Jeffrey Rubin grew up in Brooklyn and received his PhD from the University of Minnesota. In his earlier life, he worked in clinical settings, schools, and a juvenile correctional facility. More recently, he authored three novels, A Hero Grows in Brooklyn, Fights in the Streets, Tears in the Sand, and Love, Sex, and Respect (information about these novels can be found at http://www.frominsultstorespect.com/novels/). Currently, he writes a blog titled “From Insults to Respect” that features suggestions for working through conflict, dealing with anger, and supporting respectful relationships.
Recently I came upon an article in the October 2019 edition of the American Psychologist about using timeouts with children from 2 to 8 years of age. As a grandfather, it caught my attention.
According to the authors, Mark R. Dadds and Lucy A. Tully, the use of this technique is quite controversial. Well, it just so happens I love dealing with controversial issues. Though it often leads to some nasty insults flying my way, it gives me the opportunity to practice avoiding throwing insults back, and modeling a more respectful style.
The Controversy
What does this controversy look like? Well, let’s begin by looking at an article published in Time magazine titled, “Time Outs Are Hurting Your Child.” Here we learn from the authors, Daniel J. Siegel and Tina Payne Bryson, that:
“The problem is, children have a profound need for connection. Decades of research in attachment demonstrate that particularly in times of distress, we need to be near and be soothed by the people who care for us. But when children lose emotional control, parents often put them in their room or by themselves in the “naughty chair,” meaning that in this moment of emotional distress they have to suffer alone.”
Contrast this position with one expressed in an article published in the Washington Post titled, “Timeouts Get a Bad Rap, But They Work — When Used Correctly.” Its author, Camilo Ortiz wrote, in part:
“The effectiveness of timeouts has been proven through decades of research, including work in the field of “behavioral parent training,” in which professionals teach parents a set of effective techniques. These techniques — a combination of reinforcement of appropriate behavior, effective commands, timeouts and other consequences — are usually used with children who exhibit moderate to severe disruptive behavior, but they have also been shown to be effective with children demonstrating less severe behavior.
Apparently, part of the controversy is due to the timeout technique being employed in different ways. Consider a parent who says she uses time out with her 5-year-old daughter. Then, when we watch her using the technique, we discover that whenever her daughter acts in any way that is annoying her, she begins to scream, shoves her into her room, while shouting, “You better shut-up you little brat!” She keeps her alone in her room for an hour.
Now consider another mother who says she uses timeouts with her 5-year-old son. This time, when we watch what she actually does, we see that she uses it along with a much larger set of discipline techniques that she learned from reading the manualized and evidence-based parenting program titled, The Incredible Years. Because she has a number of tools to teach her child to learn how to behave in effective ways, she only uses timeouts on rare occasions, lasting only 5 minutes, and targeting just one behavior during a period of a few weeks until her child has learned a new positive behavior pattern to replace the negative behavior pattern. Then, slowly, she incorporates the technique for teaching another behavior pattern. She never tells her child to stop doing the negative behavior pattern, but instead, she explains, as best that she can, what behavior pattern would be better, and explains why it would be better. When she sends her child to timeout, she does so in a calm, supportive voice, and remains in the same room with him. Prior to carrying out this approach, she has discussed with her child this technique, explaining that learning a new skill takes time, and timeout will help him to learn to act in a manner people will respect. She emphasizes throughout the process that she loves him, and expresses confidence that he will master the new skill soon.
So, here we see two parents believing they use timeouts with their child, but both use dramatically different approaches. I used timeouts with my two sons when they were very young in an even different way. I’ll describe this other approach shortly, but, for now, my main point in this section is that part of the controversy has to do with the fact that when people say they use timeouts, without finding out more details about how they use it, a great deal of misunderstanding can ensue.
Back to the American Psychology Article
Dadds and Tully, the authors of the American Psychologist article I mentioned at the beginning of this post, say that for them the definition of timeout is, “…a parenting strategy in which a child’s access to rewards, usually parental attention, is temporarily removed contingent upon a problem behavior and reinstated following a specified period of nonproblem behavior.”
Removing access to rewards is a type of punishment, and research on punishment indicates it leads to variable results, sometimes good, sometimes bad. Dadds and Tully appear to hope to mitigate any bad results by advocating that rather than using timeout as a stand alone strategy, its use “must be part of a broader behavior program that promotes a warm and rewarding relationship, and explicitly teaches alternative positive child behaviors to replace the problem behavior to improve the child’s self-efficacy in meeting their own needs.”
These authors, reviewing the research evidence, conclude that timeout, when used as they describe, can promote a child’s mental health and that there is an absence of evidence showing it is harmful after five decades of research. Meanwhile, inappropriate parental discipline strategies have been, and continue to be implemented in the name of “timeout,” and these are potentially harmful.
Now, before moving on, let me be clear that I am not disputing the research findings presented by Dadds and Tully. That said, my wife and I nevertheless used with our two sons when they were young a strategy that I viewed as timeout, but it differed in important ways from their approach. I think that difference is worth considering.
How I Used Timeouts
Like the authors in the American Psychologist article, I used timeouts as part of a broader child rearing strategy. However, unlike them, when I did use it, I did not seek to remove my child’s access to rewards, or any other type of punishment.
I have described my broader child rearing strategy in earlier posts (see HERE and HERE) Very briefly, it involved identifying what I wanted each of my two sons to do better and explaining to each of them why it would be better. If one or the other, did not succeed immediately in doing it just right, and began to resist, sometimes he would flare up in anger. When a situation of this kind occurred and he was all tense and excited, I would drop the subject and direct his attention to something else. Then, a little later on, I would bring it up again when he was in a calm mood. As likely as not, he would go over it now without any difficulty.
Another part of my strategy was, whenever possible, to teach my sons to improve their behaviors by focussing on the notion of a good. As William James, the great psychologist and philosopher, described using this approach with children:
Get them habitually to tell the truth, not so much through showing them the wickedness of lying as by arousing their enthusiasm for honor and veracity. Wean them from their native cruelty by imparting to them some of your own positive sympathy with an animal’s inner springs of joy.
We would celebrate success, rather than punish less than ideal behavior. And we had family meetings to discuss how we could improve how things were going in our home. My wife and I would first ask our sons what plan they suggest to solve a problem. Even if we thought the plan was less than perfect, we would often support giving it a try for a week. Then, if problems of the plan did occur, it would be discussed at the next meeting.
By using our sons’ plans as much as possible, they would be so intent on proving it can work, they would make it work despite flaws. As parents, our goals were to encourage our kids to understand that we were willing to listen to them, and we valued what they had to say. It was also important to us to foster in our boys sufficient self-efficacy in coming up with solutions that they could successfully implement, rather than always relying on authorities.
Finally, I am a big believer in teaching through stories. When an issue came up, I would either rely on a story I had heard, or make one up, designed to help them to consider better approaches to resolve certain problems. And I had both my boys read my three novels that have, embedded in their relatable narrative, a variety of issues regarding kindness and acting in ways that foster respect from others.
Now, because of these approaches, my wife does not recall using timeouts, and I rarely used it. When I would, it was not designed to teach them to improve their behavior. It occurred when someone nearby was having a hard time tolerating something one or both of my sons was doing.
For example, I might come home from work and my wife would say, “Jeff, could you get the kids away from me, I’m preparing dinner and they keep screaming.” So I would take them outside if it was nice out, or up to their room, while explaining, “Mom needs some quiet time.” Then when we would get to the quiet place, I would ask if they wanted some “quiet time” themselves, or did they want me to stay. They always said they wanted me to stay. We would then do something fun.
Note that in contrast to the American Psychologist article I discussed earlier, my use of this type of timeout was not intended to take away some valued reward. Rather, I would seek to do something pleasant with them. At some point, when all was calm, I would ask gently, “When you were making all that noise near Mom, had she asked you to quiet down?” I would then listen to their responses and gently ask what they could do better if a similar situation comes up in the future? When they were very young, sometimes they blamed someone other than themselves for what happened, and I would frown. Sometimes they responded in a manner that took responsibility for their actions, and I would say how much I appreciated what they had said.
As another example, when we were in a restaurant, if one of my boys began to make too much noise, I would take him outside, and explain that people who go to restaurants typically prefer to eat in a pleasantly quiet atmosphere. I would then explain that when he was ready to go back and speak softly we could enjoy a nice family meal together. Typically, in less than five minutes, we would be back at our table.
Now, what I just described, was the general discipline plan. That said, neither I, nor my wife always stuck perfectly to it. We did pretty good, but we both did lose our temper from time to time. When calm returned, I would say at a family meeting that I wished I had handled the situation better. I would also explain that sometimes even adults are not always perfect, and when I raised my voice in anger, if they thought it meant I don’t love them, actually I love them a whole lot.
Let me be crystal clear, I do not have any research evidence that suggests my approach is distinctly better than any of the others that uses timeout along with a broader discipline approach. All I can say for it is that it felt more right to me as I went through the period of my life when I parented on a daily basis, and though I’m obviously biased, as far as I’m concerned, both my boys, now in their thirties, turned out to be fine young men.
Well, there you have it, some thoughts on the controversy surrounding timeouts. I hope you find something helpful in some of the ideas that I shared, and please feel free to share your ideas with me and all of the followers of this blog.
Jeff
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Some people will enjoy reading this blog by beginning with the first post and then moving forward to the next more recent one; then to the next one; and so on. This permits readers to catch up on some ideas that were presented earlier and to move through all of the ideas in a systematic fashion to develop their emotional and social intelligence. To begin at the very first post you can click HERE.
Welcome to From Insults To Respect. Today’s topic involves life and death issues.
When some people become concerned about their emotions, moods, behavior, or the ups and downs of life, they often seek professional mental health services. If they go to someone in the medical profession, they typically find that after a visit of somewhere between ten minutes to an hour they have been labeled as having a mental disorder and then are prescribed one of the psychiatric drugs, or even a whole cocktail of them. This pattern of dealing with such concerns leads, in some circles, to a conflict. Some involved in the conflict think that the pathologizing of these very human experiences and the encouraging of the use of drugs to manage them is the very opposite of a healthy approach. Meanwhile, other people feel that drug treatment for these types of concerns are enormously helpful, and anyone questioning this position is irresponsible. Insults have been known to fly back and forth from people on both sides of this conflict.
Now it just so happens, I have extensive training in the biological, psychological, social, and cultural factors that influence emotions, moods, and behavior. I have also taken specific coursework in psychopharmacology, statistics, and evaluating research methodology. To my dismay, after studying the relevant research, I have found that the current psychiatric medical approach for addressing these types of concerns appear to be causing far more harm than good. Please don’t misunderstand me. I do think the medical model can be enormously helpful when it comes to treating such problems as lesions, tumors, microbe infections, bone fractures, tissue tears, and body organ blockages. It is the psychiatric medical model that I have found seriously flawed. You can hear me, for free, being interviewed on this topic by the insightful Emily Whyte Rubin on a recently recorded Feeling Deeply podcast by clicking HERE.
Whenever I share my conclusions on this topic, I have found, at times, insults flying my way. This occurs even though I really don’t have a conflict with those who accept unquestionably the medical model for addressing psychological concerns.
You see, when I look to see if someone has a conflict, I think of the word DIG. This reminds me to dig to find what the person DESIRES in this situation, what is INTERFERING with the person’s desire, and whether or not the person believes someone is GUILTY of doing something wrong.
Being guilty, as I use the term, means the person would be deserving of some punishment, such as being insulted.
So, from my perspective, I do have a desire-incompatibleproblem with those who support the psychiatric medical model because I desire that they stop pathologizing these concerns and stop advocating that people take psychiatric drugs. However, I don’t view them as guilty for the position that they have come to accept. I believe that they mean well. I seek to treat them respectfully, while doing my best to advocate that they change their minds.
That’s not to say that I advocate that those people already taking these drugs should immediately stop taking them. There are some physiological withdrawal effects that occur if someone suddenly stops, which some experience as awful. If some of you who have been taking these drugs decide that you want to try to wean yourself off, a good resource to help can be accessed HERE.
Although I don’t have a conflict with those who believe in the psychiatric medical approach, I do find that as I go about advocating for my own view on this issue, many with opposing views do end up having a conflict with me.
There are, however, other people who do support the psychiatric medical model, and yet, like me, treat people with opposing views respectfully. Today’s post comes out of one such respectful discussion. This person, without insulting me, defended his support of the psychiatric drugs by claiming that all of the research clearly indicates that the “antipsychotic” drugs, when used by people diagnosed as having schizophrenia, decrease the risk of dying. I then, very respectfully, asked that he supply me with the references that he is relying on to make his assertion, and within a very brief period, he did just that.
Since this is a public forum, and since I will be critiquing his position, it strikes me as unkind to mention his name. However, despite this being a public forum, I do invite him, and anyone else, to critique anything I say in this, or any of my post.
With that said, let us move on to my critique.
What Evidence Exists For Informing Us As To Whether or Not These Drugs Reduce The Risk of Dying
Prior to looking at the articles that the respectful criticizer of my position provided to defend his belief that the “antipsychotics” reduce mortality for people being treated for schizophrenia, let’s first look at some relevant research studies that he left out. You will note that each time I use the term “antipsychotics” I put it within quotation marks. This is to help remind readers that these drugs do not work like antibiotics, which are designed to kill bacteria that have infected an organism. Nor am I at all convinced that these drugs work to counter any of the causes that lead someone to be given a psychotic label.
The Studies That Were Left Out
Patients diagnosed as having schizophrenia have a 15-20 year shorter life expectancy than the general population, according to a 2014 study published in the Annual Review of Clinical Psychology titled “Excess Early Mortality in Schizophrenia.” Just in case there is any confusion of what “mortality” means, it means risk of death.
Earlier studies suggested that part of the reason for these early deaths might be due to the “antipsychotic drugs” that these patients are prescribed. For example, in 2006, the British Journal of Psychiatry published an article titled “Schizophrenia, Neuroleptic Medication and Mortality.” “Neuroleptic medication” is another name used to refer to “antipsychotics.” The authors found that over the 17-year follow-up period of their study there was a graded relationship between the number of “antipsychotic” drugs prescribed and mortality of those with schizophrenia.
Adjusted for age and gender, people with schizophrenia taking either no “antipsychotic,” one, two and three or more antipsychotics had relative mortality risks of 1.29, 2.97, 3.21, and 6.83 respectively. Said in a simpler manner, individuals who were labelled as having schizophrenia who did not take any “antipsychotic” drugs had the least chance of dying during the 17-year follow-up period, compared to the other patients who were labeled as having schizophrenia but were taking “antipsychotics.” If the patients took just one of the “antipsychotic” drugs, they were more likely to die, and if they took more than one “antipsychotic” drug, they were even more likely to die. The association remained stable throughout the observation period.
The authors note that it has been claimed that the contemporary high natural mortality in schizophrenia results from a variety of lifestyle factors. Of these factors, the study that they did was able to consider several (smoking, exercise, body mass index, blood pressure, serum total and HDL cholesterol). After adjustment for these factors the excess mortality of people with schizophrenia persisted. The association with “antipsychotics” and mortality was, according to the authors, very clear.
A 2007 study was published in the Archives of General Psychiatry titled “A Systematic Review of Mortality in Schizophrenia: The Differential Mortality Gap Worsening Over Time.” The authors wrote:
Mental health services have advanced in many parts of the world during the past few decades. Apart from a different mix of community-based care, the introduction of the second-generation antipsychotic medications [also referred to as atypical antipsychotics] in the early 1990s was initially found to be associated with better quality of life and reduced risk of relapse.77–79 More recent trials have questioned the clinical superiority of second-generation antipsychotic medication,80,81 and concern is now widespread about the adverse effects associated with these medications.82 In particular, compared with typical antipsychotics, several of the second-generation antipsychotics are more likely to cause weight gain and metabolic syndrome.83 Because the metabolic syndrome is associated with a 2- to 3-fold increase in cardiovascular mortality and a 2-fold increase in all-cause mortality,84 these adverse effects would be expected to contribute to even higher SMRs [Standard Mortality Ratio] in the next few decades.85,86
During the 1970s through the 1990s, the authors note, mortality rates were improving for the general population. In contrast to this general trend, mortality of those classified as having schizophrenia was trending in the opposite direction. The median SMR for those diagnosed in the 1970s, 1980s, and 1990s were 1.84, 2.98, and 3.20, respectively. The higher the SMR, the higher the rate of mortality.
This study also indicates that the use of “antipsychotics” that are prescribed for people diagnosed as having schizophrenia is least for the least developed countries, while countries with emerging economies use a little more, and the developed countries use the most. Here are the SMRs for these patients: the median all-cause SMRs for least developed, emerging economy, and developed countries were 2.02, 2.19, and 2.79, respectively.
The authors conclude,
Adverse health outcomes associated with weight gain and/or metabolic syndrome (eg, myocardial infarction, cerebrovascular accidents, or cancer) may take decades to fully emerge. Thus, it seems likely that studies undertaken in the 1990s (ie, the most recent studies included in this review) would capture only a small fraction of the eventual burden of mortality associated with the adverse effect profile of the second-generation antipsychotic medications. In light of the rising secular trends in SMRs already identified by this review, the prospect of further increases in mortality risks for schizophrenia is alarming.
The following year, 2008, a study published in the journal Epidemiologic Reviews, titled “Schizophrenia: A Concise Overview of Incidence, Prevalence, and Mortality,” found further evidence that supported the 2007 Archives of General Psychiatry concerns.
In 2009, another study looked at the relevant research, this one appearing in the journal Schizophrenia Research. Titled, “Influence of Antipsychotics On Mortality in Schizophrenia: Systematic Review,” it concluded, “There is some evidence that long-term exposure to antipsychotics increases mortality in schizophrenia. More rigorously designed, prospective studies are urgently needed.”
Also in 2009, there was a relevant study published in the prestigious New England Journal of Medicine. Titled, “Atypical Antipsychotic Drugs and the Risk of Sudden Cardiac Death.” It first reviews the relevant research regarding the “typical” antipsychotic drugs and concludes that there is extensive data linking them to an increased risk of sudden cardiac death. It then notes that less is known about whether the same risk is associated with the newer second generation “antipsychotic” drugs often referred to as atypical antipsychotics. After doing the best that these researchers could do to match the users of this type of drug with those who were not users, they found that the atypical drugs had an adjusted rate of sudden cardiac death that was twice that for nonusers and that this did not differ significantly from the rate for users of the typical “antipsychotic” drugs. Moreover, users of each of the six most frequently prescribed antipsychotic drugs had a significantly increased rate of sudden cardiac death, and the risk of sudden cardiac death increased with an increasing dose among current users of typical or atypical antipsychotic drugs.
The researchers conclude, “Our data show that in a large retrospective cohort of adults, current users of the atypical antipsychotic drugs had a dose-dependent increase in the risk of sudden cardiac death that was essentially identical to that among users of the typical agents.”
The researchers mention some limitations of their study:
The primary limitation of our study is the potential for confounding by factors associated with the use of antipsychotic drugs. For persons with serious mental illness, these factors include cardiovascular and other somatic disease; concurrent use of other proarrhythmic medications; mood disorders; behavioral risk factors, including substance abuse, poor self-care, and smoking; and other effects of mental illness.12 However, both the study design and analysis included several provisions to manage confounding.
In 2010, the British Journal of Psychiatry published a study titled “Twenty-five Year Mortality of a Community Cohort with Schizophrenia.” Here, data from 1981 to 2006 was examined. The authors concluded that:
This study suggests that the natural cause mortality of schizophrenia is increasing, a finding that must be of concern to everyone involved with this disease. Further large-scale long term follow-up studies are needed to establish the reasons behind this increase and to suggest useful interventions.
So, taken together, these studies express concern about patients classified as having schizophrenia dying at an earlier age than the general population. Moreover, because the newer generation of “antipsychotics” are more likely to cause weight gain and metabolic syndrome, clear risk factors for increasing the risk of early death, the theory that the “antipsychotics” may be a significant factor for some of these early deaths has been discussed in several peer reviewed journals. Several studies provided evidence for this theory.
The Studies That Were Cited By The Person Who Criticized My Position
Recall that what prompted the respectful critique of my position was my opinion, derived from reviewing the research, that the “antipsychotics” appear to cause more harm than good, particularly in the long run. As science writer Robert Whitaker summarizes this research:
“The drugs are supposed to provide the benefit of reducing psychotic symptoms. But the research reveals that, over the long term, this benefit turns into a negative, and so, over the long-term, there are only negatives to be chalked up: the increased chronicity of psychotic symptoms, the impaired functional outcomes, the worse cognitive functioning, and, of course, a broad range of “side effects,” such as tardive dyskinesia, metabolic problems, sexual dysfunction, and so forth. Such is the bottom-line arithmetic that makes the case against antipsychotics.”
For a free PDF that fully reviews the evidence for Whitaker’s above statement, see HERE.
At the time that I heard from my respectful criticizer, I had really not fully examined the existing evidence that bears on his theory that this class of drugs actually decrease the risk of dying.
Robert Whitaker
My first approach to looking into this was to contact Robert Whitaker to see if he had heard about that theory and whether he knew of any evidence to support it. He replied:
I intend to write about this idea that antipsychotics reduce mortality as soon as I get time. Antipsychotics of course cause all sorts of adverse effects associated with increased mortality. Bob
Disappointed, but undeterred, I decided to do a Google Scholar search to see what relevant research studies I could find, and above I summarized the evidence that the drugs actually increase the likelihood of a person dying. Then I retrieved all of the studies that my respectful criticizer provided that he said supports his contention. Below, I shall critique each and every one of them. But in doing so, the length of this post becomes quite a bit longer than most of my readers are willing to read. So, for their sake, I will first summarize the whole group of them, and for readers who want to delve into my critique of each specific study mentioned by my respectful criticizer, they can do so.
My Summary
The first study on my critic’s list used a meta-analysis approach that looked at 596 studies, all of which looked at patients that were randomly assigned to either an “antipsychotic” or a placebo for 13 weeks or less. For the patients in this analysis that had been labeled as having schizophrenia, there was no statistically significant difference in mortality between the two comparison groups.
Upon reading this article, I was left puzzled as to why this article was included in my critic’s list. As I have said, his contention was that every research paper published demonstrated “antipsychotics” decrease mortality for schizophrenia labeled individuals. Rather than supporting his position, this article supports the theory that given the evidence that the “antipsychotic” drugs have a number of serious side effects, and once started, physiological withdrawal effects can be awful, it is prudent to safely hold off on the use of these drugs for at least 13 weeks to see if some patients will begin to recover without them. Despite this evidence, I am under the impression from dialogues with many psychiatric patients that the standard practice is to prescribe these types of drugs within somewhere between 10 minutes to an hour after the patient is first brought to the attention of a prescribing doctor.
Before moving on, I would like readers to note that this was the only randomized controlled study on my critic’s list of references that he said supports his position. The rest of the studies compared different groups of patients that were not randomly chosen to be in each of the groups. These studies compared a group of patients described as not taking “antipsychotics,” with others said to be either taking just one of them, more than one, different dosages of them, or another drug such as a benzodiazepine. Without random placement to each of the groups, these studies, from a scientific point of view, cannot speak to whether it was the prescribed drug that was the cause of the different rates of mortality, or other reasons. This is an essential point to keep in mind.
Even when a study does have random assignment to each of the different comparison groups, it is quite common that when researchers try to replicate its findings by doing another similar study, very different results occur. This inability to always replicate such studies occurs for a variety of reasons. First, random assignment only increases the likelihood, but does notguarantee, that the different groups being compared will be so similar prior to any intervention that any difference found after the intervention is due solely to the different interventions each group does or does not receive. Thus, with random assignment the pre-intervention groups can end up quite different. When this happens, the researchers can end up attributing any difference between the groups after the intervention to the intervention when the difference might be due to the groups being poorly matched prior to the intervention. A second reason why random assignment studies are not perfect is, those who did the experiment may report the results incorrectly because of a mistake, subconscious biases, or monetary motivations that lead to bending the truth.
Now, I am not faulting researchers for trying to get some relevant evidence using the nonrandom assignment to groups methodology. Although random assignment to groups is considered the gold standard, carrying out long-term studies with psychiatric patients is almost impossible. Patients who are assigned to take the drugs often don’t take them, or don’t take them as prescribed, and the longer the study, the more likely this will happen. A significant number of patients wander off and can’t be found at various follow-up points. Many doctors refuse to participate in long-term studies that utilize a placebo group believing it is unethical to withhold a promising treatment for such a long period of time when they see their patients suffering; and over the decades newer, more promising interventions come along, so to continue to use the drugs that were popular at the start of the study would be considered unethical.
So, given the absence of long-term random assigned studies, some weaker methodologies make sense but it is crucial to be very tentative in drawing any conclusions.
The most important finding from the set of nonrandom to groups studies my critic provided, from my perspective, came out of a 2009 study. There we find that patients that were on “antipsychotics” for less than 6 months had a lower rate of dying than those who were on the drug for longer periods. The authors note this in the results section of their article with a single sentence, stating,”Patients who used antipsychotics for less than 6 months had especially low mortality rates.” This is accompanied by a graph showing this. Then, in the discussion section, the authors again mention this in a single sentence.
If you read just the abstract of the article, as many practitioners do because time reading research studies is not billable, you would find no mention of this statistically significant finding, a finding that could have life saving implications. And this finding can easily get lost in the numerous paragraphs of the study which focused instead on the evidence that those on the drugs for longer periods had a lower mortality than those who were said to be in the “no antipsychotic group.” However, the vast majority of the patients said to be in the “no antipsychotic group,” and probably all of them, actually were on these drugs at various points throughout the study. While they were hospitalized, they were almost certainly on the drugs, according to one team of researchers who had engaged in a similar study using the same data set, and many were hospitalized multiple times. What the researchers actually meant by labelling the group the “no antipsychotic group” were patients who didn’t take them each time they were released from the hospital. Thus, each time they left the hospital, they were suffering from withdrawal reactions.
There are a number of other serious problems with the design of these types of studies that was chronicled in a peer reviewed article that came out shortly after the 2009 study, including incomplete reporting of data, questionable selection of drug groups and comparisons, important unmeasured risk factors, inadequate control for potentially confounding variables, exclusion of deaths occurring during hospitalization leading to exclusion of 64% of deaths on current “antipsychotics” from the analysis, and survivorship bias due to strong and systematic differences in illness duration across the treatment groups. The writers of this critique concluded:
It is likely that many of these patients died from the effects of suicide or cardiovascular disease while admitted to a hospital. As this approach likely underestimates mortality in patients treated with antipsychotic medications, this critical methodological factor might help to explain why the previous literature arrived at different findings with regard to antipsychotic-related mortality risk.
Another huge problem with these types of studies is this: 90% of the patients at the end of them were still living. Thus, it is very possible that although a relatively higher percentage of patients not taking “antipsychotics” during periods when they were not in the hospital died when compared to the other patients during the five to eleven year periods that were looked at during the course of these studies, we still don’t know what would have happened if we could have looked at what age all of these patients ended up dying. The added risk factors that come with ingesting these drugs, such as weight gain and metabolic syndrome, may not exert their influence on mortality rates until a longer period of time.
And yet another major problem with concluding from these studies that the “antipsychotics” reduce the risk of dying is this: It appears from one of these studies that schizophrenia patients during the time frame looked at had no increased risk of having a diagnosis of treatable nonfatal ischemic heart disease or cancer but had a far greater risk of dying from these conditions, suggesting substantial underdiagnosis and/or undertreatment.
This presents the theory that when compared to those patients in the other comparison groups, the group of individuals who did not take “antipsychotics” when they were not hospitalized may have had a higher percentage of members who not only avoid “antipsychotic” treatment, they also avoid all medical treatment. With this theory, it is not taking the “antipsychotics” that protects the patients from dying, but rather it is the increased likelihood that more “antipsychotic” compliant patients are more likely to comply with all medical treatment. Said another way, with this theory, we have less of a reason to conclude “antipsychotics” provide some protection from dying from these conditions; rather, it is this non-compliance to all medical treatment characteristic of some in the “no antipsychotic” treatment group that is the real cause for the statistical increased rate of death for those in this group during the relatively short window of time that these researchers were able to peek into.
In considering how dependable the evidence is from this entire set of studies, it is worthwhile to look how frequent they came up with contradictory findings. A few of the studies, for example, found a statistically significant decreased risk of suicide for those taking “antipsychotics” when compared to the so called “no antipsychotic” group, while another study that looked at the same data set found no significant difference. One study found a significant reduction in risk of dying when the patients used the “antipsychotic” clozapine, whereas another study did not find this, and found instead that clozapine was one of the drugs that appeared to slightly increase the risk of dying. A couple of studies found that even patients who took the highest doses of “antipsychotics” had a similar risk of dying when compared to a moderate dose, while another found the highest dosed patients were at an increased risk of dying. Thus, anyone making firm conclusions based on these types of studies is trying to build a house on shifting sands.
One finding in the set of studies provided by my critic is that a common way to prescribe “antipsychotics” is to prescribe it along with a benzodiazepine, a pill that has some similarities to ingesting alcohol. In one study, nearly 40 percent of the patients were prescribed a cocktail of both drugs, and these patients had a statistically higher likelihood of dying than those who were just prescribed an “antipsychotic.” Making the case stronger that the benzodiazepines were causing the increased risk of death was that the higher the dose of this drug, the higher the rate of mortality.
So, my very tentative conclusion is that the weight of the evidence suggests that in the short run (13 weeks or less) the “antipsychotics” do not significantly affect mortality rates for patients labeled as having schizophrenia. Those patients who are on “antipsychotics” for more than 6 months are at a statistically significant increased risk of dying compared to those who were on this type of drug for shorter periods. There is some weak evidence that “antipsychotics” may provide some protection from dying for those patients taking them for periods of from 6 months to less than 11 years when compared with patients who come off the drugs each time they leave the hospital, but interpreting this statistically significant finding in that way is highly problematic for the numerous reasons that I mentioned above. For patients taking these drugs for longer periods of time, the available data suggest real concerns that these drugs significantly reduce the lifespan of patients.
Finally, all of the studies that provide some support for the theory that, “antipsychotics” reduce the rate of death had researchers with either pharmaceutical company conflicts of interest or were members of departments of psychiatry, the very profession that relies heavily on earning income by prescribing these drugs. It seems to me that given that the issues being studied have life and death consequences, there is an urgent need for high quality studies that are carried out by epidemiologists with no ties to psychiatry or the pharmaceutical companies.
I now provide a description and critique of all of the studies provided by my respectful criticizer.
First Study
The first study that appears on his list was published in The Lancet in 2018, and titled “Second-generation Antipsychotic Drugs and Short-term Mortality: A Systematic Review and Meta-analysis of Placebo-controlled Randomized Controlled Trials.” It utilized a meta-analysis approach that looked at 596 studies, all of which had patients that were randomly assigned to either an “antipsychotic” or a placebo for 13 weeks or less. Here’s how its authors summarized their findings:
Overall, and for the main indication of schizophrenia, there is no evidence from randomised trials that antipsychotic drugs increase mortality. However, vulnerable populations (particularly patients with dementia) might be at increased risk. This meta-analysis could only address acute treatment effects leading to death in the short-term, and not long-term effects of antipsychotic drugs on mortality.
Second and Third Study
These two studies were carried out by the same team of authors and applied a similar methodology using a data base from Finland. The first of these is titled, “Effectiveness of Antipsychotic Treatments in a Nationwide Cohort of Patients in Community Care After First Hospitalisation Due to Schizophrenia and Schizoaffective Disorder: Observational Follow-up Study,” and was published in 2006 in the British Medical Journal. It looked at a nationwide cohort of 2230 consecutive adults hospitalized for the first time because of schizophrenia or schizoaffective disorder, from January 1995 to December 2001. All of the patients had been hospitalized at various points in time, and during their hospitalization, no record was kept to see if while they were there they had been placed on antipsychotics and/or other drugs. Those patients who chose not to fill their prescriptions whenever they left the hospital were said to be in the no antipsychotic group. However, it is very possible that many of the patients in this group had repeatedly gone into a hospital for various periods of time and while there were placed on an “antipsychotic,” or a cocktail of “antipsychotics” and other drugs, and each time they were discharged they went through drug induced withdrawal reactions.
As we will see, there is a number of other serious problems with this study, but let’s get to the authors of this study’s conclusion:
Patients who currently took any antipsychotic drug had decreased mortality compared with the no treatment group. However, not using antipsychotic drugs may be a marker of other conditions that affect the risk of mortality.
Moving on to the other Finland study by this team of authors, it was published in 2009 in Lancet and titled “11-year follow-up of mortality in patients with schizophrenia: a population-based cohort study (FIN11 study).” As I mentioned, it is very similar to the previous Finland study, but extends the follow-up period an extra few years. Both studies have very similar results. Those who are labeled as not using any “antipsychotics” but probably did use them when they were in the hospital, had relatively higher rates of death than most of the other comparison groups. However, the patients that had the lowest rate of deaths were those in the group labeled as using “antipsychotics” for less than 6 months. In the main body of the journal article the authors note this in a single sentence, stating,”Patients who used antipsychotics for less than 6 months had especially low mortality rates.” There is a graph that illustrates this. It does repeat this again in another single sentence in the “Discussion” section of the report. Nothing else in the write-up of the report bothers to discuss this, and it can easily get lost in the numerous paragraphs defending the evidence that those on the drugs for longer periods had a lower mortality than those who were in the “no antipsychotic group” even though all of those patients in that group had probably been on such drugs each time they were hospitalized, and were only not taking them each time they were released from the hospital.
Dr. Jari Tiihonen
Note that the lead author of both of these articles is Dr. Jari Tiihonen. In the conflict of interest section of these studies it indicates he has served as a consultant, adviser, or speaker for AstraZeneca, Bristol-Myers Squibb, Eli Lilly, GlaxoSmithKline, Hoffman-La Roche, Janssen-Cilag, Lundbeck, Novartis, Organon, Otsuka, and Pfizer, which are all major pharmaceutical companies.
Dr. Tiihonen, along with the other authors of the article, did mention that although this study lends some support for the theory that, “antipsychotics” may lead to a reduced rate of mortality over an 11-year period, “a longer time might be needed for some adverse events to become apparent.” I applaud them for recognizing this.
Now, I can certainly understand why my respectful critic included these two articles on his list because it appears to offer some support for his position. That said, I am puzzled why he did not include the powerful critique of them that appeared after the 2009 study. It is titled, “Do antipsychotic medications reduce or increase mortality in schizophrenia? A critical appraisal of the FIN-11 study,” and appears in the peer reviewed journal Schizophrenia Research. Although it says in the title that it is critiquing the 2009 FIN-11 study, in the body of the article it notes that the same problems exist in the 2006 article. What are those problems? Here’s a summary that appears in the critique:
A number of methodological and conceptual issues make the interpretation of these findings problematic, including incomplete reporting of data, questionable selection of drug groups and comparisons, important unmeasured risk factors, inadequate control for potentially confounding variables, exclusion of deaths occurring during hospitalization leading to exclusion of 64% of deaths on current antipsychotics from the analysis, and survivorship bias due to strong and systematic differences in illness duration across the treatment groups….
It is likely that many of these patients died from the effects of suicide or cardiovascular disease while admitted to a hospital. As this approach likely underestimates mortality in patients treated with antipsychotic medications, this critical methodological factor might help to explain why the previous literature arrived at different findings with regard to antipsychotic-related mortality risk (Osborn et al., 2007; Weinmann et al., 2009).
Arguably, the biggest problem with the two studies that used the Finland data is this: 90% of the patient’s at the end of this study were still living. Thus, we still don’t know what would have happened if we could have looked at what age all of these patients ended up dying.
Finally, given the life and death importance of this study, I can’t help wondering why the country of Finland did not hire epidemiologists with no ties to psychiatry or the pharmaceutical companies to carry it out.
Fourth Study
The next study on my critic’s list is titled “Mortality and Cumulative Exposure to Antipsychotics, Antidepressants, and Benzodiazepines in Patients With Schizophrenia: An Observational Follow-Up Study” and was published in a 2016 edition of the American Journal of Psychiatry. The lead author is, once again, Dr. Jari Tiihonen, the same researcher of the last two studies that we looked at and who has numerous pharmaceutical industry conflicts of interest.
Using a very similar methodology as the Finland studies, it found that over a period of 5 years the prescription of moderate or high-dose “antipsychotics” for people labeled in Sweden as having schizophrenia was associated with lower overall mortality, compared to those said to be in a “no antipsychotic” group.” For those prescribed a benzodiazepine along with an “antipsychotic,” the results were quite different in that this group had the highest likelihood of dying when compared to the other groups. Thirty-eight percent of the patients were prescribed a benzodiazepine. Common benzodiazepines are Valium (diazepam) and Xanax (alprazolam).
The problems with the study in concluding that these drugs protect people from dying are similar to the others carried out with Dr. Tiihonen. There were no randomization to groups. “Antipsychotic” drugs that may be used in hospitals were not recorded in the Prescribed Drug Register used to estimate drug use. Many of the patients in the group said to be not using “antipsychotics” very likely used them each time they went into the hospital, and each time they left the hospital they stopped using them and thus went through an awful withdrawal reaction.
There is also a concern about whether or not those patients included in groups said to be taking “antipsychotics” actually ingested them. Taking “antipsychotics” was assumed because someone, either the patient, or a family member, picked up the prescription at a pharmacy. In Sweden there is no financial cost for patients who pick up these drugs. There may have been some incentives to pick up the drugs, but once they were picked up, the patients may have tossed them in the garbage, or simply forgot to take them.
Also, as in the other two studies with Dr. Tiihonen as lead author, over 90% of the patient’s at the end of this study were still living. Recall that in the 2014 study that was not on my respectful critic’s list of references, over the course of 17 years schizophrenic labeled patients taking “antipsychotics” had died at a higher rate than those not taking “antipsychotics.” This provides some tentative support that it might take longer than 5 years, or even 11 years, before it becomes evident that patients that are on these drugs are more likely to die at an earlier age than those who don’t take them.
Given that this study was carried out after Dr. Tiihonen had done an earlier study that found patients on an “antipsychotic” for less than 6 months had the lowest likelihood of dying, it is of deep concern to me that he did not insist that his team do a similar analysis with this Sweden set of data. Could the reason be due to his conflicts of interest with the pharmaceutical industry? The loss of revenue for pharmaceutical companies that would occur if it became standard practice to not prescribe “antipsychotics” for longer than 6 months, rather than the current policy of prescribing it for an entire lifetime, would be enormous.
Fifth Study
This one was published in 2011, appears in the American Journal of Psychiatry, and is titled, “A Nationwide Cohort Study of Oral and Depot Antipsychotics After First Hospitalization for Schizophrenia.” The lead author, once again, is Dr. Tiihonen, and it looks at the same Finland data base that we discussed under the heading, “Second Study” and “Third Study.”
The major focus of this article was on comparing two groups of patients that took an antipsychotic either orally, or in the form known as “depot,” which is an injection given in a carrier liquid that releases it slowly so it lasts a lot longer. The authors looked at a period of approximately two years after initial discharge in the hospital. Many of the patients went in and out of the hospital at various times during this period, so those who are said in the study to be in the group that did not take “antipsychotics” were probably on it before they were initially discharged, and probably on them again during each of their rehospitalizations. As the authors duly note, “No information was available on the medications used in the hospital, but it can be assumed that virtually all patients had received some kind of antipsychotic treatment.” Nevertheless the authors report that the “no use antipsychotic group” had a higher risk of dying.
The problems with this finding are largely the same ones that we discussed regarding the other articles that Dr. Tiihonen served as lead author.
Sixth Study
This 2010 study, titled “Antipsychotic Polypharmacy and Risk of Death From Natural Causes In Patients with Schizophrenia: A Population-based Nested Case-Control Study” was published in the Journal of Clinical Psychiatry. It was conducted using data from Denmark. I’m not sure why my critic included this study on his list because it does not address the issue at hand. All of the subjects were on “antipsychotics” and the only relevant finding was that those who were on “antipsychotics” and benzodiazepines were at an increased risk of dying.
Seventh Study
This 2013 study, titled “Comorbidities and Mortality in Persons With Schizophrenia: A Swedish National Cohort Study,” was published in the American Journal of Psychiatry. It is pretty much the same type of study as the one’s carried out with Dr. Tiihonen and uses the same Swedish group of patients over a very similar time period as one of his studies, but here a different team of researchers looked at that data set. Again, lack of antipsychotic treatment was associated with elevated mortality. However, as hard as I looked in the article to see how the researchers defined “lack of antipsychotic treatment” I was not able to find it. As in other similar studies, most of those in the “lack of antipsychotic treatment group” were still alive, so we don’t know if they would, as a group, have begun to die at an earlier age if all were followed up until all in their group died.
Again my frustration is aroused because this study did not look to see if these patients from Sweden who were on “antipsychotics” for only 6 months or less were among those that were least likely to die, as was found by those who did look at this in the Finland data that we discussed above.
This study does add several additional relevant information than those we have so far discussed. First, in this large national cohort study, the leading causes of death were ischemic heart disease and cancer. However, schizophrenia patients had no increased risk of having a diagnosis of treatable nonfatal ischemic heart disease or cancer but had a far greater risk of dying from these conditions, suggesting substantial underdiagnosis and/or undertreatment.
This presents the theory that the group of individuals who did not take “antipsychotics” may have had a higher percentage of members who tend to avoid all medical treatment than the other comparison groups. With this theory, we have less of a reason to conclude that “antipsychotics” provide some protection from dying from these conditions; rather it is this special characteristic of some in the “lack of antipsychotic” treatment group that is the real cause for the statistical increased rate of death for those in this group during the relatively short window of time that these researchers were able to peek into.
This Swedish data is also useful for highlighting that these non-randomly assigned to groups studies can find some remarkably different results when looking at the same set of questions. Thus, in the Finland study, the lowest risk of death was associated with the “antipsychotic” drug clozapine; whereas in the Sweden study the authors reported, “we did not confirm that study’s finding of decreased mortality with clozapine, which was associated with a nonsignificant, modestly greater mortality in our study.” Moreover, unlike the Finland study that had found a statistically significant increased risk of suicide for those in the “no antipsychotic drug group,” in this Sweden study there was no significant increased risk in suicide for patients in their “lack of antipsychotic treatment group.”
Eighth Study
This 2017 study, titled “Reduced All-Caused Mortality With Antipsychotics and Antidepressants Compared to Increased All-Cause Mortality with Benzodiazepines in Patients With Schizophrenia observed in Naturalistic Treatment Settings,” was published in Evidence-Based Mental Health. This study examined the same Sweden data set as our “Fourth Study,” but utilized a different set of researchers. The outcomes were largely the same. Five years were looked at. Compared to the “no antipsychotic” group, the prescription of “antipsychotics” for people labeled in Sweden as having schizophrenia was associated with lower overall mortality, unless they were also prescribed a benzodiazepine, in which case they had the highest likelihood of dying. As in the earlier Sweden study that I discussed, inferences from this study’s findings are limited due to lack of randomization to the various comparison groups which prevent differentiation of causal from non-causal associations. This study actually does not really compare patients who took no “antipsychotics” with those who did, because all of the patients took “antipsychotics” at various points in their lives. Despite statistical adjustment for some relevant baseline variables, highly relevant variables were unaccounted for, including direct measures of schizophrenia severity, unhealthy lifestyle behaviors, degree of substance use, medical comorbitities and treatment, health service use pattern, and treatment adherence. And, of course, the study just looked at what could be observed in a five year period at which point the vast majority of the patients studied were still alive. Such studies don’t reveal what the average age of death is for those who are labeled as having schizophrenia and are taking “antipsychotics” versus those who were also labeled as having schizophrenia but did not take “antipsychotics.” Like other studies that were done after the 2009 study, this one did not bother to find out if patients that were on “antipsychotics” for less than six months was the group least likely to die during the followup period.
Ninth Study
This 2017 study, titled “Mortality and Antipsychotic Drug Use in Elderly Patients With Parkinson’s Disease in Nursing Homes,” was published in the Journal of the American Medical Directors Association. It looked at some data over a period of 18 months and does not directly address the issue under discussion. That is, these patients were elderly and had Parkinson’s Disease, rather than being labeled as having schizophrenia. For this group, prescribed antipsychotics for an 18 month period was not associated with the risk of death.
Tenth Study
This 2015 study, titled “Antipsychotic Treatment and Mortality in Schizophrenia,” was published in Schizophrenia Bulletin. It looked at the same Sweden data set as our “Fourth Study” and “Eighth Study.” Each had looked at the follow-up that began on January 1, 2006 and ended on December 31, 2010.
The study did do some statistical analyses that I was not able to identify in the earlier similar studies. For example, it found that death due to respiratory disease was highest for those in the high-dose antipsychotic group, whereas those in the no exposure group had the lowest mortality due to respiratory disease.
Also, one of its statistical analyses indicated that no medication use was associated with elevated mortality only for patients who had been hospitalized within 1 year prior to start of follow-up (ie, during year 2005), but not for patients who had never received inpatient treatment. Patients who were hospitalized were probably placed on “antipsychotics” during their stay. Those who were not hospitalized were far less likely to have ever been placed on these types of drugs at any point. Thus, this statistical finding suggests that the group of patients who really had not been exposed to these types of drugs may have been no more likely to die during this 5 year period than those who had prescriptions for “antipsychotics” and picked them up, or had a family member that pick them up at a pharmacy.
High antipsychotic use was associated with higher mortality than medium use. Mortality risk increased more in women than in men with high antipsychotic exposure. Finally, Jari Tiihonen, who has a great many connections with the pharmaceutical industry and was involved in most of the other studies that suggest a possible reduction in mortality with the use of “antipsychotics,” was, once again, one of the authors of this study.
Conclusion
The available research is not so perfect that we can make any definite conclusions regarding whether or not “antipsychotics” either increase or decrease mortality. That said, when we look at all of the research studies on the list provided by my respectful critic, along with the research left off of his list, my impression, certainly fallible, is as follows: For people experiencing the challenging concerns that result in people getting labeled as having schizophrenia, it would be healthier, and lead to longer lives, if we took all of the cost of promoting, manufacturing, and prescribing these drugs, and use it instead to provide safe, clean, kind, supportive places for them to get help.
Last year I published a post titled “Are Antipsychotics Beneficial?” (see HERE).
Robert Whitaker
Although I had personally reviewed the research, I relied on my method of presenting this information to readers by summarizing a free PDF written by the highly regarded science writer, Robert Whitaker, titled, “The Case Against Antipsychotics: A Review of Their Long-term Effects.” By clicking on the blue title, you can read all of his arguments.
Whitaker’s most recent book, Anatomy of an Epidemic, provides an in-depth exploration of medical studies, and concludes that there are serious problems with the conventional wisdom of treating those labeled as mentally ill with drugs.
Toward the end of my post on antipsychotics, I provided the following quote from Whitaker’s free PDF:
“The drugs are supposed to provide the benefit of reducing psychotic symptoms. But the research reveals that, over the long term, this benefit turns into a negative, and so, over the long-term, there are only negatives to be chalked up: the increased chronicity of psychotic symptoms, the impaired functional outcomes, the worse cognitive functioning, and, of course, a broad range of “side effects,” such as tardive dyskinesia, metabolic problems, sexual dysfunction, and so forth. Such is the bottom-line arithmetic that makes the case against antipsychotics.”
In my post, I ended up supporting Whitaker’s conclusions. Consequently, some of my readers showered me with praise for having the courage to stand up to the powerful pharmaceutical-psychiatric institutions, while others showered me with the most disrespectful insults known to the human race. And then there were those who disagreed with me but did so in a respectful manner. I believe it is my responsibility to now provide them a respectful response.
Those disagreers who remained respectful put forth basically two types of arguments. The most common of these were from people who personally know a family member or friend who has been “diagnosed” as having schizophrenia and from their observations the “antipsychotic” drug treatment appears to be helpful. Others had seen some research that has convinced them that the drugs reduced the risk of death.
My post today will focus on the first of these arguments. I review the evidence regarding whether or not these drugs reduce the risk of death HERE.
The Apparent Helpfulness of Antipsychotic Treatment
Any pill prescribed by a doctor will lead many to experience a placebo effect, which can be, for a period of time, helpful. I hasten to point out that a person can get a placebo effect with non-drug treatment approaches as well, and this would avoid the various harms associated with this type of drug.
In addition to a placebo effect, the perception of helpfulness of a drug can come about when a patient in an agitated state first comes to the attention of a psychiatrist. These drugs are not only known as “antipsychotics,” but also “major tranquilizers,” because they sometimes do appear to calm someone in distress.
Unfortunately, once someone begins to take these drugs to help with agitation, when they try to come off of the drug, they are left with drug withdrawal experiences that have been described as awful. I hasten to point out that there are other ways to help someone to calm down that need not rely on these types of drugs. I have worked on many occasions with people who are agitated, and without the aid of a drug prescription I listened in a caring way, and in time the person eventually calmed down. If, however, you give someone a drug that calms the person down, it is sometimes much easier, and less time consuming. For people who witness someone they care about in high distress drift into a calmer state upon taking an “antipsychotic,” this can seem enormously helpful.
Moreover, for a period of several months, the person who had been experiencing some mental health concern might, after taking these types of drugs and being a bit calmer, may begin to function better in several ways, such as sleeping more soundly, or having friendlier relationships.
Some of them would have recovered in a fairly short period without the drug, but because they recovered while taking the drug, they, and their loved ones, attribute the improvement to the effectiveness of the drug. If the person tries to see whether the improvement was due to the drug or the natural recovery process, he or she may try to stop ingesting the drug. However, the withdrawal from the drug, as I mentioned above, often causes a nasty physiological reaction which, in some ways, is similar to someone who is a coffee drinker who suddenly decides to stop, cold turkey. However, the “antipsychotic” physiological withdrawal reaction can be experienced as much worse. When people who care about this person see the downward spiral that occurs from the physiological withdrawal reactions, they may come to attribute it to the person’s “mental illness” returning, and thus, the illusion of long term effectiveness is now deeply entrenched.
Another way in which the illusion of the long term effectiveness of the drugs can occur has to do with the fact that even when the “diagnosed” person is not functioning well on a drug treatment regimen, human beings can always imagine that the patient would be doing even worse without taking the drug. And of course, when the patient does try to go off the drug, the raging physiological withdrawal process occurs. So, in this way, the combination of the belief that the patient could be doing worse, and upon becoming worse when trying to do without the drug, it convinces people that the drug treatment is helpful.
Finally, oftentimes family members are the ones who had advocated that the distressed person go to a psychiatrist and comply with the drug treatment. Once they take that position, and tell others what they had done, information that comes their way in the form of the distressed person having bad side-effects, or hearing from people who take the position that the drugs may be more harmful than helpful, a psychological phenomenon known as cognitive dissonance occurs. The principle of cognitive dissonance states that human beings strive for internal psychological consistency. When they experience internal inconsistency they become psychologically uncomfortable and a major way that they try to reduce the discomfort is by avoiding circumstances and contradictory information likely to increase the magnitude of the cognitive dissonance.
So, in summary, the five ways that people may get the false impression that over the long term the drugs are effective are:
The placebo effect,
The initial calming effect of the drug,
Attributing observed improvement as being due to the drug rather than to the natural course of the experience,
Whenever the drug taker is not doing well, it is easy to imagine he or she would be doing even worse if he or she was not taking the drug,
Cognitive dissonance.
(By the way, upon reading this, if some of you who have been taking these types of drugs decide that you want to try to wean yourself off, a good resource to help can be accessed HERE.)
Maybe I’m the One Suffering From Cognitive Dissonance
I have publicly supported the argument that these drugs cause more harm than good. Therefore it can be argued, it is I who suffer from cognitive dissonance whenever evidence comes my way that might support the idea that these drugs are helpful in the long run.
This point is worth considering. What I have done to avoid falling into this trap is to thoroughly review the research regardless of whether or not it supports my position. Here’s a partial description of what I found.
By the late 1990s, investigators had reported that antipsychotics caused basal ganglion structures and the thalamus to swell, and the frontal lobes to shrink, with these changes in brain volumes “dose related.” Then, in 1998, Raquel Gur, from the University of Pennsylvania, reported that the swelling of the basal ganglia and thalamus was “associated with greater severity of symptoms.”
Soon Nancy Andreasen, who was then editor-in-chief of the American Journal of Psychiatry, reported on her findings from a study of 500 schizophrenia patients. In 2003, she reported that their frontal lobes shrank over time, and that this shrinkage was associated with a worsening of symptoms and functional impairment, and after five years, with a worsening of cognitive abilities.
While Andreasen initially attributed this shrinkage of the frontal lobes to what she referred to as the schizophrenia disease process, in 2011 she announced that long-term use of the old standard antipsychotics, the new antipsychotics, and clozapine were all “associated with smaller brain tissue volumes.” She found that this brain shrinkage was dose related; the more drug a person was given, the greater the association “with smaller grey matter volumes.” A loss in white matter volume was also “most evident among patients who received more antipsychotic treatment.” Illness severity and substance abuse had “minimal or no effects” on brain volumes, she concluded.
Numerous studies have now reported that antipsychotics induce changes in brain volumes, which, German investigators concluded in 2014, “exert adverse effects on neurocognition, symptoms and psychosocial functioning.”
The MRI studies provide objective evidence that antipsychotics cause changes in brain volumes that are associated with a worsening of symptoms, and a worsening of functional impairment.
So, with all due respect to my critics, I respectfully submit the above argument that the belief that antipsychotics are helpful in the long run is an illusion.
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Some people will enjoy reading this blog by beginning with the first post and then moving forward to the next more recent one; then to the next one; and so on. This permits readers to catch up on some ideas that were presented earlier and to move through all of the ideas in a systematic fashion to develop their emotional and social intelligence. To begin at the very first post you can click HERE.
As I write this, it is the time of year that for most Americans the fresh new school year is well on its way. It is also the time when we begin to see some teachers becoming frustrated with some of their new students because they won’t sit quietly during lessons, or their attention too frequently wanders. And so, parents start getting phone calls from these frustrated teachers, urging them to consider having their son or daughter evaluated for ADHD. “There are medications available for children that help these kinds of problems,” the teachers explain.
Meanwhile the pharmaceutical industry, with its enormous financial resources, has been skillfully promoting how helpful drugs like Ritalin are. Dramatically less funded are folks who try to present the negative consequences of this drug taking approach.
To do my best to offer balance to the pharmaceutical industry’s point of view, in earlier posts I review the research pertaining to how effective and ineffective these drugs are (see HERE, HERE and HERE), and conclude that for many kids there is a modest short-term improvement in the teacher’s goals, but they then develop tolerance to the drug, and thus the positive effects wear away. In the end, students are subjected to the negative side-effects, while not improving their achievement levels, social skills, or high school graduation rates. At best, thousands of dollars have been wasted. At worst, the side effects of the drugs might have led to some serious physically harmful consequences.
In another post (see HERE), I review safe alternatives to drug treatment. I also point out that many of the students viewed as having ADHD really have an attention priority difference (see HERE). That is, many of these children have no problem paying attention to many types of tasks, such as art projects, singing songs, and playing sports, but find academic school lessons boring. Others are the youngest student in the class and are actually acting in a manner typical for their age.
Now, sometimes I meet parents who tell me that they have decided to go along with their physician’s recommendation that their child be placed on Ritalin or some other similar stimulant drug. I certainly respect their right to make decisions concerning how to raise their child, and I certainly don’t throw any insult at them. Nevertheless, it does sadden me when I hear about this decision, for I become concerned about the child’s stomach, kidney, nerves, hormones, developing brain, and bone structure. Drugs that physicians have said are safe and effective have, in the past, proven to be far more toxic than anyone ever dreamed. The latest such case involves the use of pain killers that fall in the class of Oxycontin, which many physicians cooperated in creating a situation now declared a national emergency. I for one have been deeply grieving over the suffering of the tens of thousands of family members caught up in this horrible deadly mess.
I grieve as well over the social misery that goes along with being singled out as a child that must take a pill to fix the problem said to be in his or her brain. More than a few kids have told me that this process, for them, became a dreaded experience.
I believe that teaching our children to turn to drugs when they are dissatisfied with their behavior or mood runs counter to the values of a healthy lifestyle.
I prefer to put forth a view that encourages us to teach our kids about the value of keeping our bodies in lifelong possession of its full youthful state by avoiding the use of stimulants and narcotics. I wish to teach our kids it is possible that the morning sun and air are far better and healthier intoxicants. Doing something that puts a smile on the lips of a loved one, accomplishing a valued challenging task, providing assistance to another human being–these are the directions I wish we would point to when we guide a child toward a fulfilling life.
Welcome to From Insults To Respect. I’m Dr. Jeffrey Rubin.
Dr. Jeffrey Rubin
Typically, here on this blog I aim to write posts that suggest how we might deal with various intrapersonal and interpersonal conflicts in a manner that will enhance the respect that we have for ourselves, and others have for us. But today we will look at a set of circumstances that is a bit more complicated.
It just so happens that during the last 20 years of Dr. Thomas Szasz’s life I got to know and respect him. He passed away in 2012. During the period of time that I got to know him, I found that some people respected him as I did, but others didn’t. So, throughout this period, I had the following quandaries: If I let the people who didn’t respect him know I did, would that end up weakening the respect they have for me? Should I remain silent about my respect for him until I find out how the others I am with view him? Would I respect myself more if I spoke up about why I respect him even if I risked losing the respect of some? These are the questions that today I invite you to explore.
Learning About Dr. Szasz
Dr. Thomas Szasz
I first came to hear of Dr. Szasz back in 1971when I was taking an undergraduate Abnormal Psychology course at Brooklyn College. One of the assigned readings was Dr. Szasz’s article, published in the American Psychologist, titled, “The Myth of Mental Illness”. Dr. Szasz also wrote a popular book with the same title, which I read a few years later.
In the article, Dr. Szasz put forth his belief that the behaviors and experiences that are considered “mental illnesses” are more accurately construed as problems in living. As someone whose family narrowly escaped the violent, inhumane actions of Hitler in 1938, he expressed a concern about society giving psychiatrists the authority to convert these problems into a language of illness. As he saw it, his own profession has a financial interest in converting more and more problems in living into illnesses that require its services to reach some vague harmonious state thought of as mental health. However, according to Szasz,
…it seems to me that—at least in our scientific theories of behavior—we have failed to accept the simple fact that human relations are inherently fraught with difficulties and that to make them even relatively harmonious requires much patience and hard work. I submit that the idea of mental illness is now being put to work to obscure certain difficulties which at present may be inherent—not that they need be unmodifiable—in the social intercourse of persons. If this is true, the concept functions as a disguise; for instead of calling attention to conflicting human needs, aspirations, and values, the notion of mental illness provides an amoral and impersonal “thing” (an “illness”) as an explanation for problems in living.
Of particular interest to my fellow students was Szasz’s argument that by converting these problems into something that sounds like a real illness, it creates a situation in which psychosocial, ethical, and/or legal deviations are claimed to be correctible by (so-called) medical action only doctors are licensed to provide, such as the prescribing of drugs. To Dr. Szasz, it is logically absurd to expect that it will help solve these types of problems by prescribing tranquilizers and other drugs as if they were like a bacterial infection, or the growth of a tumor. To be sure, people on their own have tried to deal with these problems by taking a wide range of drugs, such as alcohol, tobacco products, stimulants, and heroin. Such approaches, rather than promoting healthy outcomes, tend to lead to less healthy outcomes. To Szasz, changing to the drugs doctors prescribe to deal with these problems in living is like changing seats on the Titanic.
Upon reading the American Psychologist article, it seemed to me that Szasz made some valid, thought provoking points, and during the class discussions, although not everyone agreed with everything Dr. Szasz had written, none of the students, nor did the professor, seem upset with the author’s position.
As several years rolled by, I read several of Dr. Szasz’s books. The role of psychiatrists in social control, promoting conformity, lobotomizing, administering electrical currents to brains to cause convulsions, prescribing harmful drugs to children for behavior problems, stigmatizing adversaries, disqualifying citizens of their right to stand trial, and creating confusion by calling both voluntary medical interventions and coercive practices “treatment,” are the issues Dr. Szasz incisively analyzed.
Many of Dr. Szasz’s books received enormous praise. For example, a reviewer in The Atlantic wrote of his Myth of Mental Illness:
It is no exaggeration to state that Szasz’s work raises major social issues which deserve the attention of policy-makers and indeed of all informed and socially conscious Americans….Quite probably he has done more than any other man to alert the American public to the potential dangers of an excessively psychiatrized society.
Dr. Szasz’s book, Law, Liberty, and Psychiatry, also was met with high praise. In a review published in the New York Times, Edward de Grazia wrote;
This bold and iconoclastic work takes up most of the faults committed in the name of mental illness, and lays down short-run and long-run solutions.
Charles D. Aring, M.D., Professor of Neurology, University of Cincinnati, wrote:
It is likely to rank among the classics of psychiatry.
How We Met
Corning, NY
So, by the time I graduated from the University of Minnesota’s PhD program, and obtained a position as a psychologist in the Corning, New York school system, I was quite familiar with Dr. Szasz’s writings, but I had never met him. But then I began to notice that during my time in graduate school, there was an explosion in the number of students who were being prescribed psychiatric drugs. This began to alarm me more and more because of several of the cases referred to me.
One boy had recently become depressed. When I asked him why he thought he was depressed, he said that his mother was making him take Ritalin to treat his ADHD. The boy didn’t believe he had ADHD, and when the drug’s stimulant effects began to wear off each evening, he was left feeling awful, with waves of sadness, stomach aches, and difficulty falling asleep.
I checked his school record and found he had been consistently on the honor roll prior to taking Ritalin. His teacher reports never expressed any concerns about his having any trouble paying attention or being hyperactive. Instead, he was viewed as an excellent student.
When I asked the boy’s mother why he had begun to take the drug, she explained that he appeared to her to be having trouble paying attention to his homework. When she brought him to her doctor, he diagnosed him as having ADHD based on her concern about the homework issue and then prescribed the drug. When I informed her that the boy attributed his depression to the side effects of Ritalin, she got defensive, and told me she had faith in her son’s doctor, and she didn’t want my advice about what drugs her doctor was prescribing. I was, according to her, to keep my mouth shut about the drug and just treat her son’s depression.
I found this a very challenging situation.
At the same time, I had become concerned that so many of the kids referred to me who were in foster care were on drugs typically prescribed for people diagnosed as psychotic. These students typically were dealing with serious emotional challenges involving being taken from their parents’ home. A couple of these cases involved parental child abuse, others involved parents being sent to prison, and I had another case of a boy dealing with his parents dying in a car accident. My efforts to help these grieving kids became ever more difficult because of the side effects of the psychiatric drugs prescribed to them. Some of the side effects were known to be life threatening.
And then, in the spring of 1989, a 21-year-old man was found dead at a nearby psychiatric facility within 24 hours of being forcibly injected with the same type of drug these foster children were taking.
Prior to this incident, members in my community were already hotly debating the use of psychiatric drugs within schools. The death broadened and intensified the issues.
Lincoln-Douglas Debates
As a psychologist, my views were sought. Although forthright about my position, in my PhD program I had learned that when confronted with a controversial issue my primary obligation is not to propagandize but to teach; not to indoctrinate but to provide opportunities for citizens to hear a free exchange of opposing views.
To this end, I organized a full day debate in my community on this issue titled, “Psychiatric Drugs: Wonderful Revolution Or Ongoing Catastrophe?” There were two psychiatrists and a patient in favor of the current drug approach, and two psychiatrists and a former patient who were on the other side of the issue. Dr. Szasz was one of those psychiatrists. I served as the debate moderator.
The debate was so popular that people from other communities began to ask me to organize a similar event in their community. Consequently, I set them up in Washington, D.C., Binghamton University, Niagara Falls, and Baltimore, all of which were very well attended. As I went about planning these events, I started to hear from people who were vehemently opposed to them. For example, one woman wrote to one of the sponsors of the debate:
Regarding the October 3rd Binghamton Conference, I am writing in great dismay and utter incredulity that so much mental health money would be spent in this fashion. The money for the needed basic services has been so sharply reduced for our ill family members; plus with the number of mentally ill homeless ever increasing, then to see the large number of participants in such a program was definitely upsetting to me.
I am a member of the Finger Lakes Alliance for the Mentally Ill and have been involved with mental health issues at close range for many years. Firsthand, I can attest to the grief and destruction of lives which mental illness causes. To waste funds and not direct them toward research into the root causes is in my opinion, the wrong direction. To present fallacious viewpoints so flagrantly as was done October 3rd., can only cause more heartbreak to those least deserving of any more heartbreak.
No wonder so many health professionals are stumbling along trying to help our loved ones, but getting nowhere. This is not to say their motives are not right but such attitudes as Dr. Szasz, etc., expound upon cannot help but cloud their thinking.
It is my hope no such conferences will occur. However, if there are any other similar ones, family members should also be on the panel. Dr. Major and Dr. Feinstein were great, but there should be representation from the families who watch and suffer.
So, here we see that the person writing the letter acknowledges that some on the panel did a great job presenting her views but she objects to views with which she disagrees being expressed. Dr. Szasz is specifically named as among those who should be silenced.
By the way, the objection expressed by the critic of the debates, “that so much mental health money would be spent in this fashion” is very misleading. Those who attended came voluntarily and payed a fee for coming. There were some scholarships for those who wanted to attend but said they couldn’t afford the fee, but because so many attended, there were no substantial cost to mental health funded programs. The one exception was that one mental health department in New York State volunteered to print the brochure and send it out to all members of the state’s mental health workers. The cost to the department represented a pittance to their overall budget.
Shortly after receiving this letter, I was contacted by the Executive Director of the Mental Health Association in Niagra County, who asked me to work with her group, and several others in her area, to put on a similar debate for her community. This time I did add to the panel a family member who belonged to the local chapter of the National Alliance On Mental Illness. Despite that, I received a letter from the president of that organization’s New York State chapter asking that the debate be cancelled. In his letter, he specifically objects to Dr. Szasz expressing his views.
I am pleased to report that the debate in Niagra County went ahead as planned. Moreover, the Niagra New York chapter of the Alliance On Mental Illness formally welcomed the conference.
My involvement in the project led to Dr. Szasz and I becoming friends. I would go visit him at his home from time to time, and we would have lunch while discussing his views. At such times when I disagreed with him, I found his delightful sense of humor and cogent counter arguments were done in a manner that I deeply enjoyed and respected.
Over the years, I found his love for his two daughters particularly heartwarming. I could easily relate to his feelings toward them because I have two dear sons.
Whenever I visited him, he normally didn’t interrupt our conversation even when the phone rang, but if the answering machine indicated the call was from one of his daughters, the delight on his face was something to behold. And then he would quickly apologize to me and, like a little boy being invited to have some chocolate cake, he would rush over to take the call.
I remember being invited to his eightieth birthday party. Over a hundred people attended, and the enormous respect they all had for him was amazing.
How Best To Handle A Situation In Which It Becomes Apparent Someone Doesn’t Respect Your Friend?
So, what do you do in a situation like this, that is, a situation in which some people highly respect your friend, while others don’t? As for me, when I meet someone saying negative things about Dr. Szasz, I take some time to listen carefully, and I respectfully summarize the person’s position. I then gently say a few supportive things about Dr. Szasz, while bracing myself to deal with the person’s reaction. As the other person replies, I again listen, seeking to be as empathic as possible.
I recognize that I may lose a certain amount of respect from that person, but I hope, and seek, to win them back as time goes by with my other actions.
What are your thoughts about such challenging situations?
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Some people will enjoy reading this blog by beginning with the first post and then moving forward to the next more recent one; then to the next one; and so on. This permits readers to catch up on some ideas that were presented earlier and to move through all of the ideas in a systematic fashion to develop their emotional and social intelligence. To begin at the very first post you can click HERE.
What can we to do to foster peaceful solutions to conflicts in our communities? Well, currently, when young folks first begin to display a pattern of serious violence to themselves or others, they are typically placed together to provide some intervention in a group, such as a special education class or a correctional facility. Unfortunately, this often worsens these behavior patterns as the young folks in these programs begin to copy from one another a variety of harmful behaviors.
Mentoring programs, which provide one-on-one relationships, such as the Big Brother/Big Sister Program have demonstrated they can be helpful, but most communities find they have a severe shortage of mentor volunteers. In addition, it has become apparent that some who do manage to get mentors need significantly more time with a positive role model then the hour or two per week that mentoring programs typically provide.
So, after much thought on how to bolster the effectiveness of mentoring, and other helpful community programs, I drew up this idea I refer to as the One-On-One Program. I got a school district and a college to agree to carry out the program if I could get funding for it, so I quickly wrote a grant without any experience in writing them. Reviewers indicted the program proposal has great potential but I need to have it written up by someone who knows how to write grants. When I got news of this, I was retiring, so I’m here describing the program in the hopes others will pick up this program idea and make it a reality.
Here’s How the One-On-One Program Would Work
It would begin with offering an elective course to high school and college students titled “An Introduction to Counseling and Conflict Resolution.” It would provide lessons on basic counseling skills such as empathic reflective listening. A major unit in the course would be on how to discipline children nonviolently, and another unit would be on how to teach skills for dealing with anger arousing situations.
For those students who master the course curriculum, they would be able to apply for a paid internship. These interns would serve as mentors for younger students at least four years younger than they. For their participation, mentors would receive an authentic sense of helping their community, a modest stipend of about $4 an hour, earn additional course credit, and have an opportunity to receive a sterling recommendation for any future job or advance education opportunity. Survey data that was administered at my school district and local college indicated there would be plenty of students who would agree to become mentors if the program became funded.
Starting when school lets out and lasting until 6:00 p.m., the mentors would work at their local high school one-on-one with their assigned mentee.
On site at each high school would be two adult supervisors, one of which would be a psychologist, the other, a volunteer senior citizen.
Additional supervision would be provided to mentors throughout their internship, by having them participate in a credit bearing course designed to help resolve peacefully conflicts that arise when working with their younger partner.
Because mentors will miss some days for sickness or personal reasons, a few alternate mentors would be on call to fill in when needed.
The daily activities each mentor-mentee pair would do together include:
A mile walk during which the mentees would get to talk about whatever they want. During this time, their assigned mentor would employ the basic counseling skills of empathy and reflective listening that were mastered in the course that each had taken to qualify for the internship,
When they return from their walk, each of the mentor-mentee pairs would sit down for a ten-minute meditation,
Then they would work for twenty minutes doing homework.
The next ten-minutes would be devoted to a lesson taught by the mentor to their mentee on how to handle anger arousing situations,
The final hour would be devoted to an activity designed to develop some valued talent that both members of the mentor-mentee pair have shown an interest in working on.
So those are my suggestions for the daily 5 major activities.
The lessons that mentors would teach their mentee to deal with anger arousing situations, involve making video recordings. In these recordings the mentees would act out expertise in handling in a peace promoting manner some challenging event such as being teased or criticized.
Every 6 weeks, all of the parents of the mentees would be invited to an evening meeting. The focus of these meetings would be on seeing the little video shows that their sons and daughters had made that illustrate peacefully handling some conflict.
Now, this is an enormously important aspect of the program for the following reason: When I worked with youth at risk before I retired, there were times when I sought to have their parents show up to have problem solving discussions. I found many never came. But once I made these types of video recordings the focus of the parent meetings, not only did the parents show up, they often brought along grandparents, uncles, and aunts. Apparently, parents and other family members love to see their kids in shows. So, with this aspect of the One-On-One Program, not only would the mentors and mentees have an opportunity to learn and discuss peaceful, constructive ways to deal with challenging conflicts in a fun, engaging manner, so too would a large percentage of the mentees’ parents.
How would the program seek to enroll youths who can benefit from it? Teachers, counselors, police officers, and judges would be informed of the program’s existence and asked to refer young folks they view as in need of this community option.
So, there you have it, the raw basics of the One-On-One Program. Now, to give you a sense of the real heart of this program, I’m going to tell you two short parables. The first is:
The Parable of Tony
Our tale begins when Tony is 12-years old. Because of several fights that he has gotten into at the afterschool program, Tony has just been banned.
Tony’s mother is furious. While repeatedly swinging at him with her shoe, she screams, “If you get into any more trouble, I’ll beat the living daylights out of you!”
A few weeks go by and then Tony’s mother gets a call from the police and learns that he has been picked up by them for being a lookout for a gang while its members engaged in various illegal activities. “What else could I do,” cries Tony, “it was the only way I could get the gang to stop doing mean things to me!”
At a judicial hearing, the judge refers Tony to the One-On-One Program.
Shortly afterwards, Nick, 17-years old, begins to mentor Tony every day after school. Nick had been bored before beginning to work with Tony, and without this constructive activity available, he could have easily gotten into trouble. But now he finds that the way Tony looks up to him very rewarding, and Nick gets great satisfaction knowing he’s helping his community. And he also likes the money that he’s earning from the stipend.
Meanwhile, with Nick’s help, Tony’s aggressive school behavior has clearly improved, more of his homework is getting done, and his behavior in the larger community has seized to be a problem.
For talent development, Tony showed an interest in the game of chess, so both he and Nick have begun to play every day after school.
The next school year, Nick has gone away to college, so Tony’s mother is planning on getting a new mentor for Tony. But Tony has heard that his community has an afterschool chess club and he convinces his mother to let him give this a try.
To his delight, Tony finds that after a whole year of playing chess with his mentor, he has become pretty good.
Best of all, several of the players have begun to call Tony to play chess on the weekend or to go to a movie. Because of Tony’s training during the program on how to deal non-violently with anger arousing situations, he finds that he gets along with these students in a positive manner. Soon, he has, for the first time in his life, some real friends.
Well, there you have it, the Parable of Tony,
Here’s the other parable I want to share with you.
The Parable of June
June, 11-years old, is wearing a cute pink dress. She has been brought to see Dr. Shure, a psychologist. Leaning forward on her desk, Dr Shure asks,“Do you know why your mother asked me to meet with you, June?”
“I’ve been awfully sad,” June replies, “and mom, well, she hates it when I cry out that I want to kill myself. I’m so terribly lonely.”
“Lonely,” says Dr. Shure, concerned and puzzled, “Hmmm. You go to school where there’re lots of kids your own age. You could go to the afterschool program where you don’t have to be lonely, but your mother told me that you refuse to go. What’s up with that?”
“At school and the afterschool center,” June replies, “I feel lonelier than when I’m alone. The kids make fun of me.” Tears begin to form in June’s eyes.
“I see you are feeling sad,” says Dr. Shure softly. “Are there any times when you don’t feel lonely?”
“Yeah, when my cousin Marissa comes for a visit. She’s a few years older than me, but she really likes me. And I play the flute and she plays the piano, so we play duets, and we love being together. It’s just that she lives up in Rochester, so I only see her once every few months.”
Dr. Shure nods her head and says, “June, we have a program in this community called The One-On-One program. If you join, someone a little older than you would do some fun stuff just with you every day after school including playing music together. Would you like to give that a try?”
“Does the older person play the piano?” asks June.
“Hmm, let me look on this list. Ummm, well we don’t have any piano players, but I see we do have a 17-year old named Rachel who plays the guitar. She would love to do duets with you every day after school.”
“Really!” exclaims June. “She’d be like a big sister! I’d love to try something like that!” A delightful smile is now lighting up June’s face.
As this parable illustrates, in addition to children and teenagers who are at an increased risk of becoming violent toward others, some are so lonely, so down on who they are as a person, they begin to display very concerning signs of harmful behavior toward themselves.
So, In Conclusion
In this One-On-One Program, the mentors would benefit because it would give them something constructive to do instead of getting embroiled with some harmful groups of bored students looking for trouble. They would learn useful skills taught in the counseling and conflict course and be given an opportunity to apply peace promoting skills in real life situations under supervision, skills that they would be able to use later in life and to a time when they become parents. They would also earn some money, and work daily on developing some valued skill.
For those who are mentored, the One-On-One Program would resolve the problem of a shortage of community mentors, relieve those who are suffering from loneliness and boredom, provide opportunities to develop valued talents, and engage them in healthy constructive activities in a supervised setting. And the program would also provide a forum for parents of at-risk youth to come together to observe peace promoting approaches to deal with conflict, and to participate in community problem solving discussions.
Now, as to the cost of the program? For thirty mentor-mentee pairs, the cost would be approximately the same as it would be to send one young person to a juvenile correctional facility or prison for one year. So, if the One-On-One Program was to succeed as a violent prevention program, with fewer folks going to residential programs or prisons, and fewer folks being rushed to the emergency room to be treated for a violent injury or attempted suicide, communities would actually end up saving hundreds of thousands of dollars. Of course it is my hope community members will think beyond the money that can be saved, and act to make the One-On-One Program a reality because this is in the best interest of our youth, and our entire community.
From time to time I have written about the growing lack of respect for the current manner in which people seeking to obtain mental health services are treated. Particularly upsetting to many is the requirement that they be labeled as having a mental disorder.
This labeling process relies on descriptions provided in the Diagnostic and Statistical Manual of Mental Disorders–Fifth edition (DSM) and the International Classification of Diseases–Tenth edition (ICD). Both are manuals that are conceptually similar, utilizing as their core concept, mental disorders, and both share the same “diagnostic” codes. Because of their similarities, I will simply refer to them as the DSM/ICD approach.
Many professionals defending the use of this approach explain that it provides a common language for mental health professionals to communicate about those utilizing their services; its various classification terms, such as major depressive disorder, anxiety disorder, and so on, are short phrases that are convenient for placing into titles and search engines, and for efficient/streamlined communication in high-speed hospitals and clinics; third-party payers of mental health services have found that their coding system works well as part of a practical method for their record keeping; with the aid of these codes, people manage to access mental health services, mental health service providers manage to get paid, and for-profit health companies tend to make a profit.
Unfortunately, there are a number of serious weaknesses with this approach. It tends to be stigmatizing to mental health service users. The lack of reliability and validity of the various so called diagnoses violate basic principles of science. The process of coming up with a psychiatric label privileges the clinician’s perspective over that of the mental health service user. It ignores the fact that many people who have been labeled with these stigmatizing psychiatric terms come to realize that the experiences which led to their seeking services, rather than being an indication of a pathological condition, are really an essential element to their creative development. Many have also expressed concerns about the “mental illness” terminology which medicalizes mental health concerns, thus leading to an incredible number of people being prescribed psychiatric drugs, the use of which leads to numerous serious side effects.
Just as I was writing this post, major news outlets began to report that researchers found nearly a 50% increased odds of dementia for those taking the most popular drugs for treating depression and other mental health concerns. Although the study could not prove conclusively that these drugs caused the increased risk of developing dementia, because these same drugs had already been linked to confusion or memory issues, the new evidence is deeply troubling. The researchers expressed concerns that if this association is causal, it “would equate, for example, to around 20,000 of the 209,600 new cases of dementia per year in the United Kingdom.” With the population of the US being 6 times larger, this could mean that over 100,000 cases of dementia may be attributed to these drugs every year here in my own country.
Adding fuel to these types of concerns about negative effects of ingesting these drugs are the recent findings indicating that despite the fact that more Americans than ever are being prescribed so called antidepressants, the rate of suicide has climbed to an all-time high. Is the increased use of antidepressants causing this increased rate of suicide? Although definitive evidence is not yet available, it is a well known research finding that these drugs do increase the risk of suicidal thinking in many patients.
Meanwhile, the DSM/ICD approach has created a monolithically wealthy pharmaceutical industry, with all of the drawbacks associated with such institutions.
Given these problems, an international effort has been seeking to come up with some reasonable alternative that could provide all of the perceived practical benefits of the DSM/ICD approach, while having significantly fewer shortcomings. As part of this effort, I have come up with one alternative proposal which I discuss most extensively in a peer reviewed article published in a 2018 volume of the Journal of Humanistic Psychology (see HERE). Today, I shall summarize my approach, and then we’ll look at some of the published discussions on this topic that have come out after my article first appeared.
A Summary of My Approach
My proposed alternative to the DSM/ICD approach calls for the development of TheClassification and Statistical Manual of Mental Health Concerns (CSM). In contrast to the DSM/ICD approach’s overarching concept of “mental disorders,” the CSM’s overarching concept is “mental health concerns.”
The CSM approach begins with a full recognition that individuality outruns any classification system. It is for this reason that the CSM does not classify anyone. Instead, it classifies the expressed concerns of individuals seeking to have their concerns addressed by a mental health service provider. A mental health concern occurs when a person seeking mental health services expresses to a mental health service provider a concern about any of these topics: behavior, emotion, mood, meaning of life, death, dying, managing chronic pain, addiction, work, relationships, education, eating, cognition, sleep, and challenging life situations.
Classifying the expressed concern would provide mental health service providers a common language that is helpful when communicating among other professionals. So, a professional might say to a colleague something like, “My 9:00 a.m. case is concerned about feeling depressed, my 10:00 case is concerned about his failing grades, my 11:00 case is concerned about how anxious she is in social situations.” Such communications are straightforward and easy to understand, not only for professionals, but for the general public as well.
Each expressed concern listed in the CSM would be a sufficiently short phrase so that it can be conveniently used in titles and search engines to retrieve valued relevant information. Along with each classified expressed concern, there would be a numerical code that would be convenient for third-party payer bureaucratic record keeping.
The CSM, in addition to coming up with a brief label for the expressed concern and a code for third party payers, describes a collaborative approach between the person expressing the concern and the mental health service provider for creating a psychological formulation narrative of a few paragraphs that eschews the DSM/ICD pathologizing jargon. This process involves a mental health service user and a mental health service provider co-constructing a hypothesis or “best guess” about the origins of the mental health service user’s concerns in the context of his or her relationships, social circumstances, cultural heritage, life events, and the sense that he or she has made of them. Once it has been established what the concerns are, the immediate next question is, “How do we jointly understand these experiences, why they arose, and how we might be able to address them?” This formulation is not something that is shared with third party payers of mental health services, but is utilized exclusively by the mental health service user and service provider.
With the CSM approach, no one is viewed as mentally ill, having a mental disorder, or having some psychopathological condition. Instead, it highlights that the progress of society is due to the fact that individuals naturally vary from the human average in all sorts of directions, that the originality is often useful, while, at the same time, being different can create a variety of concerns. Moreover, some people become concerned about how they are handling enormously stressful and traumatic experiences. Still others are living in unhealthy ways, such as making unhealthy choices in what they consume, or getting insufficient exercise. Mental health professionals, with the CSM approach, are viewed as seeking to address these types of concerns that arise from these conditions in a supportive setting while relying on a variety of wisdom traditions. Central to this approach, is an honoring of what Ralph Waldo Emerson referred to as the grand sweep of humanity.
Compared with the DSM/ICD approach, the use of the CSM would be less stigmatizing, more respectful to those seeking services, and more practical because of the ease of understanding the words and phrases that it utilizes. Moreover, it would be more consistent with principles of science because instead of using as its core concept the vaguely defined “mental disorders,” the CSM uses as its core concept “mental health concerns,” which is a clearly recognized event that occurs at a specific time and place. Finally, the CSM approach would provide a new choice to both mental health service users and providers, challenge old ideas, stimulate fresh perspectives, and open new avenues of research.
The Latest Discussions
Since my article on the CSM was published, the Journal of Humanistic Psychology (JHP), in its May 2019 issue, has several articles that discuss my approach as well as a few others. Let’s take a look at some of what was said, and as we do so, I’ll share a few thoughts about my reaction.
In an article titled, “What Might an Alternative to the DSM Suitable for Psychotherapists Look Like?” Jonathan D. Raskin notes that recent surveys of psychologists and counselors indicate they are dissatisfied with the DSM/ICD approach and are interested in coming up with alternatives better suited to their professions. Nevertheless, more that 90% said they will use the DSM/ICD; after all, that is how they get paid by third party payers.
What would be a better alternative for psychotherapists and counselors than the DSM/ICD approach? According to Dr. Raskin, it would have to be a system that allows them to contextualize psychosocial and biological aspects of human suffering in a more nuanced manner. And then he writes,
Dr. Jonathan D. Raskin
“Jeffrey Rubin (2018) has proposed that we classify concerns that clients bring to therapy, not disorders they have. Identifying concerns is very different from identifying disorders. Concerns are things such as feeling anxious about one’s job, unhappy about one’s marriage, emotionally distraught about past abuse, or unable to move past what one witnessed while fighting in a war. The current diagnosis system encourages clinicians to translate these concerns–which are clearly contextual and not reducible to biology alone–into disorders that afflict people. But therapists and counselors do not actually treat disorders. Instead, they talk to people about their concerns–some of which are quite serious and lead to extremely challenging and intransigent difficulties.”
To Dr. Raskin, any alternative to the DSM/ICD approach must be a better fit with what therapists and counselors actually do. The CSM approach admirably achieves this.
In a commentary on Dr. Raskin’s article that appears in the same JHP issue, Rachel Cooper, a senior lecturer in philosophy at the United Kingdom’s University of Lancaster, and author of Diagnosing the Diagnostic and Statistical Manual of Mental Disorders, puts in some of her own thoughts on this topic.
She begins by agreeing with Dr. Raskin that most psychologists and counselors would be keen for an alternative classification to be developed. She then reviewed research indicating that social workers should be included among the professionals unhappy with having to use the DSM/ICD approach. In surveys, most indicated they would not use it if it was not required for insurance purposes.
Despite this finding, Dr. Cooper expresses pessimism about any alternative becoming accepted for funding psychotherapy via health care insurance. Among the factors that make it particularly challenging is the marketing of psychopharmaceuticals, which heavily promotes the idea that certain drugs treat the specific conditions listed in the DSM and ICD. The sum of money being acquired with this approach, she points out, makes producing a competitor classification far beyond the reach of most organizations.
She then refers to my CSM approach, stating that I suggest that insurance companies could be persuaded to pay for “Mental Health Concerns,” as they would readily come to understand, with a little explaining, that mental health service providers now using the current DSM/ICD approach do not turn anyone away who has mental health insurance coverage and comes to their office expressing what the CSM refers to as a mental health concern. She then writes,
“I think that Rubin’s optimism is misplaced. The fact that some (but by no means all) therapists currently get away with recording DSM diagnoses to facilitate payment even in cases where a diagnostic criteria may not be met will not be news to insurance companies. It is a practice that insurers have long known about and usually try to prevent. I think it unlikely that insurers would easily agree to cover Rubin’s ‘Mental Health Concerns.'”
First of all, when Dr. Cooper says insurance companies usually try to prevent mental health providers from recording diagnoses to facilitate payment even in cases where a diagnosis criteria is not met, I strongly disagree with her. I’ve never in my entire career heard of an insurance company questioning a diagnosis, and on what basis could they possibly do so? Insurance funders are not present in the room when a so called diagnosis is made. All that they get as documentation for a given diagnosis is a code indicating the diagnosis.
Moreover, the ICD actually encourages mental health professionals to come up with a diagnosis when criteria are not met. Thus, it states, “When the requirements are only partially fulfilled, it is nevertheless useful to record a diagnosis for most purposes” (WHO, 1992, p. 8).
I do agree, however, with Dr. Cooper when she says that getting the change that I have been advocating for is not going to be easy. Nevertheless, I believe we–professionals, service users, and service users’ relatives and neighbors–have a responsibility to try. Moreover, I have been encouraged by the steady increase in the influence of mental health service user advocacy groups who are becoming more and more vocal about the need for their members to be treated respectfully. And whenever I am invited to speak to professional organizations about the CSM approach, the rousing applause that I receive at the end of my presentation, along with the positive comments from audience members afterwards, keep my hope alive.
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Some people will enjoy reading this blog by beginning with the first post and then moving forward to the next more recent one; then to the next one; and so on. This permits readers to catch up on some ideas that were presented earlier and to move through all of the ideas in a systematic fashion to develop their emotional and social intelligence. To begin at the very first post you can click HERE.
Welcome to From Insults to Respect. Today we’ll be taking an interesting look at the grief process.
Picture from tinybuddha.com
When we experience a major loss, such as the death of a loved one, financial ruin, losses from a natural disaster, or learning of a serious personal medical illness, our emotions can become pretty intense. Common reactions are waves of deep sadness, rumination about the loss, sleep difficulties, and reduced appetite.
A popular model of this process is known as the, “Seven Stages of Grieving.” They are:
– Shock or Disbelief
– Denial
– Anger
– Bargaining
– Guilt
– Depression
– Acceptance and Hope
Sometimes, rather than seven stages, five are used to capture the same basic model. This is accomplished by combining shock, disbelief, and denial into a single stage, and combining bargaining and guilt into a single stage.
These stages do not occur in the same sequence for all people, and they can last for a brief period or quite a bit longer; and during the process, more than one stage may occur at the same time. So, for example, someone may feel shock, anger, and waves of guilt all within a few seconds of one another, or they may all seem to merge together into one combined experience.
Beliefs that we learn from cultural norms can complicate the experience, making us feel at such times that we are acting in a manner that people may not respect. If we start to cry in front of others, will we be perceived as a weakling? If our bereavement lasts longer than what others may think is proper, will we be viewed as having some type of pathological condition?
In an extraordinary Feeling Deeply podcast, Emily Whyte Rubin, my daughter-in-law, interviews Jack Baxter, a guy from London who, having struggled with these issues, started a program to help others who are dealing with similar challenges. Called, “Good Grief,” the program essentially assists people to come together in small groups to share their experiences and to support one another. Let’s take a few minutes to look at some of that interview, and then I’ll express my views on this topic, and then invite those of you who are reading this post to weigh in.
The Feeling Deeply Podcast
This episode of Emily’s podcast can be listened to for free HERE. In introducing the interview, Emily explains that she chose to interview Jack Baxter because, “the human experience of grief is so prevalent, and something I believe many of us can use some more support around.”
After introducing Jack, she asks him what brought him to creating “Good Grief.” Jack’s reply, slightly abbreviated, follows:
“Sure. I’ll tell you a little bit about my story. It started with sadness, unfortunately. It started when I lost my father, Dave. He was 48. He was my best friend. You know, people talk about soulmates; I don’t believe you only have one soulmate, because, you know, I met someone else that I can label that. I’ve since met another soulmate, and I hope to continue to meet more, but my dad was very much my first soulmate; he connected with me in ways that I never connected with anyone. He was my best friend. I could tell him anything, and likewise, he would tell me anything–his advice, his wisdom, and I was lucky enough to have that man for twenty-two years.
“Sadly, he passed September 13th. He had skin cancer, which was, you know, tough for anyone to deal with, as you can imagine. I was only twenty-two at the time. It was like the center of my world had fallen out. It was a very tough time for me to deal with. I no longer had that support, and of course I had some friends and family, but no one like my dad who was, you know, who was there for me at times when I needed him most, and to be honest, I need him even now. You know, a young man needs his dad. And, well, we went on a journey of self discovery and I believe he was with me all that way as well. I made mistakes, ups and down, left and right, and, but, you know, I eventually sought some direction in “Good Grief” which, um, is a support group that I launched with some friends, Ben and James, and we offer support and advice for young people, in London at the moment, but we hope to venture out wider then that, for young people who have lost love ones, much like myself, and Ben, whose father died recently of brain cancer….
“To be honest with you, Emily, it was those people that I met whilst grieving, who understood my pain most. Ben was certainly one of those. I had two or three other friends who had all lost fathers themselves before, or shortly after mine, and they were the support group that I needed. I had lots of people telling me, ‘it will be OK and it will be all right, but it was those who experienced the same grief as me, they were the precious few who I really could listen to and I took strength from. And the group has been going from strength to strength ever since we launched in May, 2018.”
After Jack describes a little more of his grieving experiences, Emily asks him to describe in more detail what happens at these Good Grief meetings.
“We first like to point out that it is not professional help, because, first off, there is professional help out there….But I think what we offer is, you know, just a group of understanding, empathetic young people. So we sit in a circle, or at least around a table. It’s all very informal; there are biscuits and cookies in the middle. We offer people to snack on them if they want to. Drinks are available, and it’s just a relaxed format. We sort of ask, that just by being there, you are acknowledging that you want to live a life with grief. You never beat grief, you know, you live with it. And just by being around that table, you are admitting to yourself that, well, enough is enough and I want to move forward carrying this weight with me. So we ask people to just introduce themselves. We go around the table clockwise, and we say, you don’t have to say anything tonight if you don’t wish, because this is a big do, it’s absolutely a big deal to sit in a room of strangers and to talk. You know, that’s hard enough. But to talk about some personal issues, that’s very hard. So we stress that you don’t have to talk if you don’t want to, but, at the very least, just say hello, and who it is that you miss…. And then, the person to the right of me would say, hello and it would go from there. And you find, Emily, that once people start saying their hellos, and start introducing themselves, questions just organically are asked by other participants, and there is this whole range of grief that at least one other person can identify with, be it a death from cancer, or a death from suicide, or a car accident. There will be someone else in that room that can identify. And that’s where the questions are asks, and that’s where the support is grown. And it’s a wonderful thing to be a part of.
Emily, then expresses how touched she is about how organic the process is, how simple, and yet, also, how vulnerable it is in its simplicity, to open up this space, and to go directly into that conversation.
Jack replies,
“It’s an amazing thing. You are right. It is so organic. There is no seminar leading up to it. This is what you can expect. You just jump in at the deep end, as they say. You know, you sit around the table and there’s a brief hello, and…my name is Jack, this is Ben…. And then we just start a conversation…. It’s normalizing the grief, the confusion, and everything else that can come with death at a young age.”
At one point, Emily responds,
“Yes, and that reminder about not having to fix it, you never will be able to beat grief….That grief is something that we move in and out of our whole life. And to be able to have a space where that is welcome. It’s not like, ‘Well it’s okay, I’ll listen to you, but it’s welcoming you, that aspect.”
To this, Jack replies.
“That’s exactly right, Emily. You never complete grief. You never conquer it. It just becomes your new normal. You wake up one day and you realize my dad is not here anymore. But I will, to the day I die, carry that badge of honor that I miss my dad every day. But I got a new normal, a new focus, new responsibilities, new excitements. Also, new sadness. You know, other things have happened in my life since losing my dad that makes me sad, besides, so its acknowledging that you are normal feeling the way you do, and also continuing to feel that way whilst feeling happy, and whilst feeling sad. You don’t have to feel guilty about having a good day. It’s a safe space to be able to sit around with other people that could confirm that you are not a bad person for having a good day, or you are certainly not a bad person for having a bad day. It’s an incredible thing that I take no credit for, because it’s something so natural to me to facilitate a conversation about this.”
Well, there is so much more to this interview worth listening to, and I encourage my readers to take some time to give it a good listen to. But for now, let’s pause here and consider what was said up to this point in the conversation.
Some Thoughts
For me, personally, I tend to grieve internally, letting the experience flow through me, and I don’t feel a need to reach for a supplemental support group. In the past, when someone close to me died, I went to the funeral, spent a few days with people close to me, and then I processed the most challenging aspects of the experience that was, and is still, running through me mostly on my own. I have a supportive wife, and my children are a great source of comfort to me.
When my mom died, I had extended feelings of waves of guilt over whether I could have been more helpful to her when she was alive. I still do have these feeling from time to time, but I feel that I can deal with them without a special support group to help me through it, though I still miss her.
Although my personal approach is working for me, over the years I have met people who, it seems to me, really would benefit with the type of group Jack has put together. For example, a friend of mine whose wife died suddenly is now in his house all alone. It has been very rough on him. What a wonderful resource it would be for him if he could share what he has been going through, and offer support to others in a Good Grief type group. And I know others who, within their family structure, would meet with disrespect when showing any signs of tearfulness. “Man-up!” would be the demand they would face, or, “Don’t cry, it will all be okay.” For these folks, a more supportive group could be an enormous help.
Grief is a process that helps us to prepare for life after a serious loss. I respect that Jack is trying to be helpful and kind as he seeks a way to create something to honor his father’s life. In listening to the whole interview with Jack, I was left wondering if it makes sense to view grief as good, bad, it just is, some mixture of all three, or even something entirely different?
How do those of you who are reading this feel about what Jack has been doing, and grief in general? I’d love to hear from you.
Some people will enjoy reading this blog by beginning with the first post and then moving forward to the next more recent one; then to the next one; and so on. This permits readers to catch up on some ideas that were presented earlier and to move through all of the ideas in a systematic fashion to develop their emotional and social intelligence. To begin at the very first post you can click HERE.
Welcome to from Insults to Respect. Today we seek to answer the question, If we are experiencing sadness does that mean that we are bad? We’ll begin with a little parable to see what it might reveal. Then we’ll look at the real life example of Laura, a young woman who came to think there was something wrong with her because of her sadness.
The Parable of a Mother Disciplining Her Son
It’s a Sunday night. Eight-year-old Carl is playing a computer game. Suddenly, his mom cries out, “Time to head up to bed, tomorrow’s school.”
“Let me just finish my game, Mom!”
“Take another five minutes, and then it’s off to bed!”
Five minutes later, Carl, still engrossed in his game, hears his mother cry out again, “Time to head up to bed.”
“My game isn’t over yet Mom.”
“Put the game away now.”
“But Mom!”
“Don’t ‘but mom’ me, let’s go,” and she takes Carl firmly by his arm and begins to guide him to his bedroom. Carl’s eyes tear up, which infuriates his mother, and she cries out, don’t you start with this crap or I’ll give you a real reason to cry! You’re acting like an infant!!! Now you stop this instant and get to bed!!!”
Parable Discussion
First of all, I can empathize with this mother. Perhaps she had a very trying day. Perhaps she has learned how to handle the bedtime situation from her own growing up experience, observing how her parents handled this type of situation. Much of our own parenting skills are indeed learned this way, observing how our parents raised us. This mother’s intention was good; she wanted Carl to get enough sleep so he could be ready to do his best the next day at school. I certainly respect what she was trying to do.
That said, I find myself wondering if there might be some better way to respond when Carl begins to express his sadness, instead of threatening him and saying he is acting like an infant. Here’s one alternative approach that comes to mind.
When Carl begins to shed some tears, she might have said in a caring way,
“I see you are feeling sad. That’s understandable. You were enjoying the game so much, and you’re disappointed about having to stop. You know, when we feel sad, it’s to help us figure out how to better handle what we do in the future. I wonder how we can better handle the going to bed situation in the future. Any ideas, Carl?”
“No Mom. I just want to keep playing.”
“I think, Carl, that in the future playing these computer games right before going to bed might not be a good idea. They are designed to keep you wanting to play more and more, and it doesn’t come to an end. You reach one level and there is always another more challenging level to get to. What might be a better thing to do before bedtime?
“I could watch a show that ends at bedtime.”
“That sounds like a good thing to try, as long as it’s not a scary show that will get you all wound up right before bedtime. We could also go to the library and pick out some books that have pleasant short stories, and you can read one right before bed. Short stories come to an end in a reasonable period of time, and the reader feels a sense of completion when it’s over, without making you feel like you have to read the next chapter to see what happens next. That might work also. So, in the future, why don’t we try having you each night choose one of these ideas. I’ll let you decide each night which approach feels right to you.”
From this alternative scenario you might surmise that I think it would be better to frame our sad experiences as something useful for planning our future, rather than an experience that means we are bad or that there is something wrong with us. And, actually you would be right. But there is some nuance to my thinking about this issue that I wish to bring to your attention.
Some Nuanced Thinking When It Comes to Dealing with Our Sad Feelings
Suppose a guy named Fred tends to be sad more than the average person. This might be due to some natural born tendency to experience life in a more sensitive manner than most, or because of some rough stuff going on in his life, or some trauma in the past has been leading to recurring anguishing memories. For whatever reason, Fred regularly comes to work expressing his sadness from the look on his face as he goes around doing his job. Co-workers often stop what they are doing to ask what is wrong, and offer help by taking time to listen to Fred in a caring way. This would be nice in some ways, but let’s say it happens so often, coworkers begin to find that their work at the end of the day doesn’t always get done on time and they end up having to stay late. Some resentment begins to arise. Moreover, in this scenario, the boss begins to dislike what has been going on partly because of the time being taken from the tasks that have to get done with top-notch efficiency in a competitive business environment, and she was brought up by parents who taught that there is something wrong with people who are sad more than average. In the end, Fred loses his job.
Upset about this, Fred begins to share with his friends and family members how he is feeling, but his frequent expressions of sadness over an extended period soon begins to wear on them.
The point that I am trying to make is that experiencing sadness is not something that makes us bad, but how we express sadness can increase the chances that some will view us in a bad way.
Perhaps Fred would have been better off putting on a happy face at work despite his internal experience. Perhaps Fred, if he could afford it, would be better off hiring a professionally trained personal counselor to help him work through his sad experiences in a positive manner so that he doesn’t put too much on the shoulders of friends and family members. There are, in most communities, some counselors available, and at the top of any of my blog post there is a link titled “Counseling Services” that when clicked on provides descriptions and contact information for two excellent personal counselors that I personally can recommend who conveniently provide services through Skype, Zoom, or your phone.
However, counseling services do cost money, and if it is too expensive for someone’s budget, an alternative is to set up via such internet resources like meetup.com, a support group that meets regularly for the specific purpose of sharing challenging emotional experiences. Of course, the members will be unlikely to have the expertise of a trained personal counselor, but with trial and error it is often very possible to find the right mix of caring, empathic participants.
For these types of peer run support groups, it helps to set up some ground rules at the start of such meetings. Here are the rules that make sense to me.
We’re here to emotionally support one another.
Our internal emotions are to be met by group members with empathic caring and the encouraging of self-compassion.
When sad feelings are shared, it is worth considering how such feelings might help us to figure out how to better deal with the future.
When a member thinks that the way a fellow member is expressing his or her emotions is less than ideal, rather than to use any name calling, like, “You are being stupid for acting like that,” members are to gently frame their opinions as tentative suggestions. Here’s a useful phrase to consider using at such time, “I’m wondering if you were to (state whatever the suggestion might be) if that might be worth considering.”
The Example of Laura
Sometimes, instead of interpreting our sad feelings as “we are bad,” we come to think that something is wrong with our physical make-up. If this leads to considering taking steps in the future to improve our diet, get more exercise, or spend more time in nature, that can lead to healthy outcomes. However, there is potentially a dark side to blaming the body.
Rachel Aviv, New Yorker Staff writer
In an eye opening April 8, 2019 New Yorker article by Rachel Aviv titled, “The Challenge of Going Off Psychiatric Drugs,” we learn about Laura Delano, a remarkably talented woman. Although she did have a number of problems in her youth, as most of us do, she functioned well enough to get accepted to Harvard University. Then, at one point, she was at a party where she began sobbing so hard that her escort had to put her in a cab.
Shortly afterwards, she saw a psychiatrist who declared she had a mental disorder and prescribed an antidepressant. Laura was relieved to hear the doctor say that her distress stemmed from an illness. “It was like being told, It’s not your fault. You are not lazy. You are not irresponsible.”
So, at this point, Laura has become convinced that she is not being a bad person for how she was experiencing her emotion, it was her body that was being bad in the form of an illness. Was this really an improvement?
As her story continues,
“When on the drugs,” Laura said, “I never had a baseline sense of myself.”
She began taking twenty milligrams of Prozac, an antidepressant; when she still didn’t feel better, her dose was increased to forty milligrams, and then to sixty. With each raised dose, she felt thankful to have been heard. “It was a way for me to mark to the world: this is how much pain I am in,” she said….
At parties, she flirted intently, but by the time she and a partner were together in bed, she said, “I’d kind of get hit with this realization that I was physically disconnected. And then I’d feel taken advantage of, and I would kind of flip out and start crying, and the guy would be, like, ‘What the heck is going on?’” Most antidepressants dampen sexuality—up to seventy per cent of people who take the medications report this response….
During her junior year, her pharmacologist raised her Prozac prescription to eighty milligrams, the maximum recommended dose. The Prozac made her drowsy, so he prescribed two hundred milligrams of Provigil, a drug for narcolepsy that is often taken by soldiers and truck drivers to stay awake during overnight shifts. The Provigil gave her so much energy that, she said, “I was just a machine.”….
The Provigil made it hard for Laura to sleep, so her pharmacologist prescribed Ambien, which she took every night. In the course of a year, her doctors had created what’s known as “a prescription cascade”: the side effects of one medication are diagnosed as symptoms of another condition, leading to a succession of new prescriptions.
Despite taking all of these drugs she felt so distressed that she thought every day about dying. So a new psychiatrist put her on a new combination of pills. Again, despite these drugs she experienced what John Teasdale, a research psychologist at the University of Oxford, named “depression about depression.” She interpreted each moment of lethargy or disappointment as the start of a black mood that would never end. Psychiatric diagnoses can ensnare people in circular explanations: they are depressed because they are depressed.
As Laura’s story continued, during a brief period she decided to see another psychiatrist who was also a psychoanalyst. He questioned the way that she’d framed what she had been experiencing. He doubted her early diagnosis, writing that “many depressions are given a ‘medical’ name by a psychiatrist, ascribing the problem to ‘chemistry’ and neglecting the context and specificity of why someone is having those particular life problems at that particular time.” Laura decided that “he wasn’t legit.” She stopped going to her appointments.
Soon afterwards, despite all of the drugs that she was taking, she attempted to take her life. She did manage to survive, and afterwards,
She was started on a new combination of medications: lithium, to stabilize her moods, and Ativan, a benzodiazepine, in addition to the antipsychotic Seroquel, which she had already been taking. Later, a second antipsychotic, Abilify, was added—common practice, though there was limited research justifying the use of antipsychotics in combination. “It is tempting to add a second drug just for the sake of ‘doing something,’ ” a 2004 paper in Current Medicinal Chemistry warns.
In May, 2010, Laura wandered into a bookstore.
Robert Whitaker
On the table of new releases was “Anatomy of an Epidemic,” by Robert Whitaker. The book explained to her that as more and more Americans have taken to psychiatric drugs to deal with their emotions, the number of Americans disabled by mental illness has risen. Whitaker argues that psychiatric medications, taken over the course of a lifetime, may be turning some episodic emotional experiences into chronic disabilities. As Whitaker explains what people like Laura are going through, they have “been prescribed one drug, and then a second, and a third, and they are put on this other trajectory where their self-identity changes from being normal to abnormal—they are told that, basically, there is something wrong with their brain, and it isn’t temporary—and it changes their sense of resilience and the way they present themselves to others.”
It was at this point that Laura decided to see what would happen if she stopped taking the drugs, and found that the process was an excruciating experience because of the medication withdrawal reactions. It took her many extremely rough months before her goal was achieved.
Internal records of pharmaceutical manufacturers show that the companies have been aware of this withdrawal problem for many years, and many doctors mislead their patients suggesting to them that the prescribed drugs were either not addictive, or withdrawal symptoms are mild.
Now off the psychiatric drugs, Laura began a relationship with a guy named Rob Wipond. Both of them became emotional when discussing Laura’s sexuality. “I felt like a newborn,” Laura confided. “I hadn’t ever figured out what my body was meant to be.” Rob said, “She was open and awake. Everything was new to her. We were, like, ‘Well, gee, what is this sexuality thing—what shall we do?’ ”
Prior to coming off the psychiatric drugs, Laura had been unable to have stable relationships. “I honestly thought that, because I was mentally ill, the numbness was just part of me.” Now she wondered about the other effects of the many medications she had been taking. “On this very sensory, somatic level, I couldn’t bond with another human being,” she said. “It never felt real. It felt synthetic.”
Laura felt as if she were learning the contours of her adult self for the first time. When she felt dread or despair, she tried to accept the sensation without interpreting it as a sign that she was defective and would remain that way forever, until she committed suicide or took a new pill. It felt like a revelation, she said, to realize that “the objective in being alive isn’t the absence of pain.” She remembered identifying with a sad little bubble pictured in a popular advertisement for Zoloft—the bubble is moping around, crying and groaning, until it takes the medication and starts to bounce while birds sing—and became increasingly aware that her faith in the drugs’ potential had been misplaced. “I never felt helped by the drugs in the sense that I have meaning, I have purpose, I have relationships that matter to me,” she said.
Perhaps we can all learn something essential from Laura’s experience.
Final Thoughts
From today’s post, I hope that you will consider the value of giving up any belief that you may have that feeling sad means you are bad. If, when you experience sadness, you find yourself saying such words like, “I can’t believe I’m feeling sad again, what an idiot I am,” consider how it may be far more helpful to view your sadness as a useful tool for helping us to better plan our future. If you are a parent, consider the value of teaching your children this “sadness is a helpful tool” idea.
Also worth considering is that there are ways in which to express our emotions publicly that can either hurt our reputation or enhance it. Over a half million people have been using this blog as a no financial cost method to learn skills that can enhance their reputation whenever they find themselves in various emotionally arousing situations. I’m hoping you consider the value of joining them.
Finally, the pharmaceutical industry, along with its allied psychiatrists, have enormous resources to convince people that the best way to deal with sadness is to take pills. Laura’s story provides us a cautionary sign to all those who are tempted to go down that road.
Well, that’s my post for today. Here’s hoping you’ll soon join us again right here at From Insults to Respect.
My Best,
Jeff
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Some people will enjoy reading this blog by beginning with the first post and then moving forward to the next more recent one; then to the next one; and so on. This permits readers to catch up on some ideas that were presented earlier and to move through all of the ideas in a systematic fashion to develop their emotional and social intelligence. To begin at the very first post you can click HERE.
Welcome to From Insults to Respect. Today we continue our exploration of famous people who, despite experiencing depression, managed to achieve an outstanding level of respect. In the recent past, the experiences of Joni Mitchell (see HERE), U.S. Grant (see HERE), Leo Tolstoy (see HERE), and Abraham Lincoln (see HERE) led us along their personal journey. We now turn to the master of all psychologists, William James, to be our guide.
Since we hear often enough from the pharmaceutical industry, with its enormous promotion machine, that it is crucial for people who have challenging experiences with depression to consume antidepressant pills, I have tried to offer a balance by providing examples of admired people who, in various ways, managed without them. For some, like Lincoln and Joni, their suffering never completely went away, but they, in a sense, made friends with it. They did so by coming to understand that experiencing challenges more deeply than people with a happy-go-lucky temperament has the potential to provide a motivating force to bring forth valued achievements. As Joni so beautifully expressed this,
“Depression can be the sand that makes the pearl…. Most of my best work came out of it. If you get rid of the demons and the disturbing things, then the angels fly off, too. There is the possibility, in the mire, of an epiphany.”
Other people’s experience with depression takes a somewhat different course. At a certain point they find that their base notes of life are the result of living wrongly. Upon improving what they were doing and/or the situation that they were living in, they came to an understanding that the energy their depression provided for making changes led to a better life. Leo Tolstoy provided us the most vivid example. His depression stimulated a gnawing questioning that eventually led to one insight after another. His trouble had not been with life in general, not with the common life of common people, but with the life of the upper, intellectual, artistic classes, the life that he had personally always led, the cerebral life, the life of conventionality, artificiality, and personal ambition. By spending more time in nature and in a supportive community, “things cleared up within me and about me better than ever, and the light has never wholly died away.” According to Tolstoy, his suicidal feelings disappeared, and he went on to live a productive life until he passed away at the age of 82 of natural causes.
William James’s story is more in line with this second type of depression experience, in that he, like Tolstoy, found that by making certain changes in how he was living and the situation in which he was living, his experiences of dealing with depression decreased to a point that he felt he was getting more out of life. I briefly reviewed these changes in an earlier post titled, “William James’s Personal Bout with a “’Mental Disorder’” (see HERE). I decided to delve a little deeper into this case because I happen to be reading The Letters of William James and came upon some additional information that I believe is worth reflection.
The Most Vivid Description of William James’s Experience with Depression
William James’s son, Henry, described his father’s struggle when he was in his 20s as follows:
William James’s father, Henry, on left, and young Will on right
“It was during this period that such doubts [about morality, his impotence to make any significant change, and the apparent meaningless of his life] invaded his consciousness in a way that was personal and intimate and, for the time being, oppressive. He was tormented by misgivings which almost paralyzed his naturally buoyant spirit. Bad health, a feeling of the purposelessness of his own particular existence, his philosophical doubts and his constant preoccupation with them, all these combined to plunge him into a state of morbid depression…. He even had an experience of that kind of melancholy which takes the form of panic fear.”
William James, himself, described this fear in vivid detail:
“Whilst in this state of philosophic pessimism and general depression of spirits about my prospects, I went one evening into a dressing-room in a twilight, to procure some article that was there; when suddenly there fell upon me without any warning, just as if it came out of darkness, a horrible fear of existence. Simultaneously there arose in my mind the image of an epileptic patient whom I had seen in the asylum, a black-haired youth with greenish skin, entirely idiotic, who used to sit all day on the benches, or rather shelves, against the wall, with his knees drawn up against his chin, and the coarse gray undershirt, which was his only garment, drawn over them, inclosing his entire figure. He sat there like a sort of sculptured Egyptian cat or Peruvian mummy, moving nothing but his black eyes and looking absolutely non-human. This image and my fear entered into a species of combination with each other.
William in his early 20’s
“That shape am I, I felt, potentially. Nothing that I possess can defend me against that fate, if the hour for it should strike for me as it struck for him. There was such a horror of him, and such a perception of my own merely momentary discrepancy from him, that it was as if something hitherto solid in my breast gave way entirely, and I became a mass of quivering fear. After this the universe was changed for me altogether. I awoke morning after morning with a horrible dread at the pit of my stomach, and with a sense of insecurity of life that I never knew before, and that I have never felt since. It was a revelation; and although the immediate feelings passed away, the experience has made me sympathetic with the morbid feelings of others ever since. It gradually faded, but for months I was unable to go out into the dark alone.
“In general I dreaded to be left alone. I remember wondering how other people could live, how I myself had ever lived, so unconscious of that pit of insecurity beneath the surface of my life.”
Wow! That’s a pretty vivid description!
In that description, when William says that his disturbing experience gradually faded, from his letters it is clear to see that he continued to suffer through deep melancholy for a few years. Some of them included suicidal thoughts.
It is of special interest that William tells us that his experience “has made me sympathetic with the morbid feelings of others ever since.” For those of us who value people who can sympathize with those having such feelings, we see that something positive came out of William’s own experience. This theme that depression is often a tool to create something of value, runs throughout William’s writings for the rest of his life.
What Led to the Fading of William James’s Experience with Depression?
Initially, William, upon having his fearful experience believed that all mental health concerns now referred to as mental disorders are required to have a physical basis and that there was nothing anyone can willfully do about them. Today, short of taking a pill, many of today’s psychiatrists are promoting a similar view. Thus, their basic position is that these concerns are due to something within the patient’s physical makeup. This misses the overwhelming evidence that how people construe their past and current experiences, and their current social and work situations, are often the central causative factors.
Once William came to understand this, it provided the hope and motivation to do some things differently. As he explained to his father,
“Bless my soul, what a difference between me as I am now and as I was last spring at this time! Then so hypochondriacal, and now with my mind so cleared up and restored to sanity. It is the difference between death and life.”
One thing that he had decided to do was to spend more time than he had been on focussing on some uplifting life experiences. For example, he began to read poems by William Wordsworth. Consider Wordsworth’s poem, “I Wandered Lonely as a Cloud.”
I wandered lonely as a cloud
That floats on high o’er vales and hills,
When all at once I saw a crowd,
A host, of golden daffodils;
Beside the lake, beneath the trees,
Fluttering and dancing in the breeze.
Continuous as the stars that shine
And twinkle on the milky way,
They stretched in never-ending line
Along the margin of a bay:
Ten thousand saw I at a glance,
Tossing their heads in sprightly dance.
The waves beside them danced; but they
Out-did the sparkling waves in glee:
A poet could not but be gay,
In such a jocund company:
I gazed—and gazed—but little thought
What wealth the show to me had brought:
For oft, when on my couch I lie
In vacant or in pensive mood,
They flash upon that inward eye
Which is the bliss of solitude;
And then my heart with pleasure fills,
And dances with the daffodils.
For William, the delight that Wordsworth had for the beauty of nature was catching, and William began to spend more time in nature, especially in the Keene Valley area of the Adirondack Mountains. Also, of enormous help, was to find the right type of work for his temperament, as we see from a letter he wrote to his brother, the gifted novelist Henry James:
“The appointment to teach physiology is a perfect God-sent to me just now, an external motive to work, which yet does not strain me–a dealing with men instead of my mind, and a diversion from those introspective studies which bred a sort of philosophical hypochondria in me of late and which it will certainly do me good to drop…. It is a noble thing for one’s spirit to have responsible work to do.
On Left, Henry James, the novelist and brother to William
I enjoy my revived physiological reading greatly, and have in a corporeal sense been better for the past four or five weeks than I have been at all since you left…. I find the work very interesting and stimulating…. The authority is at first very flattering to one. So far, I seem to have succeeded in interesting them [his students], for they are admirably attentive, and I hear expressions of satisfaction on their part.”
Thus, finding something to do that was meaningful to him and placing him in an environment where those around him valued what he was contributing, played a huge part in improving how he was feeling.
Alice Gibbens
But there was an additional factor that perhaps made the shift in his life ever more extraordinary–his marriage to Alice Gibbens. As William explained this to his friend, Josiah Royce, “I have found in marriage a calm and repose I never knew before, and only wish I had done the thing ten years earlier.”
William’s son, Henry, describes the important support that his mother provided to his father, as follows:
“His wife, who entered into all of his plans and undertakings with unfailing understanding and high spirit, stood guard over his library door, protected him from interruptions and distractions, managed the household and the children and the family business, helped him to order his day and to see and entertain his friends at convenient times…and encouraged him to all his major undertakings, with a sustaining skill and cheer which need not be described to anyone who knew his household.”
Professor William James
There are, of course, numerous other aspects of William’s life that played a part in the lifting of his general spirits, some of which I cover in earlier posts. For remarkable suggestions for helping people who are considering suicide, consider taking a look at my post, “Is Life Worth Living? A William James Perspective” (see HERE). But, for now, I leave the reader here hoping today’s post will serve to make the nature of depression at least a little more comprehensible.
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Some people will enjoy reading this blog by beginning with the first post and then moving forward to the next more recent one; then to the next one; and so on. This permits readers to catch up on some ideas that were presented earlier and to move through all of the ideas in a systematic fashion to develop their emotional intelligence. To begin at the very first post you can click HERE.