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alternatives to DSM conflict resolution

Seeking to Reform the Psychiatric Diagnosis System

Welcome to From Insults To Respect. As several of my earlier blog posts have indicated, many professionals, mental health service users, involuntary patients, and the general public have little, to no respect, for the American Psychiatric Association’s most recent version of its Diagnostic and Statistical Manual of Mental Disorders (DSM-5).

Just before the DSM-5 was published, early drafts were made available, and in 2011 the British Psychological Society (BPS) and the American Psychological Association’s Society for Humanistic Psychology expressed concern that:

…clients and the general public are negatively affected by the continued and continuous medicalisation of their natural and normal responses to their experiences; responses which undoubtedly have distressing consequences which demand helping responses, but which do not reflect illnesses so much as normal individual variation…

Additionally, many researchers have pointed out that psychiatric diagnoses are plagued by problems of reliability, validity, and prognostic value.

These concerns, among others, appeared in an Open Letter to the DSM-5 developers that was endorsed by over 15,000 mental health professionals and other individuals, as well as by over 50 professional organizations, including 15 additional divisions of the American Psychological Association. These concerns were largely ignored by the DSM-5 developers.

Since then, we have seen the development of a few proposals for alternative frameworks. Most of them continue to pathologize those seeking mental health services.

In contrast, there is now my own proposed alternative, the Classification and Statistical Manual of Mental Health Concerns (CSM) which I presented at the American Psychological Association’s Annual Convention, and published in a peer reviewed psychology journal (see HERE). The CSM approach recognizes mental health professionals require some classification system for providing a common language for them to communicate about those utilizing their services. These terms must, for practical purposes, be short phrases that are convenient for placing them into titles and search engines, and for efficient/streamlined communication in the often hectic environments of many hospitals and clinics.

However, unlike the CSM, other frameworks being proposed use the term “diagnosis,” which implies that the mental health professional, once providing the diagnosis, now knows the cause of the concerns being expressed by the person seeking services, which is simply not true. Instead, they may have some tentative theory for the cause or be completely puzzled. Nevertheless, to access services, the misleading diagnosis is provided. Moreover, the “diagnostic” terms used identify and locate problems within individuals and labels the individual as having a mental disorder, which is often stigmatizing.

In contrast, the CSM does not seek to label anyone. Instead, it classifies the expressed concerns of those seeking mental health services, using the typical non-jargon phrases employed by them. These phrases would become the short phrases that would be used by mental health professionals for titles and search engines, and for efficient/streamlined communication.

Beyond creating this practical classification system, the CSM then relies on a psychological formulation approach that opens the door to finding causes for these types of concerns in the circumstances of the service seeker’s lives. Locating problems within only individuals, as the DSM-5 does, misses the relational context and undeniable social and structural influences on many of these concerns.

I developed the CSM approach while working with the Task Force on Diagnostic Alternatives of the American Psychological Association’s Division 32 (Society of Humanistic Psychology). That group has not officially supported, as of yet, any single alternative. Instead, it has wisely decided that its next step is to send out a new open letter hoping to garner support for starting a process that will involve all of the mental health stakeholders including former and current mental health service users, individuals who experienced involuntary treatment, their family members, and mental health professionals.

Why bother to create a new open letter to those who are in positions that can really make meaningful changes since the last one was largely ignored? It is because of a deep understanding of how meaningful positive changes do occur. Advocates for change are, at first, largely ignored. Then, through continued advocacy, some meaningful discussions do get underway. And finally, positive changes occur. The process by which women obtained the right to vote is one notable example of this.

So, this letter was created with the flame of hope still flickering within the hearts of many of us.

The letter is addressed to:

Co-Chairs of the World Health Organization Joint Task Force (JTF) on the ICD-11 for Mortality and Morbidity Statistics, 

Stefanie Weber, MD
Head, Medical Vocabularies
German Institute for Medical Documentation and Information (DIMDI)
Waisenhausgasse 36-38A
50676 Cologne, Germany

James Harrison
Director, Research Centre for Injury Studies
Flinders University, Adelaide Australia
GPO Box 2100 Adelaide SA 5001 Australia

Chair, DSM Steering Committee:

Paul S. Appelbaum, MD
Elizabeth K Dollard Professor of Psychiatry, Medicine & Law
New York State Psychiatric Institute
1051 Riverside Drive, #122
New York, NY 10032

Coordinator, RDoC:

Bruce N. Cuthbert, PhD
National Institute of Mental Health
NSC BG RM 6200
6001 Executive Boulevard
Rockville MD 20852

I was one of the consultants that helped to craft the letter. Among the main points that it seeks to make are:

In practice, diagnoses are not conferred in a contextual vacuum. The criteria are not culture or value-free but instead reflect current normative social expectations. At the same time, psychiatric diagnoses have substantial impact on the social and occupational lives of those to whom they are applied. And reductionist biomedical diagnoses obscure the social determinants of our distress. This is important: as the United Nations Special Rapporteur concluded in 2017, we are under an international obligation to ensure that mental healthcare adequately addresses social contexts and relationships.

The letter concludes:

As a next step to address these concerns, we request an online, telephone or in-person meeting to discuss these issues in more depth. We look forward to your response.

Readers of this blog are invited to read this letter HERE. 

My Best,

Jeff  

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American Psychiatric Association American Psychological Association conflict resolution Diagnostic and Statistical Manual of Mental Disorders-5 DSM

Has Psychology Sold Out to Psychiatry?

Justice

Today, I want to consider if the American Psychological Association’s participation in the mental disorder labelling practices promoted by the the American Psychiatric Association is due to something other than science and promoting human welfare?

The American Psychological Association’s Emphasis on Science and Human Welfare

scienceFirst of all, I should note that I am a member of the American Psychological Association, and have been so for over forty years. Nevertheless, there is one particular aspect of the association that is deeply troubling to me.

Its very first sentence of the home page of its website states that it is “the leading scientific and professional organization representing psychology in the United States.” Shortly after this, it mentions, as well, that it has a mission to “promote human welfare.”

Keeping the profession as scientific as possible and promoting human welfare is something I very much support. Moreover, there are some things the association has been doing over the years that are consistent with these values, and therefore I have continued my membership. However, it greatly frustrates me that most psychologists providing mental health services are required to “diagnose” a person seeking mental health services with an approach supported and promulgated by the psychiatrist’s organization. This so called diagnosis then must be placed on the patient/client insurance form.

Structure-of-scientific-revolutionsAs part of the psychological organization’s strong interest in science, pretty much anyone entering its approved doctoral psychology program is required to study the ideas of Thomas Kuhn’s thesis on The Structure of Scientific Revolutions. Such revolutions, we learned, come about after a period of time when a field presupposes a conceptual and instrumental framework accepted without question. Then, more and more, members of the community begin to see a buildup of anomalies in the framework until a “crisis” which can no longer be resolved within the pre-established framework.

dsm-5-smallIt just so happens that the psychiatrist’s stigmatizing diagnostic system, which is described in its Diagnostic and Statistical Manual of Mental Disorders-Fifth Edition (DSM-5), has huge anomalies that have been recognized for years, and despite this, psychologists continue to utilize it without taking substantive steps to create a more scientific alternative. Let’s take a quick look at these anomalies. Afterwards, we’ll look at the benefits to psychologists that may be motivating it to continue to go along with the DSM-5 approach despite its major scientific weaknesses.

The Scientific Shortcomings of the DSM-5

Science demands objective definitions, but the DSM-5 approach relies on the completely subjective definition of a mental disorder. Its definition of a mental disorder is, in large part, and I quote, “a syndrome characterized by a clinically significant disturbance in an individual.” Now, I ask you, what can be more subjective than this?

VagueThe process described in the DSM-5 for assessing the subjective notions of “disturbance” in the individual is left to the clinician who decides if these are “clinically significant.” Thus, it provides clinicians an opportunity to include anything that benefits their set of values.

Now we all know that many clinicians have a financial interest in deciding whether or not their clients have a clinically significant condition. When they judge that their clients’ conditions are significant, they indicate this on the third party intake forms and this allows them to continue to see these clients and to get paid for additional visits. On the other hand, clinicians who work in an underfunded community government clinic that is being swamped by those seeking to access mental health services might apply a more stringent standard for what constitutes a mental disorder. Thus, the DSM-5 approach to the definition of a mental disorder obviously leaves room for enormous bias by clinicians, rather than anything that looks objective and free from bias.

reliabilityAll psychologists are taught that if a hypothetical construct, such as a mental disorder, is to have any validity, it must first demonstrate that it can be reliably identified. Upon reading the DSM-5, we find that there is no documentation that people, whether they are clinicians or not, can reliably distinguish between those who have mental disorders and those who do not have mental disorders. Thus, the lack of this documentation is analogous to a classification system of birds that has no documentation that people can reliably distinguish birds from non-birds.

With regards to reliably distinguishing between the different types of mental disorders, some field trials did look at this. Keep in mind that the DSM-5 defines over 300 different mental disorders. Approximately 270 of them were not tested at all for reliability but are nevertheless included in the DSM-5. The field trials tried to look at the reliability for thirty-one “disorders” included in the DSM-5, probably selected because these were ones that its developers thought would be most likely to make the DSM-5 look as good as possibleThe results indicate that eight disorders had to be dropped altogether from the analysis because the researchers were unable to get enough data to support any analysis at all. Three others had reliability estimates that, according to the authors, fell in the “unacceptable range.” Six others had reliability estimates that fell in the “questionable range.” The remaining fourteen mental disorders had, according to the authors, “good to very good” reliability, despite the fact that there are no generally accepted standards for what counts as reliable enough against which the DSM-5 criteria can be judged. Among the “disorders” that were found to have very low reliability were “major depressive disorder” and “generalized anxiety disorder,” two of the most common “diagnoses.”

As I already mentioned, a classification system for a hypothetical construct must first demonstrate it is reliable. Then we look at the “validity” of the system. Upon examining the validity of the DSM, Thomas Insel, a recent NIMH director, stated:

thomas-inselThe weakness [of the DSM] is its lack of validity. Unlike our definitions of ischemic heart disease, lymphoma, or AIDS, the DSM diagnoses are based on a consensus about clusters of clinical symptoms, not any objective laboratory measure. In the rest of medicine, this would be equivalent to creating diagnostic systems based on the nature of chest pain or the quality of fever. Indeed, symptom-based diagnosis, once common in other areas of medicine, has been largely replaced in the past half-century, as we have understood that symptoms alone rarely indicate the best choice of treatment.

DiagnosisIn addition to the DSM’s shortcomings with regards to its classification system’s reliability and validity, there are also serious shortcomings with regards to its claim of being a diagnostic system. A diagnostic system speaks to etiology, that is, the cause, set of causes, or manner of causation of a disease or condition. But the DSM-5 specifically states that it is not designed to identify the cause of the various “disorders” it classifies. Then why use the term “diagnosis” rather than the more scientifically defensible term, “classification?” As we will see, this gets us back to our larger question, why does the psychologist organization accept the use of the DSM-5 given its problematic record of reliability and validity, as well as its use of the word “diagnosis” in a misleading, imprecise manner?

Why Does the American Psychological Association Continue to Go Along with the Use of the DSM-5?

In answering this question, in the interest of fairness to the psychologist organization, it is crucial to point out that it has not, to my knowledge, interfered with discussions about this issue. In fact, it has even, on occasion, supported these discussions. For example, in 2002, it published a book titled, Rethinking the DSM: A Psychological Perspective. There we find well researched critiques of the DSM approach, and some preliminary alternatives proposed. convention 1Moreover, symposium  proposals on this issue are oftentimes accepted for presentations at its national convention. (See HERE for a description of one well thought out research based alternative that was presented at its 2016 and 2017 conventions and was later published in a peer reviewed journal).

But despite these publications, discussions, and proposals, nothing has been done by the association to bring anything of substance to fruition. It certainly has the resources to commission the development of a far more scientific approach, but it has never done so. How come? Here’s one theory.

pillsA well recognized usefulness of the DSM-5 is that by using its medical sounding terms to refer to all of the experiences that this approach classifies as “mental disorders” it legitimizes in the minds of many the prescribing of drugs for these experiences.

There is an enormous amount of money being made from this approach because it takes less than a penny to manufacture each pill, and yet each pill can be sold for hundreds of times that amount. This is a rather unique business situation. Typically, if a company can sell its products or services for a 10 percent profit it is doing super well. Compared to such companies, the pharmaceutical companies are Jonathan Swift’s Brobdingnag Giants. With so much money being generated from this enterprise, the drug companies have managed to make it clear to powerful groups that what benefits the drug companies also benefits them. Examples are, major media outlets gain enormous revenues from drug company advertisements, and political campaigns get substantial support from industry lobby groups. Whenever a university wants to build a new building, often a pharmaceutical company offers financial support, and a number of professorship positions would not exist without its support.

prescriptionsNow keep in mind that the psychiatric association membership consists largely of psychiatrists who make their living by prescribing these drugs. Moreover, there are several reports indicating that the majority of the major players who developed the DSM-5 were on the payroll of the pharmaceutical industry. So, it makes sense to theorize that the psychiatric organization may very well be influenced by all of this wealth. But what about the psychological association?

Psychologists have a division called “Psychopharmacology and Substance Abuse” which depends, to a large extent, on grants provided by drug companies. Many psychologists get referrals from psychiatrists. More and more psychologists are getting the right to prescribe psychiatric drugs. And, as I already mentioned, the drug companies have powerful lobbyists working to influence government decisions about mental health practices.

Because of these influencing factors, the American Psychological Association, it appears to me, has turned a blind eye to its stated mission to be scientific and a promoter of human welfare.

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Some people will enjoy reading this blog by beginning with the first post and then moving forward to the next more recent one; then to the next one; and so on. This permits readers to catch up on some ideas that were presented earlier and to move through all of the ideas in a systematic fashion to develop their emotional intelligence. To begin at the very first post you can click HERE.

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conflict resolution CSM DSM ICD The Classification and Statistical Manual of Mental Health Concerns The Diagnostic and Statistical Manual of Mental Disorders

My Upcoming APA Speech on Psychiatric Diagnosis

Last year at the American Psychological Association Convention, I presented a paper on a proposal for an alternative to the current psychiatric diagnosis system, which can be read HERE. It provoked supportive comments, suggestions for making some improvements, and an invitation to write up my approach for an article in the Journal of Humanistic Psychology. 

Now I have been invited to present an update to my proposal at this year’s APA convention in Denver. My remarks will be part of a three hour symposium titled, “The Future of Diagnosis: Ethics, Social Justice, and Alternative Paradigms.”

I am currently in the midst of preparing the final touches on my presentation. As I do so, I’m hoping to get some feedback from my blog readers. To that end, below you will find a summary of what I plan to say. Please look it over, and I’m inviting all of you to let me know what you think about it. Feel free to raise questions, to present as much negative criticism as you wish, and of course positive comments are also  welcomed.

Title of 2016 APA Convention Paper: The CSM: A Person-Centered, Culturally Sensitive, Recovery-Oriented Alternative to the DSM and ICD

Presenter: Jeffrey Rubin, PhD

Paper Summary

The Classification and Statistical Manual of Mental Health Concerns (CSM) is a proposed alternative to the American Psychiatric Association’s DSM and the mental disorders section of the International Classification of Diseases (ICD). Both the DSM and ICD seek to legitimize the privileging of the “expert” by having the clinician making a mental disorder diagnosis. It is argued that that perspective hinders the empowering of mental health service users. The CSM, in contrast, would respect the perspective of persons seeking services by beginning with the following statement: “The developers of the CSM fully recognize that persons seeking mental health services have far more expertise about what is going on in their lives than any mental health service provider. Moreover, individuality outruns any classification system. It is for this reason that the CSM does not classify anyone. Instead, it classifies the expressed concerns of individuals seeking to have their concerns addressed by a mental health service provider.” A mental health concern, as defined in this proposal, occurs when a person seeking mental health services expresses to a mental health service provider a concern about any of these topics: behavior, emotion, mood, meaning of life, death, dying, managing chronic pain, addiction, work, relationships, education, eating, cognition, sleep, and challenging life situation. In addition to classifying mental health concerns, the CSM would describe a collaborative approach between the person expressing the concern and the mental health service provider for creating a psychological formulation narrative that eschews the DSM and ICD psychopathologizing jargon. It is argued that when compared to the DSM and ICD, the use of the CSM would be less stigmatizing, as well as more scientific, person-centered, culturally sensitive and recovery-oriented.

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Some people will enjoy reading this blog by beginning with the first post and then moving forward to the next more recent one; then to the next one; and so on. This permits readers to catch up on some ideas that were presented earlier and to move through all of the ideas in a systematic fashion to develop their emotional and social intelligence. To begin at the very first post you can click HERE.