness, damage and despair. 

In my view, we can come up with a much better approach to the psychiatric pathologizing of people, an approach that doesn’t label anyone, but rather, classifies mental health concerns. For those who found the pathologizing approach helpful, this alternative approach would provide the professional and peer support that they value without misleading name calling. Psychiatric terms confuse questions of fact with questions of value, and superficially declare that a person’s experience is bad when it may have some pluses and minuses.

Undoubtedly, there are kind and decent folk who have a very different position than I on this subject. In no way do I mean to suggest that those who hold a different opinion are stupid, for I have met many who are as bright as a cloudless summer day. If they want to continue to use the DSM approach, it will continue to be available. All that I seek, all that I hope for, is that those who are uncomfortable with the DSM approach, can still assess mental health services using an alternative. All that I seek is that we all take some time to think more deeply about the nature of melancholy, sadness and tears.

———————

Some people will enjoy reading this blog by beginning with the first post and then moving forward to the next more recent one; then to the next one; and so on.  This permits readers to catch up on some ideas that were presented earlier and to move through all of the ideas in a systematic fashion to develop their emotional intelligence.  To begin at the very first post you can click HERE.

Categories
conflict resolution DSM Name calling psychiatrists psychiatry respect The Diagnostic and Statistical Manual of Mental Disorders William James wisdom

Psychiatric Name Calling: Is Science to Blame?

labelledA couple of weeks ago I raised the question, “Name Calling by Psychiatrists: Is it Time to Put a Stop to it?”  In response, some blamed the insurance companies and other third party payers for the name calling. Because it is true that these payers do require the pathologizing of people seeking mental health services, in last week’s article, I took a close look at that issue.

Others responding to my question argued that diagnosing mental illness is based on the principles of science. So, let’s look at this line of thought.

The Nature of Science

Science enquires what is the nature of something?  what is its constitution, origin, and history?  Human beings also make enquires of a different sort, What is the object’s importance, meaning, significance, or value now that it is once here?  Neither judgment can be deduced immediately from the other.  They proceed from diverse intellectual preoccupations, and the mind combines them only by making them first separately and then adding them together.

Professor Gould
Professor Gould

As Steven Jay Gould, professor of zoology and geology at Harvard University, explains it:

The net of science covers the empirical realm: what is the universe made of (fact) and why does it work this way (theory).  The net of religion extends over questions of moral meaning and value.  These two magisteria do not overlap, nor do they encompass all inquiry (consider, for starters, the magisterium of art and the meaning of beauty).  To cite the usual clichés, we get the age of rocks, and religion retains the rock of ages; we study how the heavens go, and they determine how to go to heaven.”

pathology textbookIn the natural sciences there is a branch called pathology that classifies tumors, lesions, bone fractures, tissue tears, toxic reaction to a chemical, blockage of blood flow within the circulation system, blockage within or to an organ, and microbe infections.  Pathologists have reliable ways of identifying and categorizing these naturally occurring entities.  When we take a science view of each of these entities of interest to pathologists, it is not a value judgment if they exist or not. If ten pathologists look at a tumor, they can all see it, describe its color, density, weight and what each of the tumor’s cells look like under a microscope.

Pathologists, as scientists, have been studying these entities and sometimes they found that some of them are associated with certain physical complaints.  For example, some people complain about headaches and vision problems.  When they died, autopsies were carried out and often a tumor was present that was pressing against the optic nerve.

This finding led to a theory that for people who expressed this type of physical complaint, if an operation was carried out while the patients were still alive and this type of tumor was indeed pressing on the optic nerve, perhaps removing it would alleviate the complaint. Studies were carried out and it led eventually to a valued treatment.

The connections between the research findings of pathologists gave doctors some understanding of what was causing some of the physical complaints of their patients. But often doctors could not find evidence that any of the entities of interest to pathologists were the cause of the complaint.  When this occurred, most doctors merely changed the expressed complaint into some medical jargon that sounded somewhat like those concerns that had been shown to be due to a pathological condition.  In such cases, they offered some treatment that was often based more on the commercial art of medicine rather than science.

These doctors usually called both types of physical complaints (those with pathological findings and those without) “illnesses” or “disorders.” By doing so, the science of medicine and the art of medicine became blurred. And then, business interests became wrapped up in the various treatment options and principles of science began to become more and more murky when applied to the medical world.

Disorders and Psychiatry

psychiatric persuasionIn a book titled Psychiatric Persuasion by Elizabeth Lunbeck, there is considerable documentation that back at the turn of the 20th century when the main job of psychiatrists was running insane asylums their professional organization decided to expand their market by doing two things.  1. Persuade the public that more and more normal behaviors are pathologies that require psychiatric treatment, and 2. Develop a category system that converts all psychological concerns that a person might want to get help for into a language that sounds like a pathological condition.  This would legitimize the treatment of anyone who came to their office, thus the argument that the current psychiatric “diagnosis” system has become a business tool while being promoted as science.

Now, it is certainly possible to create a categorical system consistent with science for the problems that come to the attention of psychiatrists and other mental health service providers that don’t confuse conditions that are associated with pathological findings and those that are not.  Such a system would classify “mental health concerns,” rather than calling people names. A mental health concern occurs when a person seeking mental health services expresses to a mental health service provider a concern about any of the following topics: behavior, emotion, mood, meaning of life, managing chronic pain, work, relationships, education, eating, cognition and sleep. Two classes of mental health concerns are concerns expressed about oneself and concerns expressed about someone else.

One benefit of classifying “mental health concerns” rather than “mental disorders” has to do with inter-rater reliability.  Consider being in a room with 100 psychologists, or even 100 average Joes and Jills, and a person in front of the room says she has been feeling depressed.  A questioner asks the client, “Are you concerned about feeling depressed?” and the person says, “Yes.”  If you asked for a survey of how many people in the room thinks the person has expressed a concern about being depressed, you would get, I believe, 100 percent agreement.  Expressing a mental health concern is a specific action that people do, and therefore it is clearly observable.

Research on the inter-rater reliability of the mental disorders classification system has demonstrated that its inter-rater reliability is very problematic.

Science is Not to Blame

It is not science that is to blame for psychiatric name calling; it is the psychiatric business tool that is cleverly designed to capitalize on the public’s respect for science.

When we begin to use a classification system that does not clearly separate principles of science from values involved in business interests, other values start to slip into the classification process as well.  Early on when the pathologizing of human experience was just getting underway, William James made a number of relevant comments about this.

William James
William James

James argued that experiences that are commonly viewed as unhealthy or morbid are really “an essential part of every character” and give life “a truer sense of values.” To support his contention, James first provided three examples of famous individuals who expressed concerns about melancholy.  Such experiences today, if expressed to a psychiatrist, would probably be converted into a so-called “diagnosis” of “major depressive disorder.” St. Paul, the religious figure of the New Testament, Cesare Lombrosa, a late 19th-century Italian criminologist, and Immanual Kant, the 18th-century German philosopher, became, according to their biographies, better as a result of their troubling experiences.

Although hallucinations can mean madness to some, James presented the case of Socrates who “once stood motionless for many hours in the cold and spoke of having a guiding demon.” Attempting to counter the association between pathologies and hallucinations, James stated,  “Even if this demon [of Socrates] were really meant hallucinations of hearing, we know now that one in eight or ten of the population has had such an experience and that for insanity we must resort to other tests than these.”

James stated that there is no end to the possible types of obsessions that we see all around us. What benefit can such experiences have? James wrote about Henry Borg, founder of the American Society for the Prevention of Cruelty to Animals in 1866; Charles Henry Parkhurst, a Presbyterian clergyman and reformer who held a New York City pastorate from 1880 to 1918 and who launched a furious attack on organized crime in state government that led to an official investigation; Dorothea Dix, a mid-19th-century humanitarian who visited the insane asylums and successfully advocated for legislation to improve the care for those labeled mentally ill.

Later, James stated, “Individuals are types of themselves and enslavement to conventional names and their associations is only too apt to blind the student to the facts before him.”

James concluded that,

“Any peculiarity that is of use to a man is a point of soundness in him, and what makes a man sound for one function may make him unsound for another. Moreover we are all instruments for social use, and if sensibilities, obsessions and other… peculiarities can so combine with the rest of our constitution as to make us the more useful to our kind, why, then, we should not call them in that context points of unhealthiness, but rather the reverse . . . The trouble is that such writers [pathologizers]. . . use the descriptive names of symptoms merely as an artifice for giving objective authority to their personal dislikes. The medical terms become mere appreciative clubs to knock a man down with. . . . The only sort of being, in fact, who can remain as the typical normal man, after all the individuals with degenerative symptoms have been rejected, must be a perfect nullity… Who shall absolutely say that the morbid has no revelations about the meaning of life? That the healthy minded view so-called is all?”

Virginia WolfTo illustrate what James means here, consider an article in the American Journal of Psychiatry (May, 2004), titled “Virginia Woolf (1882-1941).”  Although she is described by psychiatrists as having bipolar disorder, her diaries and letters, document movingly, her emotional extremes and her capacity to savor the “ordinary rhythms of life.”  At times Woolf railed against her distressing emotional experiences, felt frustrated and impeded by them, and at other times she felt it was essential to her.  In diaries and letters, she returned to the question repeatedly without reaching a resolution: were her emotional experiences a terrible obstacle to her art, or were they the necessary condition for it?

For those trying to sell psychiatric drugs, a simplistic answer to this question is eagerly promoted.  Science has not provided a definitive answer to this question as far as I am concerned, and throwing around phrases such as “the brain is malfunctioning in depression,” or “the brain has a chemical imbalance in depression” goes way beyond the available evidence.

peanuts and suffering

Psychiatric labels are like masks held on by rubberband straps.  They hide some of the characteristics of an individual.  Wearing such masks may serve some purposes, but after a while they start to get uncomfortable for many, particularly around the ears.  Let those who want to wear these masks be free to do so.  But let those who want to meet us face to face, also be free to do so.

——————————-

Some people will enjoy reading this blog by beginning with the first post and then moving forward to the next more recent one; then to the next one; and so on. This permits readers to catch up on some ideas that were presented earlier and to move through all of the ideas in a systematic fashion to develop their emotional and social intelligence. To begin at the very first post you can click HERE.